I am the unpaid caregiver and Financial and Medical POA for my mother. I have cared for her for 8 years with zero pay. By the time each year rolls around and summer is here I am nuts and need an extended break which comes in the form of a two week vacation.
This year Mom's condition has been worse and I have been stretched to my limit and beyond. I have become ill and I am having horrendous panic and anxiety attacks that I cannot control. I see a therapist once a week and I have xanax to take but I wish I could figure out how to STOP THEM FOR GOOD!
I have become afraid to be at home with Mom. It is taking care of her that has caused me to go nuts each year and her worsening condition and medication not working has led to my panic and anxiety.
I begged my older sister to stay home today from work and not leave me alone with Mom. She went to work but called my younger sister and had her stay home from work (she has a house payment and 2 kids to take care of alone) so she could go to work at a job that she knows is over in about 2 months.
She gave me the name of a man who has an in home care agency, so I called him and he was here tonight going over everything with us. For 5 hours a day, five days a week the cost is $1,800 a month which is caring for mom and cleaning the house.
So both siblings and i had a talk and ran the figures. Older sister wants to know WHO IS PAYING FOR THIS? I said, "It is coming out of Mom's money." She throws a fit and is yelling "OH NO ITS NOT!" She goes on to state that the "problem is mine" I cannot deal with our mother's condition, therefore "I need to go see a psychiatrist and have him medicate me so I can deal with her worsening dementia and the outbursts and yelling!" AND I SHOULD BE THE ONE PAYING FOR THE IN HOME CARE, NOT MOM!!!! SHE DOES NOT REMEMBER THAT SHE OWES THE HOUSEHOLD ACCOUNT $7,200 FOR 2 YEARS OF PAYMENTS SHE NEVER MADE, SO MOM AND I HAD TO PICK THEM UP!
IN OTHER WORDS, YOU ARE USING OUR INHERITANCE AND I DON'T LIKE IT!
She gave me ONE MONTH to get over my panic and anxiety, one month that is it!!! And every single day that the caregiver is here, I am to be out of the house doing "whatever it takes to get over the panic and anxiety! My complaint had been that I was locked inside this house all week with Mom and could never get out and it has literally driven me to panic and anxiety. See she works part time and gets off work at 2:30 but stayed gone until 5-6 or 7 pm so she did not have to be here to help or deal with the mom and the situation. I have been FREE in home care for my mother for 8 years and she has been no help until the past couple of weeks. After tonight it will probably go back to no help!
SO SAID SISTER, HAS ACCUSED ME OF SQUANDERING MOM'S MONEY, BY HIRING IN HOME CARE SO I CAN TRY TO GET MYSELF BETTER. SHE STATES THE PROBLEM IS MINE AND I SHOULD PAY FOR IT, THERE WOULD BE NO NEED FOR IT AT ALL IF OUR MOTHER DID NOT HAVE DEMENTIA AND REQUIRE SOMEONE TO CARE FOR HER, SO MOM SHOULD PAY FOR HER OWN IN HOME CARE.
NOW SHE SAYS SHE IS GETTING HER OWN ATTORNEY AND FIGHTING ME ON THIS BECAUSE I AM WASTING MOMS MONEY. I TOLD HER IT IS MOM'S MONEY, MEANT FOR HER CARE, AND THAT IS WHAT I WAS DOING. IF SHE DOESN'T LIKE IT, SHE CAN QUIT HER JOB AND STAY HOME AND CARE FOR MOM OR HIRE SOMEONE ELSE TO CARE FOR MOM....OH NO, SHE WANTS MY FREE LABOR!!!!
Am I right or wrong, can and should Mom's money be spent to get her in home care that I am not currently able to give due to my panic and anxiety attacks???
With panic attacks, perhaps you are not in a position to enter into debate or conflict with your sister. She should know that
1. You are right legally and morally to spend the money on mothers care. Her opinion otherwise is wrong and irrelevant
2. If you are forced to defend the position legally you will rightfully hire a lawyer with mother's funds, as you are defending her money and will countersue sister for recovery.
3 Additionally, since you have to go down the route of lawyers and court fees you willl be suing for the recovery of the money she borrowed from the estate,.
Perhaps younger sister can take on dealing with older sister and isolate you a bit.
Do keep your records. If that is too stressful you may get help for that as well.
As POA you can and will hire help for Mom. Your sister can hire an Attorney all she wants but you are acting legally and responsibly...
Take care of yourself..
If your sister says she is going to a lawyer, tell her to go ahead. What would her complaint be? that you want to spend your mother's money for her care? I doubt that an honest lawyer would touch the case.
I have a feeling Sister has just gotten used to having free labor and sees no reason for it to end. I hope that she rethinks what she says and realizes how silly and mean she sounded. Sometimes people say things in the heat of the moment, then think better about it later. I hope that happens to keep the family conflict down.
Your mom's money is to be used for her care. As the POA you and you alone can make this decision. If your sister doesn't like it then she can give up her life to care for your mom. My rule is if you don't help you don't get a say.
And I agree with you. You'd be spending your sister's inheritance and that's what she has a problem with. It's very obvious.
PLEASE ADVISE your sister there is no inheritance until your Mother dies. This is Mom's money to be used for her welfare. It is not to be sitting in some bank while you are suffering and Mom is not getting the care she deserves.
It might be wise to contact Mom's doc and ask for the name of a mediator. You and your sisters need to sit down with someone who can keep the meeting on track. The big picture is that the meeting is not about anyone but MOM! Mom's health, her wellbeing, future needs for care and whatever happiness you all can give her now.
Your first responsibility is to take care of your health. Get out now, get to the doctor, let the sisters deal with Mom. If you see they aren't doing basic care, then call Social Services. Get someone involved that they will listen to!
Not sure how you got appointed in in the game of "give up your life and take care of Mom" but there are no winners at the end of this game. Mom can be cared for without putting your own family, physical and mental health and happiness at risk. God bless and good luck!
Rather than a in-home caregiver, it really sounds like it might be time to look at placing mother in a care center -- probably either memory care or nursing home. It is a lot of work to locate a good fit and to arrange admission and work out how it will be paid for and probably apply for Medicaid. I hate to suggest that you take on this additional work right now, but in the long run it may be best.
Ignore your selfish sister's bullying. You have POA because your mother trusted you to act in her best interests. It is not your job to protect some hypothetical future inheritance.
Are you open to considering placement for Mom?
I posted a question to attorneys on Avvo asking them about this situation and they have all come back with basically the same answer, just with a few twists. They state my sister really has no leg to stand on, one attorney stated "I hate to tell your sister this but she has no inheritance, not until your mother passes away is there any inheritance. Another attorney said that as POA I have a fiduciary responsibility to my mother and I would have been in breach of my contract if I DID NOT HIRE IN HOME HELP WHILE I AM TRYING TO RECOVER. I thought I was doing the right thing but when my older sister kept throwing all this crap at me I decided I had better check to make sure.
We have an upcoming doctor appointment with a Geriatric Psychiatrist who is supposed to be very well known in his field. I was happy to get it, thinking we could get better medication to cover Mom all day long without the ups and downs, combative behavior, verbal abuse and outright anger along with OCD behaviors that cause havoc and me mental anguish each day. Now older sister is saying "you only want medication that will dope Mom up more!" I told her that I needed medication that would quiet her down and keep some of this under control if I am going to continue to care for her, now because she is ticked off at me, she plans on opposing me in front of the new doctor....I see it coming! She is wicked and a b--ch to say the least and she will use my mom to try and get to me, not caring what it does to Mom.
Today Mom tried to express to me that she did not know what was going on anymore, that she just could not get her mind to work right and she did not know why, she was crying. I was hugging her and told her it was alright, I understood and I was here for her. She went on to ask where her momma, sister and brother were. I looked at her and did not know what to say, but i told her they were gone, she looked shocked and said "dead?" I said, "yes" and she broke down sobbing. She lost her father when she was 12. I just kept saying, I am sorry Mom I am sorry! Then she tells me that she thought her Mom was just in the bathroom with her and I had to tell her it was me. Later when she asked where her sister was, I thought okay don't say "gone," so I told her that I did not know where she was right now, but I was sure she would be back....she looked at me and said, "Is she dead?" I had to say "Yes Mom she is."
Today was the worst day I have ever had with her due to these questions and her heart breaking all over again, only now it is like a child, because she is remembering her momma, sister and brother.....not my Dad, so she is in her childhood. This is something brand new and very poignant to her and was breaking my heart for her.
Someone asked how I got roped into giving up my life to care for Mom....I became ill in 1997 with a divorce, seizures and panic and anxiety. My parents moved my daughter and I from my house into theirs to care for us until I got better. I was placed on disability due to the severe panic and anxiety and seizures. A couple years later my aunt became ill and needed care so I was there until her death, then my father became ill and I was there until his death, then my brother in law was ill and I watched him during the day until his death, now I take care of Mom but she is the first with dementia which makes it so much harder. So I have been with Mom caring for her for 8 years, but I have been taking care of everyone else for 17 years. Because I was on disability and at home everyone just thought, "let her do it!" I did not come to this willingly although it was not until Monday night that I told my older sister, that she could quit her job to stay home and care for Mom and the pay by the way, is ZERO!! When she blew up at me that she was not about to do that, I said fine, I will just leave and you two (both sisters) can hire someone to come in and do my job!
I have to say that even though my older sister is a wicked b--ch, I have NEVER SEEN SOMEONE WILL SO MUCH GALL IN MY LIFE TO BASICALLY SIT THERE AND TELL ME THAT BY GOD I WAS GOING TO KEEP DOING THE JOB AND THEY WERE NOT GOING TO ALLOW ME TO SPEND MOMS MONEY FOR CARE BECAUSE SHE NEEDED THAT MONEY WHEN MOM DIES. I SO WISH I HAD THAT CONVERSATION RECORDED BECAUSE IT WAS SO UNBELIEVABLE, EVEN FOR HER!!! AND TO TELL ME TO GET TO A PSYCHIATRIST AND GET MYSELF MEDICATED SO I COULD CONTINUE TO CARE FOR MOM???? REALLY??? WHY THE H**L DON'T YOU???
I wanted to put Mom into a Memory Care Facility because I could no longer handle her and it was making me sick. Both sisters said, "No Mom is not bad enough to go into a Memory Care Facility/Nursing Home, but then neither one of them take care of her every day like I do.
For what I do and what they do, I should walk out of here with EVERYTHING, but no that will never happen, I will walk out sick and changed forever. They keep their jobs and make money daily while I make nothing other than ulcers...where is any of this fair? I guess I need to wake up and realize life isn't fair.
Oh yes the conversation was topped off with said sister telling me that I was jealous of HER! That statement could NOT BE FURTHER FROM TRUTH! Lets see she owes over $100,000 in student loans that began at $20,000, she makes as much as a high school girl would with no experience, her husband divorced her, and her kids have disowned her, she is miserable and likes to make everyone else miserable as well, no one in the family wants to have anything to do with her after Mom dies.....No I do not think this is a person I am jealous of AT ALL!!! She is delusional!!!
Siblings try to make us, the 24/7 caregivers feel guilty for wanting to be paid. And all because of the impact on their inheritance! They want it today and the sooner mom dies the more there will be. And the attorney made an excellent point that the inheritance will only be there if mom receives free care from you. In addition he told you that the money is for your moms care first and it is not likely that there will be anything left.
Did you ask the attorney if you can be paid for caring for your mom? Or are you in one of the states that does not permit this?
At the doctor appointment be determined to keep your COOL! It sounds as if sisters are going as well? Try not to become upset at anything they say. Make sure that appointment stays on topic of your mom's care, not the family dysfunction. You should also be able to receive some sort of a recommendation from the doctor about the respite that YOU will need in order for you to be a better caregiver for your mom if you want to continue doing so.
But you should definitely check into getting paid in spite of being POA. It may be possible to have a professional Geriatric Care Manager do an in home assessment of your mom, make recommendations for her care and your respite time, and recommendation of pay for YOU.
Now make plans to get out of there for awhile, enjoy yourself and get to feeling better. I know I would like a month to just sit in a comfortable, well equipped cave with a hot shower, food to eat, in the middle of nowhere and just left alone! Once there, I know I would enjoy every minute with a book, tv, internet, music, just myself. The best thing, no sisters bulls**t! They can just go away, would never miss them!
I think you have two sisters as well, correct? Maybe everyone should make sure they do not have three girls into a family! Now I will hope I can get some sleep, it is almost 3 am here and I am sure you can identify with the lost sleep I suffer each night because of the stress of not just the caregiving, but the additional, unnecessary stress caused by sisters selfishness and complete lack of integrity or compassion. Hoping to get some sleep now, you do the same.
my mom has the same continuing questions about her parents.I tell her they as passed, mom gets upset, sometimes quite emotional. The few times I have told her they are out with friends or we'll call them tomorrow, she also says to me "oh, are they still alive?". To which like stressed said at that point you just have to say no, and provide the comfort with hugs that they need. My mo will sometimes start knocking on the sides of her head (not hard) saying "what is wrong with me?" it is such a sad disease to watch get progressively worse.
Now, really good night.
I agree about no longer discussing your mom's situation with your sibling. Since you all are living in the same house (?), I'd lock up or hide All your back-up documents from your siblings. Do you have a loyal friend who is willing to keep Copies of your originals? The more copies you have the better. If you have a scanner, can you scan your documents and email it to your yourself. When you receive these scanned email documents, put it into a file on your email: "Mom Document" This way, if your siblings find your hardcopy, you still have the email scanned documents.
Your sanity is more important than the Wicked Witch of the Witch's -- she's got it made --and though it is hard, placing Mom in Long Term Care is safer for her. 0h, and you can call Adult Protective Services on your sister re her overwhelming interest in money & holding you hostage to care for your Mom. It's been made clear to me by the Police, APS and other experts, my Mom needs placed, and SOON! You are a tough cookie (though you don't think you are). I've been doing this for 2.5 years. I don't know how you have done it for so long!
I think that there needs to be a PTSD type disability available for caregivers if necessary when our jobs are over. I have read so many stories of abuse of caregivers by their sick elders. When the job is done, the relief of the trauma ending is very difficult for so many.
I had asked a question about Mom's house and if the time came when she had to go onto MediCal, would we be able to keep her house when she passes away since I am disabled and have lived her for many years. I understand that can be done. My wicked sister is afraid that this is exactly what will happen only Moms house would be awarded to me solely and she again would again be out of her inheritance.
Can I lose my disability for living in the same house with Mom and caring for her? I believe I have heard many people on this site have to do the same thing, so I was floored!!! My first thought was here is something my sister can use against me, but SHE WANTS ME HERE TAKING CARE OF MOM so she wouldn't try to turn me in unless I walked away and left it on her.....which I would love to do, but she is short tempered.
I have a problem in that I now have no place to go to escape this because it is not going to be pretty.....I need to recuperate and relax and get myself back together. I would check myself into a hospital but I refuse to go into a locked facility. My daughter has about a month until she graduates from college, I am kind of screwed, any suggestions PLEASE!!!! Pray for me PLEASE!!!!! I am frightened out of my wits!!!