She has advanced dementia, with minimal motor function. Do I still administer CPR? If I do and she revives, but then would require extraordinary measures to sustain her life, I'd never forgive myself for not honoring her wishes. She can speak, walk, and grasp simple instructions, but she's definitely slipping. In this situation, does someone simply watch a loved one die? It seems inhumane to me.
If it was me and there was a DNR, I think I would still give CPR a try, and if it doesn't help at least you know you gave it your best shot. Also a lot depends on how long she has been without oxygen. If she is starting to feel cold to the touch, then no CPR. I probably would still call 911 so they can assess the situation.
Have you considered bringing in hospice? They can help you get comfortable with the idea of her passing and give you help in understanding where she is in the process. I brought in hospice for my mom (she didn't have Alzheimers) but was definitely going downhill fast. She died one week after I started with them. They predicted the day she would die and I was able to spend the entire day with her from 10 AM until I found her at 11:35 PM. I had gone out to lie down and when I came back in, she was gone. She had been semi-comatose for several days. I got to talk to her, play music for her, hold her hand, and say what I needed to say in that final day.
I hope you can honor your mom's wishes and be comfortable with the idea that a peaceful passing (without doing CPR or calling 911) is a way to honor your mom and her wishes. Hugs...
It is not inhumane to let someone die naturally. It can be more inhumane to try to keep them alive when they are suffering. It was a thought that I had when I had a rabbit that was suffering greatly. I realized that keeping him alive had become more about me than about him. I hope if I ever get to that point that whoever is in charge will let me cross over to the other side. Death is something that we all have to go through one day.
Symptom Treatment only: For comfort only.
No artificial nutrition
Do Not resuscitate
Do not intubate
It comes down to if they stop breathing or heart is stopped then that's it. I think otherwise, you need to call 911. You should have the DNR ready for emergency personnel.
Better yet is to see if she qualifies for hospice or palliative care services, which usually includes a 24/7 number to call for immediate assistance, as well as prepares the paperwork needed for an expected death in the home.
Probably not!
He was intubated for 4 days; kidneys failing with a coffee colored output; swelling all over; his arms swelled up and turned dark; brown liquid was suctioned out of his lungs. I did not think he would survive (he's 72, has had a hemorrhagic stroke and has vascular dementia). He was in an induced coma and awakened on the 4th day and moved to the "floor".
My husband is in the moderate stage of vascular dementia. After he survived the sepsis and woke up, his memory was much worse and he required assistance with everything...going to the bathroom, eating, bathing, brushing his teeth. I was heartbroken! When we left the hospital, he was still having liver problems and I had to drive home...12 hours (we were on vacation when he got ill and our A/C went out in the pickup and we were in West Texas, so I decided to drive in the night when it was cooler). When we got home, he didn't recognize our home...he was just so confused.
Now, two months later...his liver problems are resolving...some of his medication was causing the problem and the elevated ammonia from the liver issues was causing the confusion. He is almost back to his pre-illness normal and titrated back to the lowest dose of medicine that was causing the liver problem. Next week he will be completely off and I hope he will be back to "his" normal.
As I look back at the sequence of events, I'm glad I did not think to give the emergency personnel his DNR before he was life flighted (he had hypoxic respiratory failure on the flight to the Level I center). He is back to the place where he can feed himself; take his shower; dress himself; go to the bathroom by himself. He is more dependent in some ways, but I don't regret that he survived. He is still able to remember our past and he can engage in conversation again...he may not remember that he just ate lunch; he may not remember where the refrigerator is, or what month it is, but he is still my companion and husband of 42 years and we can still laugh together.
For me, the DNR means that he should not be resuscitated if there is significant brain damage, organ damage, or bodily damage that would leave him unable to enjoy life. For he is now, he is happy with the life he has. When he was still unconscious after I informed them of the DNR, I felt guilty for days. If I were faced with that decision again, I would not give it to them until I was informed that nothing else could be done and he would be in a vegetative state or helpless and dependent on massive amounts of pain medication. So, I guess it boils down to "his" mental consciousness. When he can no longer enjoy life, there will be no need to resuscitate him.
I hope sharing my experience has helped. It is an awesome responsibility and I think it is essential to consult with the doctor that is treating the individual before making the decision to give them the DNR. I would hate to think of the guilt you might feel throughout your life if you take the whole burden on yourself....just my opinion...May God bless you and lead you through this difficult situation.
I agree with the previous comment about contacting Hospice to help you with this journey you are on with your mom. They can provide so much support and guidance for you and also caregiver respite so you can have some time to go do errands or other things while they are at your house taking care of your mom.