Stresses me to the limits. My mental status stinks, I hate getting up in the mornings I never know what to expect out of my mother, I can asked her "how did you sleep?" she says Oh after 12:00 and trips to the bathroom, well I think I slept maybe an hour." or she wants me to be her age and have the same problems that she has. I just am screaming for some advise, she is demanding, knows it all, and the super guilt master, I love her, but I really don't think I can take much more...oh DRAMA...Queen!..I know this sounds ugly, but it really isn't ment that way.
any advice?
She doesn't talk of me taking her in, but asks me if I think a cousin of mine would "for her check". My cousin is 69 and I am 70 so neither of us feel able.
Mom has asked me if I will take her "when her money runs out". In a few years, I'm thinking, and she will, but I won't. I could not live with her!! She has dementia/ ALZ. Maybe she won't be as insistant then. but I have a husband and I feel I'm giving her all I can. Both physically and financially. There is always a long story behind our long stories, it seems.
I would never have thought I could be strong enough to not take her in.
(she will never forgive me, I'm sure.)
I need to make a note to call her dentist in the A.M. She's had a toothache for a week, but hasn't mentioned it but a couple times so I thought it went away. She has been known to let this type of thing go on for days before getting help. Even before the dementia. It seems like she does it for sympathy.
I SOO appreciate this site.
We've heard all the advice and while it sounds logical it's not so easy for everyone to pull off in the heat of the moment on a daily basis. We have no family or friendly retired neighbors nearby to sit with her and can only afford someone two hours a week to shower her. That's when we clean her room. Our one luxury is not having to shower her. Leaving town together or evenings out are not in the cards. Like someone else said you still have to come back to it and that's all you can think about while you're out. That and what the change in routine will do to her. A lot of others are in the same boat with us.
Yes we are in charge but it's easier said than done to take her barbs and negative attitude all day and deal with it in a positive way. She refuses to listen to us and whatever happens we get blamed for. She told my husband she was not here to do what he says. She only moves a few steps with a walker every day but we have to direct her every movement or she'd be on the floor every time. She hates the directions but if we don't she asks why we didn't! Her answer to everything is "just wait till you get to be 96 years old". That's infuriating because neither of us will get to be 96 because of what we are dealing with now, nor do we want to.
There is nothing medically wrong with her. The only problem she has is that she's 96 and tired and has aches and pains. My husband and I both have multiple medical issues. None of that matters to her though. She tells us we don't give her enough sympathy and that her life is miserable and she wants to die blah blah blah. She could care less what we've given up to bring her here and care for her in our home. When she gets mad she just tells us to put her somewhere else. What do you say to that? She can't stand being in those places either. I usually just call her bluff and say ok as soon as we can arrange it and she stops talking about it.
There's no winning with her. No matter what you do there is a negative outcome. It's hard to do so much for someone when they are so unappreciative and mean in return. I know why she is that way but it still doesn't make it easy to live with day in and day out. I think if we all had a light at the end of the tunnel it would be easier to deal with this stuff. She could easily outlive us.
I also can't compare this to caring for my children because they were growing up and improving. It was a positive thing and my kids were and are grateful and appreciative of the things we do for them. Caring for my mother in law is the polar opposite. She gets worse and less able no matter what we do while we get blamed for it and no appreciation for the effort. I also want to mention that in my opinion changing your baby's diaper is nothing like changing the diaper of your 96 year old mother in law who is not incontinent but just finds it easier not to have to use the commode. If she were truly unable to do the things she won't do I'd have a little more sympathy. She just wakes up every day blaming us for her still being here and miserable.
If I were to give one bit of advice it would be to learn how to take short meditation breaks during the day to center yourself. I have a mindfulness app on my phone that tells me to stop and take deep breaths. I can't say it helps all the time but it can calm you down enough to deal with whatever is coming at you in that moment. Whenever you have to deal with them first take three deep breaths. I also find that the less I talk to her the better off we are. Unfortunately my husband hasn't mastered that skill yet. Sigh..... I'll stop whining now :-)
I got to the point where I couldn't listen to it anymore. She won't stop complaining & I realized that I'm not going to change her----but I could change my reactions to it. Essentially, I ignore her. Nothing makes her happy, she's always in pain, she can't do the things she used to do, blah blah blah. She has ALWAYS been a negative Nelly, anyway. Her whole life, she was never positive or "up". She always saw the negative & bad in any situation, and if things were going well she came up with "well, what if" things to bring it all down.
As I got older, I vowed to NEVER BE LIKE THAT. There is truth in the saying "misery loves company". Whenever she talks to someone & they start telling her about their woes, she cuts them off & says "Well, what about me? I have this and that, my pain is so much worse than yours, my life is so much worse than yours, etc. etc. etc." Everything she has gone through is SO MUCH WORSE than anyone else. All she talks about is how one friend was in the hospital & somebody else died & another friend is in so much pain, etc. Nothing positive. Nothing.
I kind of just listen & walk away---no response, no acknowledgment. I can't deal with it.
Let them (like you could really stop them. LOL) Just don't provide an audience.
Walk out of the room/house when they start. Just like a toddler - not much fun to whine, etc. when there is no audience.
OK to be sympathetic. Sorry you don't feel good . Then find something you need to do "right now"
I think it's mainly to get attention. You deserve a life, too. Just the fact that you are caring for them is more than most people are willing to do.
For your mother, emotional support is essential beyond her interactions with you. Being her age and in this situation is not what either you or she dreamed life would be like. Regardless, she needs to be able to interact with her peers just like you need to do. They will be understanding, supportive and could provide ways to help her cope. Does she have any interests or hobbies that could be reintroduced? Again, those that help us to interact with others are essential to overall mental health.
Some services will come to your home to provide support if she is immobilized. Perhaps the office on the aging or your doctor can assist in finding the right resources for you.
It gives us both a break and puts things in perspective a bit.
Your freedom from stress is under your own control and can be achieved by letting it be okay with you that she does or says whatever she does. And certainly, don't ask questions you know will provoke complaints. In fact, avoid any unnecessary talking.
Currently, you're giving all the power to her. Who's in charge here? With compassion toward your mother, let it be you who decides how you experience life. Take your mind off her and focus on something positive. You can do it.
Blessings for a peaceful outcome for all concerned.
With regard to the negativity... we are constantly told to try to "redirect" with that (and with repetitive looping). But despite knowing that is supposed to be my tactic, I was never good at it and tended to just let it all eat away at me. Until I started noticing that my mom was actually quite masterful with that very thing herself. My frustration at HER "redirecting" every time she doesn't want to discuss or do something important is what finally made the light come on for me. Watching it in action taught me to start doing it as well when I have listened to all the whining and complaining I can sympathize with, or have had enough of my buttons being pushed, or need to break the looping.
Hang in there, chickengranny! Don't forget to breathe...
Whatever you can do take her places (even in a wheelchair), meet any remaining friends or family gatherings will improve her feelings. I tried to keep my father on a routine and if I took him to the Home Depot (in a wheelchair) he would enjoy the rest of that day. Having been a construction worker, he loved to look at construction materials. He would examine new faucets, start planning to have one of our faucets replaced. He spoke to the plumbing sales man. He would tell me the good and bad parts of the faucet--his mind was going and he was back in worker mode and happy about it. He loved to read, so I would take him to Barnes and Noble or our library and he would check out the new biographies, non fiction titles on the Great Depression or WWII. I used to call it giving my dad "an airing", he was more content and upbeat after one of these trips. It reminded him (and me) we were not that isolated and we each had a life.
I know how difficult it is to pull these trips off. But family will never visit enough a homebound elder like my dad. They mean well but sitting with an elder will never be as stimulating to them as sitting on a bleacher watching their child, grandchild at a basketball or soccer game. They love to marvel at their so called accomplishments. But they miss the real joy of talking to an elder who is running the last laps of their game of life. They overspend time with their young people who will likely be around the next 60 years or so, while they neglect the elder who is living on borrowed time and will not be here much longer.
Good luck, this is a difficult time to be a caregiver, with every dad showing the joys of the Christmas season. The caregiver continues to have lots of work to do and limited time to rest ( trouble even getting time to Christmas shop), having to plan how to get free to go to church. Believe me I know the drill.
My father was always demanding that I get the Christmas tree up and decorated. He loved having the tree lit. I had him at the kitchen table stirring Christmas cookie dough. He tried to help and it helped his mood. Of course he ate lots of cookies with this tea.
Good luck.
Very often she'll tell me that I don't understand how she hurts. She wishes I could be old so I would understand. I tell her that I'll be there soon enough, God willing.
I do feel sympathy and empathy with my mother. The trouble is that she feels so sorry for herself that it totally overrides anything I feel. It is a harsh statement, I know, but it is true. Some elders take their age as part of life. They still enjoy their kids, grandkids, and friends. Other elders take age as something that should not have happened to them. I understand it, because getting old is no fun at all. Even when we understand, it isn't easy, because an elder who feels sorry for themselves wants to make sure someone else knows how bad it is. It can be bad being pulled into a pool of misery. We'll have our own pool, thank you, when we get older.
Really, I think much of the complaining is just communicating and is not really meant negatively. If one's whole day is spent dealing with pains and bathroom issues and a brain not working well anymore, it limits the experience to these things. It is hard to come up with something positive to say about how many times one wets one's pants. In my mother's case it helps to take her somewhere to be around people. She is very reluctant to go, and it is a bit of a pain, but she always feels better after it. Then she can say bad things about them, instead of herself or me.