I need some advice. My mother is 87 years old...has some dementia at times...has had quad-drouple bypass....stents...and a pace maker. Up until Feb 20th...she could do everything for herself...eat anything she wanted....didn't have any problems at all. (She lives with me). My sister exposed her to the flu...two days later I had to put her in the hospital....this was Feb 20th. While in the hospital...she developed C Diff. She has been on antibiotics since...couldn't get over it until this last week. During this time...she lost her appetite...nothing tasted good to her anymore. She has lost about 15 to 20 lbs in the past 2 1/2 months. She can't walk or even stand up any more...she is so weak. If she eats 2 spoons of food a day the last couple of weeks...that's a lot. She is literally starving to death. I feel if I can get some nutrition into her...she will overcome this. I've tried ensure...boost...she won't drink them. I have made arrangements to have a peg tube inserted this coming Monday. Am I doing the right thing? I feel it is the only chance she has. She says she doesn't want to die....I've begged her to eat and her reply is that she is eating...but she's not. Has anyone else experienced this with their parent?
Finally, if she's reaching a point where her system just isn't processing nutrition, a PEG won't be of use. You can pump Jevity or TwoCal into her stomach all you want, but if her system won't use it, it just goes back up into her throat and will aspirate her. That's my mother's status now, so I can tell you that a PEG doesn't necessarily feed you when you can't eat by mouth.
I'm not saying any of these things to scare you, just to make you realize that a PEG isn't the answer to everything. I know you're just thinking you don't want your mother to die, but I recommend that you do some research and make sure it's what is best for her.
1. She WANTS to live. 2. She has the potential for some quality of life.
My poor little mom also got into trouble after a procedure at the hospital last week. The staff was going to insert a tube but she went downhill. My mom did not want to live anyway (blind, going deaf, terrible arthritis, she could not even sit up anymore and could just barely hold a cup to her mouth). Mom had nearly zero quality of life. Finally, her symptoms suggested her organs were shutting down.
To me, if you mom wants to still go for it and there is some hope, I would do the same and put in the tube. Best of luck, V55
I want to explain about my sister....some responces seemed to think that I'm blaming her for my Mom getting sick....I'm not. First of all...there are three sisters involved....the one I spoke about is the youngest...ten years younger then me (I am the oldest)....and she has always been my Mom's favorite....and believe me...this has never been a problem for me. When my Mom's last husband died (she has out lived 4 husbands!!!)...she sold her home and went to live with that sister....who was then her POA and Healthcare Surrogate....and my sister spent all her money. After the money was gone....she had no use for my Mom. One morning...3 years ago...she came to me crying about how badly she was being treated...I took her into my home. Prior to this...I hadn't seen or spoken to my Mom for 6 years....because my sister would not allow my Mom to....she controls everyone's life around her. My Mom changed her POA...etc to my name. I never put any restrictions on who my mom could see or talk to...everyone was welcome at my home. It took 1 1/2 years before that sister came to see her....my other sisters were there all the time....Mom even spent nights at their homes. For Mom's birthday this year...in January....I gave her a big surprise party....the "controling" sister wasn't talking to one of my other sisters at that time....and said she would walk out of the party if that sister came...so my other sister stayed away because she knew how upset my Mom would be if her favorite daughter left. First time I had to 911 my Mom....I called all my sisters to come to the ER....I didn't know if Mom was going to make it....again my sister would not allow my other sister to come....so again...she stayed away so my mother wouldn't be upset. The last two weeks...twice that she was supposed to come visit my Mom...she didn't show up....my Mom was so upset. The previous two times that she did come...she kept telling my Mom it was time for her to die. She also just recently found out her own sugar level was up...so she takes medication like a million other people do...but she's telling my Mom that she's very sick and may die before her....and if she does...she'll wait in heaven for her to get there. I had to give my Mom medicine for anxiety after she left because she was so upset. I had had enough...and told her to stay away. All of a sudden...she makes up with my other sister....and convinces both of them not to visit my Mom unless I allow her too (this was the day before Mother's Day)....so none of my sisters showed up for Mother's Day. I feel I have enough stress dealing with what I'm going through with my Mom...I don't need anymore....so right now...I don't want any of them in my home. Somehow my sister found out that my Mom was in the hospital Monday night....I was at the nurse's station...walked back into my Mom's room....and she was on the phone....my sister had called her...telling her I wouldn't allow her to visit her anymore. She doesn't care about how much she upsets my Mom....telling her this after she just went through two procedures. I hung up the phone...she kept calling back...this was 10:00 pm. My Mom told the nurse her kids were aggravating her...so I unplugged the phone.
I had asked her and my other sisters for some financial help with my Mom when she got sick...none of them would give me a penny. I told them that she may end up in a nursing home if they didn't help....I couldn't do it all myself...24/7....this one in particular...who had spent all of my Mom's money...said she didn't care if she ended up on the street...she wasn't giving a penny....so I do it all myself. Medicare only pays 80%....I have to pay the rest...Mom doesn't have any insurance...she used to....but I guess the payments weren't made and it got cancelled prior to coming to live with me. I pay for her meds....depends....chucks...everything she needs...she does get SS...but that doesn't cover hardly anything.
Right now....I'm worrying about my Mom....and I think it's better if I keep them away until she recoups....and I don't need the added stress of dealing with them. I may be wrong....but that's what I'm doing.
Again...thanks to all who replied....I will update if there are any changes.
I feel I did everything I possibly could for her...I'm glad I decided to put the peg tube in...because I'll never have to wonder if she would have lived longer if I had or feel guilty thinking she passed be caused I didn't. I know the answer. Thanks to everyone who responded to me...and I hope my story can help someone else.
I personally, and stress, this is my personal view, believe there is little point fighting this.
You have the guilt with whichever decision you make, did I do the right thing. What is the use of her being unhappy, and you watching this with all the pain this brings.
In a just world we would help our parents and understand they had lived a full life to the age your Mum is.
In a childish way, I figure it like this, we have to make way for the next generation, awful as it sounds.
God give you strength in these awful times, and remember Mum as a vibrant young woman rather than what you see now.
See All Answers