She has a bed sore, that was getting better, but now is getting worse. I have taken a course (Home Healthcare Aide) and believe that I can care for her now along with hospice but now the owner of assisted living said "NO". I have POA for mom and cannot continue paying for her to stay there for too much longer, and it was suggested that I want all her money and it would be elder abuse to send her home. I have made here house safe, and would like her to come home. I was totally misled by the Hospice person that I signed the papers with, because she said it would be no problem. Mom is not happy where she is at, not to mention the barking dogs, doesn't like the food, she tried to get out of bed so they put bed rails on, gets UTI often. Hospice does not communicate with me at all, which I thought it was for family too. Is there a way to switch hospice companies?
When I was looking for a Palliative Care company, I found that many of them also offer hospice service, so the company is already in a position to be the provider of choice if/when the patient needs hospice level care. Tiered service is probably a good idea, not only for client retention but for continuity of care. So I expanded my concept from just PC to include hospice care, if needed eventually.
As I've found with many private duty companies, some of these PC/hospice providers advise a potential client what THEY do, but do not necessarily focus on what the client or the family needs. I eliminated 2 well known PC/hospice providers very quickly when this attitude surfaced.
I've also raised this issue with doctors, and found a PC company I liked; it was the same one a doctor had used for care of his mother, although she was hospice ready at the time he hired this company.
Make your checklist and start calling other hospice companies. (If you're in Michigan, I can PM you with names of two companies to avoid.)
Hospice can go anywhere. If you're not satisfied with one, check out others.
I'm a hospice nurse and I have gone to nursing homes, memory care facilities and private homes. My hospice will provide "crisis care" if the patient is in distress- whether severe pain, intractable nausea or vomiting or respiratory distress or if the family members (c/g's) are at their wits end. We can do 8 hour shifts for 2-3 days or until the "crisis" has passed.
Other than that, they will come out as was explained above.
If you choose to bring your mom home, you have a huge job in front of you. You WILL need help every day for at least a few hours or you will burn out quickly. It's very difficult turning a bedridden person (without assistance) to sufficiently clean a soiled diaper or do bedsore care.
I admire your intentions and I understand your feelings of guilt (that it's her house and you live there). I suggest you apply for Medicaid for her and find a good nursing home where she can get the care she needs.
I brought my mom home. It was overwhelming. After 3 months we had to place her in another memory care facility.
I suggest you stay with her in the facility for an entire shift. Do all her care for the whole 8 hours, then figure another 16 hours of the same work. That will be your life. My messed up back and arthritis in my neck are from 39 years of just this type of care.
I hope you find a good solution to your situation.
I am curious why Hospice would remove your Mom from her home and place her into Assisted Living? Hospice can help people no matter where they live. As for Mom's health improving, there are cases where one no longer needs Hospice as they are doing so much better.
Please note that Hospice is not around the clock caregiving. You may get a half hour a day with a nurse stopping by to check vitals and to give meds.... and Aide to give Mom a bed bath.... a volunteer to chat with Mom or read her a book [no hands-on care].
As for communications, Hospice is available 24 hours a day if you have any questions.
Bed rails? Really? Most States have outlawed the use of bed rails as they were deemed to dangerous. Nursing Homes know how to keep a patient in bed most of the time. My late Mom was a climber, so they had to lower her bed, put fall mats around the bed, and try to tuck her in using pillows which would make it more difficult to climb out of bed.