In February 2014 I brought my mom home from the rehab facility under hospice. She was making no progress with physical therapy and walking so medicare would not continue to pay. So I brought a bedridden 90 year old woman suffering from dementia home. I paid out of pocket for two ladies to take care of mom during the day and hospice sent an aide every day to help with the bathing. Since she has shown no decline in her health status hospice is discharging her. So that means I will lose the services of the aides who bathe her,the hospital bed,highback wheelchair and lift. My mother is bedridden and has dementia. I don't understand why hospice is dismissing mom she will not get any better with the dementia. Where can I get help?
Medicare now requires MD's to submit PROOF, test results or reports that substantiate a condition that will lead to death within 6 months, such as stage 4 cancer, advanced heart failure or kidney failure that does not respond to treatment. Medicare part B will provide a hospital bed and whatever other items are prescribed by her MD, just not through Hospice billing. Visiting Nurses and aides are also ordered by her MD instead of Hospice. If she was married to a wartime Vet, look into Aid & Attendance help from the VA.
Hospice care cuts through a lot of the red tap for you, and now you are on your own to face that, but, in our experience, the care for your Mom can continue at a high quality level. If she is still on Hospice, talk to the social worker and/or nurse about your concerns. We found them very helpful, and they even delayed discharging her until the replacement wheelchair was available.
I know that things are little different at home, but you can have, for example, bath aides a couple times a week. Talk to her doctor.
Do you think it would be better for Mom to be cared for in a 24-hour facility? You could visit her as her loving daughter, as we do our mom, knowing that her needs will be met around the clock.