My mom has now moved in with us as she can't live alone any longer. Probably mid stage dementia. Her narcissistic personality disorder has always been challenging, but with dementia it's like throwing gasoline on a fire. Is anyone else dealing with this?
I have signed her up for other activities and classes, but if she's not the best in the class she doesn't like it She doesn't notice anyone else's needs or point of view. Sometimes it's funny, and it helps to laugh! Example: our hairdresser always has a bowl of candy out. My sister, who has always been slim and in the past watched her weight, eats every candy in the bowl without comment or apology. My hairdresser (a friend by now) prepares for our visit by limiting the number of expensive chocolates in the bowl.
She's got numerous health problems, including failing eyesight. She constantly offers me a flashlight to see things that SHE can't see, but that look perfectly normal to us. We even had to replace every overhead light in the house with a 150w bulb! (It's like a doctor's office in every room!)
Sometimes it's just exhausting. I'll make sure she has a snack, her phone and something on tv, then pull a fast retreat to my part of the house (a downstairs garage-turned-apartment) for a few hours to write or read or just play video games for a while.
She doesn't get along well with... well most anyone, so we haven't been able to get her to agree to "adult daycare" or classes or any of that, but she still loves TV, and she has a computer of her own that she can still use, so she does get enjoyment from that (and facebook. She's found a lot of old highschool friends on there and sends messages on occasion)
Perhaps that would work in your case as well? If you have the ability, and she would like it, set her up on facebook and find some of her old friends? Or if she doesn't like that, maybe she'd like to play games? There are thousands of simple, bright, colourful games that are just point and click!
I have tried to get her involved with people and activities but she does not like people and has given up the only thing she enjoyed, crocheting due to bad eyesight. I take her out shopping and to the park and she has a health aid that takes her out to eat and keeps her company during the day. I tell myself every day this is the best I can do and not to feel guilty, that she is lucky to have me in her life.
I knew where things were heading, and well now we're here. Back when I joined, I was helping my basically independent dad who was functionally illiterate, manage his life without my mom, who had passed from cancer. And learned quickly, the more I did, the more demanding he became, when I refused to do his laundry and grocery shopping for him when he was perfectly capable, he became very verbally abusive towards me, which continued off on over the last several years, I'm this, I'm that, I'm a liar, my husband is this and that. He's treated me like a lowly employee since my mom passed. He tried to use one little thing my mom wanted me to have as bait to get me to help him do things he was perfectly capable of, I didn't care, helped anyway where it was really necessary, knowing full well what he was doing. Thank God I'm not like him. And of course the less I did for dad, the more verbally abusive my brother got towards me because that meant he might actually have to do something to help.
Now dad has moderate dementia, it's bad enough he can't be left alone at all, and the bits of abusive behavior are coming out ten fold and aimed at me. I visited him this evening and he tried to hit me with the handle of walking cane, tried to swing it across my head. I've had enough. It's much like the many many vents I've read on here from others who have dealt with a parent like this. He said it was my fault he was sick, told my youngest daughter, "you don't know, you don't know what I know, what kind of person she is". For some reason the abuse is worse when I'm there with someone else, it's like he wants an audience and wants others to jump in and hassle me, I don't understand why. When he was in the hospital I'd be sitting in a chair against the wall, and one time the nurses were walking by and heard him yelling like someone was beating him and they saw me sitting there while he was yelling, they knew it wasn't me, but he was acting like I'd done something to him, and they put in his chart that he was violent and yelling and swinging at people, because of this I had a hard time finding any place that would take him when he had to leave the hospital. Tonight I took the cane from him and told him he couldn't have it if he's going to hit people with it. When I go to see him alone, he gives me a to do list basically of things to take care of around his house, and bills to pay and stuff to pick up at the store for him and do his laundry, anything he can think of, he even asked me to work on his gas well and mow his yard, gets mad when I put my own home first. He asks me what I did the day before, or that day when I go to visit him, and then says I'm lying about what I did the day before or that day, I didn't mow my yard, I didn't go by the post office, etc... It's crazy and frankly maddening for anyone to deal with.
The nursing home is planning on releasing him if they can get him to the point where he can go home, that's their goal, but I can tell they aren't sure they can get him there. They know I cannot live with him and he cannot live with me, they didn't even bring up my brother, who does not work, is not married, does not have kids, does nothing and is perfectly healthy. In the end, after the violent behavior I saw tonight, which frankly took me back to my childhood, I've decided it's done, he's staying, he'll go to assisted living, we'll call it transition to going home. He thinks he can hire some poor woman to basically live with him and take care of him 24/7, he can't, I'd have to do it for him if I could even find some poor woman willing to take his abuse, it's not going to happen. The family is scheduling a meeting this week, no one wants to take him in, everyone, even the brother would prefer to see him stay in nursing care, he can't live alone, and hiring help is not an option, also his house is not stable, foundation problems. Some family members feel it'll be condemned soon, it's looking like we all will be working together to pack up the house, put his personal belongings in storage, leave the house as is until it's officially condemned or falls into the ground. Do the spend down to Medicaid paying for his care until it's gone. I think once the brother finds out that dads assets are going to his nursing care, he'll disappear, and that's all the better. How many have found that once the problem sibling finds out there won't be anything for them to inherit, because it's going to a spend down for Medicaid towards the parents bills, they just walk away from the whole family? Anyway, very upset this evening, and ready to be done with this and live my life without the grief do to a hateful parent, I sound terrible, but there is no way I'm going to do this to myself anymore, I'm ready to move on.
My mom is 85 and has a text book case of Narcissistic Personality. She is also (and always has been), mean, hateful, vengeful, deceptive, negative, and sarcastic.
One of the best books available is 'Will I Ever Be Good Enough". I strongly recommend you read if you haven't as soon as possible. The hurt and the emotional neglect that the self centered parent leaves on their children can destroy their lives if the children allow it or accept it. It took many, many years for myself and my siblings to finally accept that we are important, we do have worth and that our parent has a mental disorder. Some of us had to just walk away and maintain a casual, long distance relationship that of course was one sided. Mom didn't seem to care and we seldom heard from her. Mom's dementia has escalated to add paranoia to the above list of attributes. We are all stupid (even though we are professional people), stealing from her and plotting against her. She was under investigation for physically abusing her companion while he was in the dying process. We hired a wonderful outside agency to care for her in her home since she ran all of her family off but she refused to let the agency in her home. Finally she ended up in the hospital and from there into a Care Facility. As stated by some of the others here, don't give up your life. I know that sounds selfish but it won't be appreciated anyway and in most cases it will be expected. There are others that can take care of mom and not have to be abused by her. My mother is as sweet as honey in the facility, calls all the staff sweetie and honey and actually says 'THANK YOU' to them. Two little words that we NEVER heard one time come out of her mouth at home or to us.
Don't feel guilty that you don't rush to her side to care of her, she really would prefer someone else anyway. Stay strong, assertive, healthy and know when to walk out of the room.
On a positive note, my sister and I have been praying for over 20 years that mom would find some peace in her 'miserable life' and if dementia can be a positive thing then it has been in this case. Her fits of rage, hatefulness and her attitude that the entire world is trying to 'screw' her have diminished drastically as her cognitive abilities decline. Maybe she will finish her journey on this earth in peace and if a miracle happens she may even be thankful for the life of luxury she has been given. Last week she told me 'thank you for calling' and even said 'I love you' after I told her I loved her. In 63 years I have never heard those words. So, keep staying strong, know your own worth, if you don't know it then please make every effort to find it while you can still enjoy the blessings of life. Just because your mom gave you life does not mean what she said or how she treated you is the truth of who you are or who you can be. Leave the care to someone who is competent, love and care for her from a distance and maybe her dementia will bring about some positive changes. If not, it is what it is and she will leave this place in the manner in which she lived and there is absolutely nothing that you can do to change that.
God Bless everyone of you who are going through this. I wouldn't wish it on my worst enemy.
I have been through much of the same type of dysfunction with my parents, my sibling, and the extended family. I feel for you. My mother, the narcissist acts out and does crazy things and my father enables and incites to the point where they did some really stupid things. This is a pattern throughout my life and I am the scapegoat. My sibling is also somewhat unbalanced and another big narcissist who has tried to create a narrative for the last few years and tells anyone who will listen that somehow I am abusing or neglecting my parents without a shred of evidence, just manipulations and allegations. My daughter who was so close to my father does not love them anymore after she saw what they were doing to me and saying about me. Now they are rather helpless and dependent on me and they are both afraid and resentful. It is sad. Dealing with the anger is the hardest part as I don't want it to destroy whatever happiness I have left. I am the same age as you. The good thing is that I have not repeated the pattern with my daughter, we have a close and healthy relationship. That is my triumph over all the madness. BTW, it sounds as though dementia is a factor in your mother's case and not getting her tested is a form of denial and it is cruel besides since she needs treatment for many things. Good luck!
Even if you feel guilty, you must carve out space for yourself cause this will be a long journey and you must find ways to keep strong.