My mom has lived in my house for the last 3 years due to her health. She has stage 4 copd, nonalcoholic cirhossis of the liver, osteoporosis, chronic spinal compressions, and is mostly blind due to macular degeneration. Additionally, she has always been a fall risk, but has began falling multiple times a day. With all of that being said, she STILL manages to make it out of her room and outside to smoke multiple times a day. The problem is, she won't go to the bathroom and uses a potty chair that I have to dump each day. She also says she can't make her own food or drink and will yell through the house for either one of my children, my husband, or myself to come get her what she wants. Both the bathroom and the kitchen are the same distance for her as going outside to smoke.
I am starting to get very angry and resentful of my mother because of these things. I need to talk to her about what she's doing, but I'm not sure how to start the conversation. Any ideas, or am I wrong for feeling this way?
Thanks for listening!
Before you have this talk, consider such things as when she wants to smoke she can decide when to do it and can walk slowly. When she needs to use the bathroom she has less control. It might really be harder for her to get to the bathroom on time than to go out for a smoke.
If you work full time, how does she get her noon meal or any daytime snacks? Is there someone there with her all day?
I am in favor of having elders do as much as they reasonably can for themselves ... it is good for us caregivers and it is good for them, too. But figuring out "what they reasonably can" is can be difficult. This woman is a fall risk, and falls multiple times a day. Is it "reasonable" to insist she walk more than she has to? Would it be better to wait on her more, and only have her walk when she is supervised? (A broken bone would be terrible for both of you!)
If you are starting to be resentful and angry, then definitely something has to change. That something might be that mother does more for herself. OR it might be time to consider getting some in-home help. Hire an aide (with Mom's money) to empty the potty and to provide snack and beverages and to walk or exercise with Mom some each day. If she really does need (or benefits from) more waiting on, it does not have to be YOU that does it.
My mother smoked for 78 years. She has no interest in stopping, but most care centers do not permit smoking and in an effort to prepare for that eventuality my sister got her to try e-cigarettes. Hey! They work for her. She is now living in my sister's smoke-free home, without polluting the air, risking fires, or going through withdrawal. I've never smoked so I can't give a personal testimonial, but this sure was a great help for my mother. It is something to consider regarding the fall risk of going out to smoke.
Don't just let the resentment build up. Come up with ways that will improve the situation for both you and for mother.
I am most concerned about her falling. Does she use a cane or a walker? I wondered why she was falling so many times during the day. I realize that poor vision and weakness play a large part. I wonder if there is a way to keep her from falling so much. Perhaps she would do more if she didn't worry about falling.
And by the way, I am working diligently to find ways to improve our situation. Just trying to vent here so I don't take it out on those in my home unnecessarily.
youre welcome..
I am so glad to hear you are getting some in-home help. I hope that works well for you.
I cared for my husband through his entire dementia journey, including, at the end, emptying his commode, cleaning up "accidents," bringing him meals and snacks, helping him bathe, etc. etc. And he ALWAYS said "thank you." Wow! And he always remembered to talk the hospice nurse for her services. No wonder everyone thought he was an excellent patient, in spite of his dementia. Getting a few "pleases" and "thank yous" goes a very long way toward making caregiving bearable. Please discuss this with your mother.
Pain and illness make be crabby. I hope if I ever get to the point where I am "demanding" all the time someone will sit down with me and have a frank talk about it!
Of course this depends on how much brain power or sanity is remaining.