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My mom has dementia and is in independent living. She has started calling police at night because of hallucinations. What can we do to stop her and should we put her in assisted living?
Jimmy, It does sound like your mother either needs to be moved somewhere else or have her meds adjusted. I'm assuming that she has a call button that most residents in asst. living have where she can push the button for help? If she does, then maybe at night someone could remove the telephone from her room. She'll still have a way to call for help, but it won't be to the police. It'll be to the whoever is on duty on the evening shift where she lives.
I agree with Jessie. It sounds like Mother needs nighttime supervision, either with in-home care, or in a different setting. The nature of dementia is such that most persons with that disease cannot continue living alone beyond the early stages.
Is her doctor aware of her hallucinations? Medications aren't always successful with that symptom but it may be something her doctor could help with.
My mom was big on calling the police when she was in IL. This all related to her being "robbed". Mom has Lewy Body Dementia and also had/has hallucinations too. Lewy for my mom was so that she seemed very capable and then there would be an episode of way over the top behavior. Keep in mind, this is IL so each apartment or unit has their own phone and there were 3 emergency pulls in each apartment for the residents. The first two calls, the police came and did a report. All standard. On the 3rd call, the head of IL came with the police to meet with my mom. My mom was all fixated & hyper on having them arrest another resident for stealing from her. I got a call from the police the next day as to what the options were - either they responded and she would be charged a fee for it, like what is done for false alarm calls or I could (as her DPOA) sign off for non-response. What the police did was to have her phone # put to some sort of diversion program. It was done within the community outreach program, so they would take her call but would not respond. At the same time, I was getting my mom's medical done to have her qualify for skilled nursing and she moved from IL to NH a few weeks after the last call to the police. Her level of dementia was at the tipping point at not being cognitive or competent enough for IL. I'd have a heart to heart with the IL regarding the situtation for your mom and her suitability for this IL.
My mom does not have a phone in her room @ NH either. The consensus seems to be that those elders who do this will persist and total removal of phones is the only option.
I love the idea from vw9729 about having a service with "parental limits".
Can you get her to go with you to see another doctor, say a geriatric psychiatrist? You certainly must keep her from driving by disappearing the car, the keys or disabling the ignition. You may have to wait for her to fall and need medical attention. If this happens, do not rescue her, call 911. When the hospital is ready to discharge, make sure they know what's really going on and that you cannot provide adequate care or supervision.
If your mother is hallucinating and acting on the hallucinations, I think it is time for her to be watched at night. I don't know if you have an assisted living facility near you that will provide the service you need. Many just provide meals and cleaning. Check with them to see if they provide services for dementia patients, such as nighttime assistance. I do not know her calls can be stopped. Some facilities can screen incoming calls, but I haven't heard of any that screen outgoing calls.
It may save you time to check with your local Alzheimer's organization or county human resources department to see if they know a place that fits your mother's needs. It may be that she could do well living independently, but with a nighttime caregiver that can calm her and stop her from calling the police. It would be nice if we could just explain that there is no danger, but it doesn't work but for a short time, particularly if a person sees things.
I hope that others will have advice for you. Please let us know if you are able to find a caregiver or a place for your mother. I wonder if the company, A Place for Mom, would be helpful in circumstances such as yours.
Another suggestion is to talk to her doctor and see if he could prescribe something to help her sleep or with her anxiety at night or both. It could also be something she is already taking that could be causing this. But it sounds like if she is getting that scared, she needs a little more help in that area. Plus, you may want to check with the phone service she has. Mine has "parental limits" and I can control when the phone can be used - so I could block the nighttime hours if needed to keep her from making phone calls. But I would try the first suggestion first. Good luck!
My mom lives in Illinois, she has signs of dementia/alzhiemers for about 7 years. my father passed away 5 years ago, I am an only child. sje lives alone and shouldn't. she is paranoid, hates me tells me repeatidly that she hates me and wishes I was dead. She calls the police at night because she thinks the neighbors are knocking on her windows and ringing her door bell. she doesn't have a door bell, and her neighbors are in their 80's and been her neighbor for almost 60 years. she says I am paying them to harase her. she has hit so many things with her car (Lincoln town car) that she tears off a piece of duct tape and tries to patch her car. her television was turned off last month for none payment she paid her light bill twice last month and is getting audited by IRS. She doesn't take all of her info to the FREE tax preparer and they don't know any better so is claiming different every year. mows her grass every day of the week. Got a call she was on her roof, I immediately went there and asked her what she was doing said she was checking for leaks. she has no POA as does not trust anyone. Where do I turn what do I do? she needs placed in a safe environment. I spoke with her nurse practitioner and she said she asked her three questions : the year - the president - and if she knew where she was and was able to answer all of those so she thinks she is OK. She is an idiot. what do I do ?
The Nurse Practitioner has fobbed you off. Be persistent, go back to her MD's office and stamp your feet until somebody does a proper cognitive assessment. Little old ladies who hop onto roofs looking for non-existent leaks do not pass Go with those.
If you still don't have any luck, call APS and report (as unemotionally as you can) everything you've told us. Your mother's behaviour is placing her at serious risk, and it is their responsibility to ensure that vulnerable elders do not come to harm.
Just re read your question. Next time you get a call that she's doing something dangerous, please ask whoever is reporting this to call 911. You do so also.
Britan- geez Louise we know what u r going through. Mom is probably past the point of IL or AL. She will need to go to a NH & for that u will need an MD to write orders for "skilled nursing care" needed. The NP - if their testing for the dementias is just the 3 ?'s - is totally useless. You need to get mom to be seen by a gerontologist. A real gerontologist & not just the old family medicine MD or her old internal medicine guy. The gerontologist will have within their group whatever other specialists needed, like a geriatric neurologist. I bet mom does not have Alzheimer's but one of the other dementias (maybe frontotemporal) so will need her meds tailored to that dementia. But they can do the testing to determine where she is within the level of cognitive ability to get a good handle on this.
As Jeannie gibbs has aptly posted " taking your elder to a gerontologist is like taking your kids to a pediatrician". For us, I was able to get mom seen by the program with the medical school by a referral from an orthopedic surgeon. On retrospect, it has been just priceless in this long journey with my mom aging (she has Lewy Body dementia). Most larger cities will have gerontologists, likely a 2 month reach for an appointment but once seen she can easily get appointments as needed.
Now about your legal status in all this, if she will just flat resist doing DPOA etc then the only option is the guardian/conservator route. Do u live in the same state? g/c 's are their own set of sticky to deal with, if u dont live in the state,you may not be named the G/C. Really do whatever you can to get her to do DPOA MPOA. Tell her she can totally revoke it as needed, just whatever to humor her to get her to sign them. You will be best off having two witnesses to the document. Is there someone in her neighborhood that could do this? Like someone u went to HS with or a older neighbor you knew from when u lived there? Check FB or your HS reunion site for people. Let us know how all this progresses too. Good luck!
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Is her doctor aware of her hallucinations? Medications aren't always successful with that symptom but it may be something her doctor could help with.
My mom was big on calling the police when she was in IL. This all related to her being "robbed". Mom has Lewy Body Dementia and also had/has hallucinations too. Lewy for my mom was so that she seemed very capable and then there would be an episode of way over the top behavior. Keep in mind, this is IL so each apartment or unit has their own phone and there were 3 emergency pulls in each apartment for the residents. The first two calls, the police came and did a report. All standard. On the 3rd call, the head of IL came with the police to meet with my mom. My mom was all fixated & hyper on having them arrest another resident for stealing from her. I got a call from the police the next day as to what the options were - either they responded and she would be charged a fee for it, like what is done for false alarm calls or I could (as her DPOA) sign off for non-response. What the police did was to have her phone # put to some sort of diversion program. It was done within the community outreach program, so they would take her call but would not respond. At the same time, I was getting my mom's medical done to have her qualify for skilled nursing and she moved from IL to NH a few weeks after the last call to the police. Her level of dementia was at the tipping point at not being cognitive or competent enough for IL. I'd have a heart to heart with the IL regarding the situtation for your mom and her suitability for this IL.
My mom does not have a phone in her room @ NH either. The consensus seems to be that those elders who do this will persist and total removal of phones is the only option.
I love the idea from vw9729 about having a service with "parental limits".
It may save you time to check with your local Alzheimer's organization or county human resources department to see if they know a place that fits your mother's needs. It may be that she could do well living independently, but with a nighttime caregiver that can calm her and stop her from calling the police. It would be nice if we could just explain that there is no danger, but it doesn't work but for a short time, particularly if a person sees things.
I hope that others will have advice for you. Please let us know if you are able to find a caregiver or a place for your mother. I wonder if the company, A Place for Mom, would be helpful in circumstances such as yours.
If you still don't have any luck, call APS and report (as unemotionally as you can) everything you've told us. Your mother's behaviour is placing her at serious risk, and it is their responsibility to ensure that vulnerable elders do not come to harm.
As Jeannie gibbs has aptly posted " taking your elder to a gerontologist is like taking your kids to a pediatrician". For us, I was able to get mom seen by the program with the medical school by a referral from an orthopedic surgeon. On retrospect, it has been just priceless in this long journey with my mom aging (she has Lewy Body dementia). Most larger cities will have gerontologists, likely a 2 month reach for an appointment but once seen she can easily get appointments as needed.
Now about your legal status in all this, if she will just flat resist doing DPOA etc then the only option is the guardian/conservator route. Do u live in the same state? g/c 's are their own set of sticky to deal with, if u dont live in the state,you may not be named the G/C. Really do whatever you can to get her to do DPOA MPOA. Tell her she can totally revoke it as needed, just whatever to humor her to get her to sign them. You will be best off having two witnesses to the document. Is there someone in her neighborhood that could do this? Like someone u went to HS with or a older neighbor you knew from when u lived there? Check FB or your HS reunion site for people.
Let us know how all this progresses too. Good luck!
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