I have been caring for my mother since my dad passed in 2002. She never drove or worked so I had to resume her care when my dad passed. I moved her to different places independently and for a while she was fine. Fast forward several years I finally moved her to assisted living. She was there for a little over 2 years. That became unaffordable and I had no other choice but to move her in with me. So for the past full 1year this March she has been under my roof. Her health is declining much faster than in the assisted living, her compression fractures in her back cause her constant pain and that is near impossible to control at this point. I have not had a break in the past year at ALL. I am borderline losing everything I worked for. She is selfish and always has been. I have a sister who refuses to help. I am a 44 yo male who has stepped out of a career and workforce just so at the end of the day I can say "I took care of my mother" What am I doing? I can't do this any longer. I can't get home health, I do pay someone to come and help her shower 2x a week. Is it time for a nursing home and to waive the white flag? I feel defeated! Any suggestions would be appreciated. BTW my mom is 77 years old with only mild dementia. Nothing major. Her major health issues are the compression fractures in her spine and atrial fib, which means protime checks about every 2 weeks and that is a fiasco.
"that is near impossible to control at this point"
"I have not had a break in the past year at ALL"
"I am borderline losing everything I worked for"
"I have a sister who refuses to help"
"I stepped out of a career and the workforce"
"I can't do this any longer"
"I feel defeated"
"that is a fiasco"
Wave the white flag. You sound very unhappy and your mom is just going to need more and more care as time goes on. I hope you can make choices that will make you happier in your life. You've done your duty to your mom and should have peace of mind.
I'm aware that I live in an area with outstanding nursing homes so that decision is easier than in some parts of the country. Still, you and your mom are not in a good situation. Look around at the nursing homes available and try to get her situated. Make friends with the staff and let them help you both.
Best to your both,
Carol
Do not hesitate! Do it asap.... before you completely worn out. It's better to be responsible visiting caregiver rather than sick stubborn one who takes all upon himself and kills himself.
Find the facility, move your mom and get some life... you are too young to give up on yourself.
Take time to get the right answers and have plan A and B ready--but really have your mother go to Day Care--remember she doesn't make the decision you do and this is best for both of you. I am sure that she might able to understand that you need some respite or you won't be able to continue to care for her. Remember you are a good son and deserve some time to yourself. Peace!
Medicare will only pay for respite care if your loved one has a life-threatening illness and qualifies for the hospice benefit. Respite means a “rest” and that’s what respite care allows the caregiver to take. Under the Medicare hospice benefit, your loved one can get respite care in a Medicare-approved hospital or skilled nursing facility for up to five days at a time. Medicare will pay 95 percent of the Medicare-approved amount for respite care.
....but this isn't to say that you can't use respite care if you have the funds. Sometimes it is worth it just to get a break. We use a place and pay privately (daily) for it. (She stays overnight, but they also offer adult daycare). I'm trying to keep my mother out of a place full time, but like you, I'm about at the end of my rope. It is wasn't for the respite time, I would be out of my mind. Good Luck!!!
Find day care for your mom. Take her, or arrange for transportation. Do not ask her "do you want to go to daycare?" Say, Hey mom, I've arranged for you to go to daycare tomorrow". Don't argue. You are driving the boat.
2. Make yourself a short list of tasks A. Find a NH for mom B. Put together a resume for yourself. C Tour NHs and research how to get her qualified for Medicaid assistance. D. Post back to your FRIENDS at agingcare.com who think that you are the AWESOME-est son ever in the whole wide world. Hugs! Barbara in Brooklyn
Time to stop allowing Mom to run the show.
Your partner has rights too.
You quit your job to care for Mom.
Is your partner still working and paying all the bills.
You can't discipline your mother and tell her to stop feeding the dog. Remove the dog Put it in another room or outside. Somewhere that you can't hear it yapping to get back at the food
There are several ways to get her out of the house for good.
The first that comes to mind is trickery. Yes I know it is not fair BUT she is not playing fair either and dementia changes the rules. It becomes survival. O.ffer her something she can't refuse, like going out for ice cream. On the way home make a side trip to the ER and leave her there. Tell them her behaviour has become so unmanageable and she is now violent that you are afraid to have her in the house. Show them the bruises and tell them your partner will no longer tolerate her abuse verbal and physical of you both so you are ready to sign her over to the state. She is also abusing your pet dog. Don't expect this to be easy you are going to be bullied not to do this but stand firm they can not put her out on the street. If she has no funds she has to have a qualifying hospital stay usually five days before she can go to a NH under Medicare/Medicaid. however if she is occupying an acute hospital bed they will find a way to get her out, just make sure you don't weaken.
If she is clearly ill, high temp etc just call the ambulance and when the hospital calls you to come and get her refuse for all the above reasons. You will still get the same pressure but have the option of putting down the phone.
This is a holiday week end and hospitals are usually short staffed so they try and get as many people dischareged as possible and there will be no scheduled sugeries today so there should be plenty of empty beds so today might be the best day to do it. i won't tell you to pull up your big boy pants only you can make these kinds of decisions b ut many others have goen before you and can sympathize.Good Luck. Let us know how you get on. The experiece of others really help those who face this in the future.