Mom has been diagnosed with dementia and has been living alone. Doctors and family are concerned about her ability to continue living on her own due to progressive cognitive decline, not paying bills, memory loss, experiencing hallucinations etc.
Mom has been very obstinate about anything wrong with herself, and insists we butt out of her business. Luckily when first noticed changes with her I got a POA and became joint on her bank accounts.
Tried introducing mom to a few Assisted Living facilities, she was assessed as more in need of Memory Care which was outside our budget and mom was adamant not like people in those places. Fast forward we found a board and care home that felt like she would still be able to have a semblance of life she could be comfortable with. Mom has met with caregiver a few times and seemed receptive to moving in. Now we are at moving day (Saturday) and mom says she never agreed to a move, and she’s not going anywhere. I am stressing how to get through this. I do have POA and doctors written assessment she has dementia and is no longer capable of making financial or care decisions on her own. Any suggestions?
It may be too simple, but what about offering to mail them for her? And, um, accidentally forgetting, or their being eaten by a dog, or falling in a puddle...
Or, what about suggesting she check the contents one last time before she sends them, and while she's doing that you subtly extract anything that might cause trouble, like checks or new contact details. If you can "defuse" the letters she can then mail them and be happy and there shouldn't be a problem.
Meanwhile, just agree to take her and then do nothing about it. Delaying tactics might work until you can get those wretched letters out of sight and - with any luck - out of mind.
Does she still like things like word search and magazine puzzles? I'm visualising what sweepstake letters look like, and the sort of crowded puzzle magazines you see on sale, and wondering if you might be able to divert her attention onto something like that.
We moved mom on Saturday, since she had already met caregiver she was told we were taking her to visit and have lunch at caregivers house with a promise a special visitor would be there. Mom readily accepted going. We arrived at the board/care and told her we were going to the store and would be back. We actually had a crew at her apartment getting her packed and ready to move out.
As a family we returned to caregivers home to give mom the news that she was actually moving in today. Mom totally flipped out demanded to go home, she was told that was not a possibility, as 30 day notice had been placed, and apartment was to be vacated at end of month. She turned on me and threatened to sue me, I had no right to be in her business I reminded her I had POA and doctors letter declaring her not able to live on own, and handle financial affairs. She said bull, and doctors were in a conspiracy with me. She then threatened to sue apartment complex for allowing me to end her lease. One of first things I did when took over as caregiver was submit to apartment administration my POA, and doctors diagnosis that mom was no longer able handle financial affairs.
After two hours of her ranting and demanding to leave she consented to staying one night. We are three days in now and surprisingly she is settling in and seems to be adapting to new environment. I haven’t visited for couple of days, but in constant contact with caregiver who says she’s doing well, and connecting with other residents.
This is all good news, but mom contacted me by text tonight requesting I take her to post office so she can mail off her sweepstakes/publisher clearinghouse letters. One is the complications of her disease is a fascination with winning sweepstakes before I took over finances she was spending all her pension on supporting this obsession. Unfortunately some of this mail was in her purse the day we picked her up, now I have quandary how to handle this. I’m afraid she may go into melt down if I don’t let her mail her documents, but I’m trying to end this cycle she’s been in. I’m so open to suggestions how to go forward with handling this issue.
I also want to thank all that took the time to offer advise regarding moving day, the feedback given was very helpful to me and my family.
Another option to consider to help ease the stress for the parent...
Here in Florida, we have some moving companies that actually specialize in moving and transitioning a parent from their home to an assisted living facility. A representative (compassionate for the elderly) will come and visit with the parent and caregiver, measure furniture, help select which pieces would fit best, and even create a blueprint for how it will look and let the parent review and provide feedback. Decisions are made by parent where appropriate, and the caregiver steps in where needed. ... the intent is to give the parent as much say in the process as possible. They then have a vested interest in the move and get more excited about it. On moving day, the move is coordinated such that the selected furniture is staged and setup ahead of time, in a matter of hours. So in my mom’s case, when she walked in to her new room, it already felt like home... her belongings were already unpacked and it was ready to live in.
My mother still had her struggles.... last minute regrets of moving... worries about some things breaking... etc...
And she was not in that facility for long (different set of circumstances)... but as far as transitioning from home to assisted living, moving companies like these can help greatly. Parents will listen to the guidance of a third party (like a company like this) far more than a close relative.
The original one was horrible, but she was a danger to herself and others, so DHS stepped in and I had the legal power to make it happen. After the first 6 weeks, she was ready for a move to the next facility where she was for nearly two years until she was ready to leave that one when they wouldn't take care of safety issues, and I was concerned for her well-being there. The next one was okay for about a year until the A & B occurred. So...been there, done that numerous times. Doesn't make it easier, but things change and it has to happen to assure safety for the person affected and their family/friends/neighbors.
Totally agree— ultimately the right move that works for her is best for all. The challenge is guiding our elderly parents through the process and it is not easy.
Thanks for sharing!
Kudos for having your POA in place...
that’s a huge accomplishment to have in place already.
As a patient, my mother is completely non-compliant... in her words, she can self diagnose just fine since ‘she used to be in the medical field’ (not true) and she knows what’s best for her body. Nonetheless, she wants to see every specialist she can. But when she has needed something, I have to be there. That ‘presence’ comes at a tsunamic emotional and physical cost to a caregiver if left unchecked.
First, I agree with having either a primary care or pharmacist review current meds. I don’t think doctors generally take a concerted look at meds often enough, particularly when specialists intervene by adding/changing meds for specific ailments and not thinking through conflicts. This could have helped with the transition to assisted living.
If your elderly parent is diabetic, I can’t emphasize enough the importance of monitoring sugar levels and regular control of insulin. My mother insisted that she could manage it on her own, and she absolutely could not. But she also refused to let anyone help. This took a long while for me to help her get a handle on, but looking back it’s probably helped the most. She’s now in a nursing home, and she’s lost a lot of extra fluid and weight and at 89 looks better than she has looked and felt in the past 5 years.
Lastly, I want to clarify some of the comments made re: moving day. I don’t think the strategy of ‘stop talking her into it’ is quite the right message.... but I think that I understand the intent. My mom did exactly the same thing prior to moving to assisted living. She didn’t want to go, right on moving day. In response, I was very direct but calm: I reminded her that she picked this location and that she has made the decision, and that we had both gone through a lot of planning for the move. I also reminded her that while her living with me over the years was fine, I couldn’t provide the level of care that she needed anymore. I still got the rebuttals and guilt trips, but I anchored to my logic with her every time I responded. It’s not easy, but it’s necessary. And as I prepare, today, to visit her in the nursing home (rated one of best in state), I just prepare myself for the next rebuttal and guilt trip. Like one respondent said - just know, there is nothing that you will ever do from this point going forward that will ever make them truly happy. This is part of the aging process, and the more we can accept that as caregivers for our parents, the more progress we can provide for all - we help our parents move on, we help ourselves move on, and we have the best chance (not guarantee, but chance) of maintaining that parental bond as best as we humanly can.
None of what I said above is easy. I am living proof, for my caregiving experiences have been life altering in every way. But I am finally at a point where I know how to move forward for myself and live more for me and not just for others.
Best of luck!
There are resources such as a transitional counselor who can help you in this journey. I have one, got her thru Elder Options for free. Look up your Elder Agencies.
It isn't all perfect. I have to keep an eye on her and she does have episodes of "bad behavior" - but I know she is safe, gets her meds, gets food and is with people who know how to take care of people with dementia.
Good luck! This forum was my help (and the wonderful people at the community who told me "I" would be ok!)
I finally got my mom in assisted living after a bad fall. Straight from the hospital. Dad had dementia so I had to use a bit of trickery. I’d take him to have lunch and dinner with mom then on about the 4 day of this told him I needed him to stay and help mom for a while. He bought that but we had several weeks of hell and back with dad trying to find his car and go home. It took about 3 months for him to start forgetting about the car and home and he finally settled in.
And everything Joy said.
Have Mom’s room set up with some some of her favorite, familiar things. Be positive about the move. Mom will be furious and try to lay many guilt trips on you. Enlist the help of the staff. They’ve done this many times before. Follow their advice about visiting. Keep in mind that you are doing this to keep her safe and cared for. It is not easy. This whole process of dealing with dementia in a loved one is not easy. But, unfortunately, it’s a fact of life. No doubt it stinks, but it has to be. Good luck and come back often.