My mother has Alzheimers, she has lived with us for two years. She is on two medications Donepezil HCL and Nuedexta which she has been taking for one year. In the past three weeks she has become angry mostly focused at my wife. She has always disliked my wife, we think is is due to thinking that I am her husband or brother. She is never wrong, lies all the time, and blames someone or them or they if she can't find something. She is 90 years old and in very good health no medication other than what is listed above. During the past two years our life has come to a halt and is affecting our marriage. Neither one of us want to put her in a nursing home, but we cannot continue in this manner.
And since you're being driven to choose, you have to put your wife first. You can provide loving care for your mother without necessarily living with her. Same doesn't apply to your wife. Make sure your wife knows it's not her fault and you're not blaming her.
It's sounds like your mom is having difficulty accepting responsibility for her actions.. ie. blaming others,lying, seeking Attn through negative behaviors. It also sounds like there was a history of mental health issues ( not liking your wife in the past ) reason I say this exhibits a MHI is because of how your mom handled her emotions with as opposed to the fact that she had feelings of anger which may it not have been warranted.
I have found donepezil to have issues depending on the form of dementia the person has. My mom has delusional ideation as a symptom and the donepezil makes it worse, to the point of anger. So you might wanna talk with your doc about taking her off for a month, however before you do that make sure it's being given at the correct time of the day which is just before bed as it works more efficiently while the mind is at rest.
As for the arguing, make sure it isn't your wife. I realize that no one will say this on here cause she's " going above and beyond" helping with the care for your mom, but I had to have a sit down with my wife because of her personality clashing with my moms.
It is very hard to distinguish if you aren't or haven't been involved in counseling, reading body mechanics, and or facial expressions. The dementia patient clearly understands body language as words can sometimes be confusing.
As an example, my wife is very mothering when it comes to mom. That's great right!?! No. Mom was a VERY independent woman and doesn't desire the mothering ways of my wife and in turn doesn't always like her.
So taking a step back and all of you going to moms memory/psych appts might be a first step.
I wish you well and hope you can find a solution other than a facility. They raised us, now it's out turn :)
Chris
We decided that as long as she is still mobile she would stay with us. We wouldn't have enough money for an expensive memory care place and I do not want our corrupt government anywhere near us.
That's an interesting "american"perspective. The Chinese respect their elders no matter the cost. I guess it's just a matter of choosing to do what may be difficult or wash ones hands cause they can't handle it. My outlook is like the Asian perspective. Respect, love, and sacrifice.
I see I live in a world that has less and less of that in every turn I take... How sad for the elderly, and those with cognitive diseases and or the inability to reason why they have lost EVERYTHING. May I suggest you step outside the box and look in? Imagine losing everything! Then, cause you're scared and don't know how to express it appropriately family takes care of it by placing you in a home with strangers.
Nah that ain't for me or my family and believe it should not be for any family. I feel so sorry for the people with dementia. Too often, they are forgotten about because people need their lives back. Think. A caregiver wouldn't have a life to begin with if it weren't for the person with dementia.
I mean no offense to you. I just have a difficult time with masking failure to take care of ones own family and placing the burden on others.
Imagine if we were all just thrown into foster care cause our elders "couldn't handle it" and just had to take care of themselves.
I too, have told my daughters I do not want to live with them . I would want to live near them and be a part of their lives, but not a full-time responsibility.Their responsibility is to their husbands and my grandchildren. I would hate to think that if they cared for me they would become resentful of my presence, and it appears that may happen in your situation. My 90 yr. old mil sounds much like your mom, but she is in an ALF near us with lots of activities and a special dementia care program for the 12 or so residents in her building that need extra "coddling" . If you find a good facility it is a godsend, and it needn't be a nursing home. I think many times ALF and nursing homes get a bad rap on this site, but there are good ones out there, albeit expensive. (MIL had the good sense to purchase long-term care insurance). I, too, wish you well, but please consider a facility.
This disease is awful and I hope your wife isn't taking this personally...that said, it's still hurtful and aggravating.
You and wife can save the marriage and not inflict anymore stress nor put you in awkward position. You will be free to visit mom often and have quality time vs refereeing and trying to diffuse hurt feelings.
It's time.
Blessings and Hugs.
Now, rpatrick, the choice is yours and I was giving you options that I have personally faced and continue to face. Some cannot handle the fortitude it takes to manage a loved ones care.
I feel my first post was sound advice and hope it works for you if you choose to use it/look into it.
I won't go into what I am experiencing as this isn't about me or mine. I can tell you that I've been and still am in your shoes. I have found that changing routine, (which hardly anyone here will recommend) improves the love ones QOL experience. I mean that's why we're supposed to be doing this in the first place! I hope you don't lose grasp of that.
I guess if there is one thing I have noticed here on these threads is the constant mantra of " it's time for a home" or something to that regard.
I am giving a completely opposite perspective because there are other options, or choices before you listen to ppl that say just put her in a home cause you have to worry about your marriage.
From what I read you were venting and frustrated looking for an answer to keep mom home, not put her in one. I wish you the best of luck. There are many options as you haven't said anything about the police being called, or her going outside and flagging down a car because of reduplicative paramnesia, and she obviously still knows who y'all are otherwise you would be dealing with capgras.
Try your best to keep her home with family. I have to tell myself every time mom starts up or gets confused or calls the police or doesn't remember you that it's the disease... If you and or your wife can't do that and a caregiver support group doesn't work, then you have a very difficult decision to make. One that we all must face
Be well and remember to breathe :)
Chris
I want all of you lovely people out there for sharing your experiences. They are my only outlets. I feel so much better after reading your posts. Sometimes it's a bit difficult reading them cause my eyes are filled with tears. God bless you all!
Are you worried that putting Mom in any kind of facility will hurt you financially.
It certainly will if you are anticipating an inheritance, but you won't have to pay for her care unless Mom transferred assets to you within the last five years. If you marriage is already rocky placing or keeping Mom will not effect the outcome. you may love your Mom but how does your wife feel? I would not feel obligated to love someone who hated me.
What is best for your Mom? What would she have wanted before the dementia set in? proper care in a loving atmosphere is the goal for everyone at the end of life. You may be providing proper care but is it a loving atmosphere. if the answer is no then focus on the proper care and find a facility where that can be provided long term. You can continue to love her, visit her and even take her home for a few days but it relieves your wife of something that is not her "duty"
If the site seems one-sided on this, you have to realize that most people on here are not here because caregiving is going swimmingly well, and though it may be hard work but they are rewarded with pleasant memories and feel really good about what they are doing. People get on here because they are trying to do what they think they are supposed to do and it is not going so well, sometimes even to the point of destroying careers, marriages, and families, or even potentially killing them. Not too long ago there was a case of a caregiver's mom who was physically as well as emotionally abusing her children, and it would not have been right or responsible to let that go on. The abusive caregivee was too afflicted with dementia to be amenable to counseling or behavior management. There are also just too many times when people sacrifice everything to the care of the parent out of what they feel is their obligation, only to fail at making the parent any happier or better off in any way. I'm going to sound like a broken record pretty soon, but I will repeat that there is no one-size-fits-all in this business.
Hi, I hear ya! Although I have to correct you on one thing first. I never said that anyone loves their family member less if they place. I do believe it takes a lot of fortitude to keep the loved one at home. And while I know there is not a one size fits all to anything in life, neither is there an one size fits all answer. I wasn't saying not to place because I believe that is the only answer, but i feel that it is for this particular post. I read the post, re-read the post, and then read it again. I was trying to ascertain where the feelings were coming from and what the crux of the communication was. Maybe in my paradigm I read it one way where as, everyone else read something different. My mom has her days, minutes, hours, but shes my buddy. I don't even really treat her like my mom, more like a friend maybe that's why when things go south it's not as hard to cope cause the emotion isn't as strong. Again apologies for getting off topic....
I want to leave with this, It's not "find a place for the aging.com" right?
JKing Have a stress free day!
Chris