For the last two Sundays I took her with me to church, and she behaved like a two year old before we left (mostly regarding what she was going to wear) but when we got there I doubt most of my church friends even noticed she had any kind of a problem! She was suddenly able to "put on" what I call the "bed and breakfast owner" personality and was all smiles, friendly, and talking with my church friends. Then, almost the minute we got home, the provocatively hostile behavior started all over again, with her acting like nothing could keep her from arguing about SOMETHING, no matter what! No matter what I said, she was able to turn it into an unending argument. It almost seemed like she knew she could drive ME crazy, but I saw that she also knew darn well when to "behave". Is that common? It makes it seem like they're more aware of what's really going on than you might think, and that a lot of their behavior may be more deliberate than simply a manifestation of the disease.
HANG ON TO THOSE RARE, CLEAR MOMENTS. Remember she is your mom and she does not want to have this disease any more than you want her to. When she seems lucid, live in that moment with her.
In the end, she died in her sleep at home. The stress and pain were gone from her face and she was the beautiful young mom I knew as a child.
Hang on to the good moments.
I think it is true that they have not progressed far enough into the illness and when they do they will not be able to keep up the charade any longer. If a doctor would stay in the room with you for more than 5 minutes they would realize there is a problem when they begin repeating themselves.
I do have to say this behavior does present a problem where my sister is concerned because she believes Mom has more control over her actions than she actually does. Mom is sick but my sister believes she is putting on and she will cause arguments to start because of her beliefs. I try to tell her that Mom really cannot help it, she is sick, but my sister isn't buying it.
I have been accused of "bullying" "controlling" and having " power plays" with Mom.To them she seems absolutley fine. On a clearer than normal day I discussed it with her and she even admitted to doing it. When I asked her why she "let's it all hang out" with me.....she said....."Because I trust you." That warmed my heart and made it all worth it.
Thanks!
In the age of smart-phones and other digital gadgets, it wouldn't be too hard to catch the nasty behavior on video if you need to demonstrate it to someone.
But in terms of your own relationship, what's the point? Is she going to change? The important thing is to protect your own wellbeing. The trick is to just let her be as she is, deception and all. And avoid being sucked into her phony dramas. If everything you say is twisted and turned against you, stop talking. It isn't easy, but you can detach in such a way that you are at peace with it.
Remember the "law of attraction" that causes us to become what we think about. That chilling prospect is what motivates me to focus away from The Momster. Blessings to us all as we experience these opportunities for growth.
Would "guiding" him more have helped? Probably not, because he wants to be in control, yet so much has been out of his control for so long. Sometimes I remind him that he can do things. Now Dad, I know you can . . . brush your teeth, put on your shirt, get out of your chair, etc. . .. Do dementia patients/elderly follow directions from caregivers who are not their children? It would seem so or they could never care for several patients at a time!
Hang in there and remind yourself that the behavior is not "against" you. I must do that 25 times per day because I tend to personalize my Dad's reactions. Daily I ask for strength and wisdom and patience. Daily I get frustrated and feel bad. Daily I breathe deeply and tell myself that I am giving my father a home, which he much prefers over a nursing home. Some times I sigh and let myself acknowledge my limitations and that dementia is an awful thing. Several times each week, I ask what it is I am to learn from this situation. And sometimes, together, we even have a laugh over something.
When she is out in public, she is so animated, we make a day of it, until its dinnertime and bed.
Sun downing (at this moment) consists of putting her watch and her medic-alert necklace to bed (in a small trinket jewelry box and lid). She then reads a German movie-star magazine, not sure if she is really reading, but looks like she is.
Oh by the way her OCD of her glasses and purse was alleviate by buying a see-thru plastic traveling make-up bag and putting her glasses and inhaler in there, it stopped the opening and closing of her purse every two seconds and she can leave the house without the OCD happening when she leaves....
She is particularly vitriolic to me and recently she pulled something really heinous (not worth repeating all of it here) and my husband decided her viciousness had to be addressed rather than ignored, which is how we and most of my family has always dealt with her. He called my father, knowing if anyone could possibly get her to contain her behavior he is the only one (and he has little luck either). A few hours later she called for my husband and turned on the whiniest, tiniest, little old lady voice you have ever heard. If you didn't know what she was capable of, you could fall for it. She whined his name and the told him she wanted to 'apologize....BUT YOU DON'T KNOW WHAT A TERRIBLE DAUGHTER SHE IS!' (about me referencing her apology and 'why'). There was no real apology; she likes my husband and he has held his tongue for the 11 years he has known her so I really think she believes she had him fooled. She was CAUGHT and that was what she regretted! Her mean and vindictive behavior has lasted all of my 58 years. I see no change other than she is meaner! My dad believes in marriage for life and he has had to convince himself she is something other than she is or he would have had to get out! And the rest of my siblings just say 'well, that's just the way she is'. OK, she is older now (78), she has lived a lifetime of getting no exercise and not taking care of herself so she has some aches and pains that are worse as a result of those things. Yet she can throw a party for 50 people very adeptly. I 'got out' when I was young and have not lived nearby, as most of the rest of my family does to her, so when I have been around her I am shell shocked.
My husband had to tell them to 'lose our number'. Years ago in counseling I was told "you seem to let your dad off the hook and blame everything on your mother. Your dad is up to his eyeballs in this as well" (and he told me I had to be able to admit to myself that my mother just isn't able to love me. Period).
I think a lot of us want to see our parents in the positive light. I get it. I do too. But really it is what it is and evil and or manipulation can come in any package and at any age.
I also wonder if it is like tics. My daughter has tics. Right now she has the very trying tic of spitting. Before she had a tic where she would hit her knees. Anyway-when she is at school she can somehow control them--it is almost a subconscious control---but when she comes home the tics come put full force. This is common with tics and Tourette's. It is not really like she can control them because if she could she would stop at home but her brain sorta has more control in a more stricter environment. I wonder if it is a little like that with AD? Just a thought.
I would try to think of your Mom's show timing like my daughter's tics and not hold it against her. Just think of it like she has more subconscious control in a more restricted environment--just so you don't get upset with her or hurt by her actions. Just my thoughts. Good luck!!!