She's been in Innovage since 2005. Innovage told us she would probably be able to go to the Loveland Innovage in November when it opens, now they say no. Our zip code is 1/4 mi. south of the zip they are taking. Mom wants to be home ,but still go to Innovage 3 times a week, like shes has done since 2005. We moved in March, since then she has stayed at Crossroads assisted living, & goes to Innvage , 2 days a week, in Northglenn, she asks me every time I see her , when do I get to come home. There is no place around here that I know of that is like Innovage. In our zip code 80504. She now stays in her bed at Crossroads except to eat, go to Innovage & when we pick her up. I"m concerned shes going to slip into depression. I know pace has a place in Boulder opening up in a year. She needs Help now I don't know what else to do. I did write medicare, on their web site, to see if they could do something, no answer yet.
Waiver programs tend to have strict rules for qualification as waiver funding is way more limited than a broader program like medicaids NH coverage.
It's not easy - but so many people never really try to argue for continuity, stability, familiar supports that are working well. I found the work was hard and frustrating and angry making, but worth it, and I was glad that i found people in each program who could see the value in what I was advocating, and who actually spoke for me and my brother. OH - and if you write up a not too long story, with some details of how that Crossroads has helped her, you can share it with her physician - often MDs who know you and your mom, will add their weight to recommendations. Finally, talk to the transportation company leaders - I found those folks were actually interested to help when they saw the value of special attention, and maybe they could find a way to advocate or change a zip code or a pickup plan - that would just add her onto the list with others they pick up - many do transport for specialized treatments - call around, tell people your worry, praise the great people involved so far, and how you and your mom want to keep them, and surely that is cost effective..... I've found that kind of advocacy encouraging, for you are arguing on behalf of something you know that works well, so you can advocate and praise others at the same time! If all fails, find some other medical specialist likely to back you up!! All the best!
My friend Luigi, who is en elder paraplegic, had to get featured in the Newspaper and write his Congressperson so he could stay in a community college day program. Get selective about your political actions and take them. I know how stressful this is and I am praying for your fortitude, discernment and courage.