She does not belong there. She does have memory issuses. But she does just fine in her home. her walker navigates fine through out her home. And she has her little dog with her. I have been coming daily helping her for the past 15 years. I prepare the meals, do the shopping. And take her to the doctor when needed. I am a firm beliver that a person has the right to die in their own home. She doesn't belong in that place. She needs to be at home where she has her own things. And is familliar with her surroundings. How do I bring her home? The hospital said he had the last word because of the PoA. The task was to much for him. So he put her in there so he wouldn't have to deal with it anymore. How do I get my Mom home where she belongs? Waiting for your reply, PerryMason1987
You are saying YOU do her daily care, such as her meals, shopping and Dr visits. Was she wandering? Doing dangerous behaviors at home? Like starting kitchen fires, leaving water running and forget?
So why would her Uncle/PoA place her in a MC facility because she was "too much" for HIM? Is Uncle living nearby? Most people at 91 would get overwhelmed easily. Was she calling him, pestering him? What exactly was she doing to "overwhelm" her Uncle to the point he places her?
Especially when YOU have been doing the DAILY care for 15 years? She must have been doing something to her Uncle that was seriously upsetting him.
Others here will want more info to answer your question.
Exactly what were her issues that were overwhelming to your uncle ?
If you brought her home , would you be living with her ? If she is in memory care , she most likely can not live alone , and would need 24/7 supervision , meaning help would need to come when you wanted to leave the house .
Did the hospital say she could not live alone ? Is that what is meant by it was too overwhelming for your uncle ? It would’ve been too overwhelming for a 91 year old to have to supervise her at home because of her memory problems . The hospital will not send someone home to live alone if it’s unsafe . Sounds as if this may have been the case . So your uncle either had to make sure she wasn’t home alone or she needed to go to memory care . 24/7 hired help at home is too expensive for most folks .
Eventually your mother could not live alone because of her memory problems .
It’s very possible that time is now , which is why she’s not at home . Why do you think she doesn’t belong in memory care if she has memory issues ?
There is a difference between , what Mom wants and what Mom needs .
Have you told your uncle you are willing to live with Mom , with help from hired caregivers as well so you could leave the house sometimes ? Do you work ?
Without 24/7 care/supervision at home , Mom most likely needs to stay where she is .
The only way to bring her home was if your uncle agreed to it or if he gave up POA. But he can not give you POA . If your mother assigned an alternate POA that would be who would take over , only if your uncle gave it up . If he gave it up and there was no alternate POA on the document , a state appointed guardian would take over , or you could attempt guardianship through the court which does cost money . However, it’s extremely likely that you would not be able to have Mom living alone anyway . The court would say you have to live with her or have 24/7 hired help set up . Again, this is only if your uncle was willing to give up POA.
You could try for guardianship anyway , ( even if your uncle is not willing to give up POA ) however since your Mom is safe in a care home , it’s most likely that you would not win . If she was unsafe living alone at home, and your uncle wasn’t doing anything about it that would be a different situation where you could win guardianship .
It sounds as if you may be blinded by your mother’s wishes and not objectively seeing that Mom can not live alone at home anymore .
We had to move our step-mother from AL to MC because that is where she needed to be, because we are not clinically trained, my brother & I could not provide the care she needed.
You don't get her home, you visit her and accept her aging process, everything in life cannot be as you want it to be. There is a big difference between "Wants" and "Needs", most likely she is where she needs to be.
Support your uncle, he had to make a hard decision for her well-being.
Have you ever done 24/7 care for someone with a broken brain?
It sounds like your mother had been living by herself before being moved into memory care, which is so very dangerous. Your mother can NO LONGER live by herself, so if you were to remove her and bring her back to her home, are you willing to give up your life to move in with her and do the 24/7 care she's now receiving in memory care?
Be careful what you wish for my dear, as caring for someone full-time with dementia is not all fun and games but is hard work, and often best to leave to those better trained.
You may be a "firm believer that a person has the right to die in their own home" but right now it's not about you and what you "believe" but rather it's about doing what is best for your mother and making sure that she's receiving the 24/7 care that she now requires.
And I think you already know that that means leaving her right where she's at. Why don't you instead bring some of her favorite belongings from her home to make her room feel a bit more homey to her?
No one wants to see their loved ones in any kind of facility, and I'm sure if asked we would all prefer to die at home, but sadly life doesn't always end up the way we want, and we just have to learn to be ok with that.
Your Uncle does have the final legal say as her PoA. This is an example of why people should not assign PoAs who are close in age as themselves... because elders can get overwhelmed easily.
You can discuss with your Uncle for him to resign his PoA but then your Mom will need a legal guardian, which can be you -- but you will need to get it through the courts and it can be several thousands of dollars.
People who have been full-time hands-on in-home caregivers are giving you warnings that you need to take seriously if you are considering taking on guardianship and in-home care. I'm not telling you to not do it, but you need to go into it with your eyes fully open. She will get progressively worse, not just remain "forgetful".
I too am wondering why your Uncle didn't discuss things with you before he transitioned her... maybe it's not too late to have this discussion? He gets to decide what overwhelms him, but maybe he'll give you insights about your Mom's behaviors that you were unaware...?
Dementia makes it hard for people to stay in their homes. Its too unpredictable. Its 24/7 care. Can you be there for Mom 24/7. If not then it means having shifts of aides. 3 shifts a day. Then different people for weekend shifts. Takes a lot of coordinating and then someone needs to call in sick or does not even show up. A 91 year old would not be able to do this. Could you?
Uncle was right to place her if she suffers from any type of Dementia. I think there is more to this story since you have been helping Mom for 15 yrs. You may be in denile. Your Mom gave your Uncle POA for a reason. Why not you?
Welcome to the Forum. I hope that you will fill in your profile all about yourself and about your Mom.
You say this to us "....The hospital said he had the last word because of the PoA. The task was to much for him. So he put her in there so he wouldn't have to deal with it anymore. How do I get my Mom home where she belongs? "
This reflects that your mom's brother was appointed by your mom to act for her, and to act in her own best interests when she can no longer make safe decisions on her own. Your Mom is having memory deficits now, you tell us, and she's using a walker. While you are visiting her daily and making certain she is cared for and fed, there is much more to living in and maintaining a home than that. And neither your Mom nor her brother/PoA can handle those things, even with your solid support.
As an old retired RN I can tell you that a fall by a frail senior who cannot get back up until found perhaps 8-16 hours later, can result in a sore that goes down to the bone with necrotic tissue, sepsis, and subsequent death. That's just one dire circumstance that could occur with mom on her own in her own home. House fires are not uncommon. At times people wander outside and cannot find their way home.
Your mom has been safely and legally placed now. I hope against hope she can keep her little dog with her, or that you can care for it and visit with it. Would that we all could remain in our homes forever. I am 82. I understand with all my heart the wish to leave "feet first" as they say. But it isn't always possible.
I hope that your mother will adjust and like where she is, or at least be content. I hope you will as well, and will visit and come to see that this may be for the best. There is never a perfect answer in these things. But your mother chose the person she felt should/would/could act for her; he has done so. I would concentrate on supporting them BOTH in this last time.
I am so very sorry. Nothing has the "perfect answer". This is an imperfect world. I wish you all the best of luck ongoing. Do know that any fight for guardianship would likely be lost by you, and that it would cost perhaps 10s of 1,000s in cash up front.
My very best to you.
So let's walk into his home, a beautiful South Florida villa. He'd been sick for almost 8 months. His hospital bed is on the sun porch. He loved to look out at the greenery and sky. The carpets are stained because he had accidents, bladder and bowel. Sometimes his bowels would just empty when we stood him up. We took precautions, the three and more caregivers and I. But it still happened. And food and drinks were spilled. He fell and bumped into things, leaving marks on the walls and furniture. His walker is in the corner. And the oxygen tanks. And the Hoyer lift. A stand to wheel his catheter bag when he walked outside. His suspenders tossed over the back of a chair. He needed them because his pants wouldn't stay up when he lost so much weight.
His medical supplies mingle with the food in the fridge. There are plastic bags of medical things and also morphine. Pills here and there, especially in the kitchen. Many bottles, many dispensers. All sorts of aids in the bathroom for toileting and showering. All kinds of bandages and boxes from catheters and other supplies. We had to make room for all the equipment throughout the house, so furniture and other items are piled in the dining room. We can't eat there. He can't either.
The whole house smells like a sickroom. Bodily fluids, disinfectant spray to cover the odor. Antiseptics. Rubbing alcohol. Ointments. Paperwork from his hospitalizations. Folders pertaining to chemo, appointments. Large message boards for caregivers, for appointment reminders. Little papers with phone messages. Always dirty dishes to be washed, large bags of adult diapers to be disposed of (the garbage can, which was built into the ground, wasn't large enough for all that we needed between trash pickups). Always laundry to be done.
Dad crying that he wanted to die. Hospice doctors, nurses, a minister and PTs in and out. Never quiet in the house until nighttime. Difficult to leave the house to buy food, and I'd cook it only to have visitors stop by and eat it. Dad begging doctor to give him a shot to end it. Doctor saying no.
This is what dying at home looks like.
I remember my Dad needed to move into Memory Care. It was Dad's home caregivers that told me his memory was failing, and that he was "show timing" whenever I was around, meaning I wouldn't see any memory loss. I am so baffled how those with memory loss can do that. Any way, I wouldn't be surprised if your Mom was doing the same thing, since you weren't with her 24 hours a day.
There is also something called "sundowning" where a person with memory loss will show memory loss when the sun goes down, and the next morning be more alert. My Dad also had that. He would climb into this time machine and go back to the 1940's. Numerous times he tried to leave the house, and the caregiver stopped him . I wonder if your Uncle had to go out at night and look for your Mom. Not easy to do at 91.
Please note, if your Mom says she wants to "go home". That means she wants to go back to her childhood home, to see her parents and her siblings back when they were kids. Learn all you can about Dementia, go to the green/blue bar at the top of the page, click on CARE TOPICS.... go to the alphabet and click on "D"... now find Dementia articles.
You would need to petition the court for conservatorship/guardianship of your mother. Not POA. You should hire yourself an elder law attorney to help you. Your mother will also have to have representation as well. They always do this. The court can apppoint a lawyer for her if you don't get her one. She (or you) will be responsible for paying her lawyer though.
What will happen next is at the conservatorship/guardianship hearing the judge will ask you what the care plans for your mother will be. He will also ask her. If your answer is she gets around at home just fine at home with her walker and her little dog, you will lose and she will remain where she is.
The court will not even consider granting your petition unless there's a guarantee that she will have 24 care round-the-clock, or live-in care. So unless you can make this a reality, don't bother trying because you will lose.
You know you will have to regularly answer to the court if they appoint you as her conservator/guardian. You will have to show financcial records on how you pay her bills and what her money is spent on.
Your mother may do fine with homecare. She does have dementia though and it will get worse. She may not need to be in memory care, but she cannot be living alone.
Also, the memory care facility might put up a fight about losing her as a resident. They love when they get a nice, easy resident who isn't out-of-it eith dementia because it usually means they can still do some for themselves and require even less care than the minimal level most of these places offer.
Good luck to you and please talk to a lawyer. Know what you're getting yourself into.
Because a person is a nearest relative doesn't mean that they are qualified to be the DPOA, the idea is to be able to do the right thing for the dementia patient, not deal from a total emotional standpoint, agree with the patient just to appease the person...or is it because of a potential inheritance and the OP doesn't want to money spent???
There is always more to the story.
You'd be wise to recognize what's truly best for your mother at this point in her life, not what you believe to be best. Unless you're prepared to move her in with you and do the 24/7 caregiving until she passes, leave things as they are.
If your mom is not yet to the point where she cannot understand where she is or why she is there, now is a good time for her to adjust to it. My mom can't adjust because I waited too long. She is constantly packing everything up in small plastic bags she takes from the trash bin in her room and waiting for someone to take her home. It is sad. I wish I had put her there when she could still somewhat adjust and know that this is where she now lives.
With all this being said, in the days just before I moved her to memory care, she had several different days where she was quite lucid for a few hours and I was able to talk to her about my plans. I explained to her about the place she was going and why I had selected it. I was able to tell her that her best friend had selected the AL next door and that they would be able to see each other more often. She was able to acknowledge that it was time and that she felt it was a good choice. In those hours she understood that she could not go back home and that caring for her was more than I could undertake while working full time. This time was a true gift and I am so very grateful for it because I know that my mom may not remember but her lucid brain understood and agreed.
Your uncle may only be trying to avoid the hard work of caretaking, but regardless he has done the right thing if she has dementia.
I am sorry to be harsh but you need to face reality and mourn the loss of your mother's ability to live alone because it is no longer realistic. It is not your fault, nor is it your uncle's that she does not get to live at home until death. I can imagine that you love her and would never want to see her suffer like she would if she fell right after you left one day and lay there until you arrive the following day in pain and fear and, let's face it, probably her own body fluids and feces. That would devastate you and her. The harsh reality is that it is only a matter of time before she forgets to use her walker and falls, possibly to her demise but definitely to her detriment.
I would definitely try to get the facility to keep the little dog with her, not only will it be good for her but it would delight the other residents. I volunteer with my church at a local memory care and they have two dogs that live there full time. I want to approach my mom's facility about getting a dog or two because I see how much the residents love them.
After 15 years, you, too, deserve a break from daily care. You should still visit your mom often and at different times of day so you can advocate for her as needed but leave her care to professionals and you just enjoy being her daughter for whatever time you have left with her. You may not see it now but your uncle is giving your life back as well as his own.
She needs 24/7 if she has dementia. She is not safe alone.
A demented elder saying they want to die at home is the equivalent of a five year old saying they want to grow up to be Batman. Sure it’s fun to think about, but hardly realistic.
My advice...thank your uncle because there is still plenty for him to manage and visit your mom as often as you can.
Go out for a day , know your mom is getting looked after and enjoy some nature, watch the birds and breathe.
For some people, there are not any good alternatives, but it is my opinion that institutionalization should be the last choice. I truly appreciate your perspective.
My recommendation: Talk with an experienced elder law attorney (https://www.naela.org/). POA's cannot override the conscious and competent decisions of the person for whom they are POA. Your uncle cannot overrule your mother's decisions unless she is too far gone to make them. But that does not sound like the case. The attorney will likely want to meet with your mother as well, or send a social worker to talk with her.
Best of luck to both of you. ♥
but personal
views aside and what’s best for the patient
my father is 92
in full senses and has someone in the family at his place daily cooking cleaning/company
then we go home
it’s hard for a 90 year old or older to navigate looking after themselves in those extra hours
they really need someone living there
Totally get your point but the care needs of a 90 and 90 plus need more than visiting - they need someone living with the person
my father is mobile but tripped in the bathroom
that could have resulted in a head injury
I could continue with dangers in the home
at a centre there shd be 24 hour care
there are arguments for and against
the full time needs of a person need to be considered over whatever believe in ? I am in the process of renovating a house just bought recently and will have my dad live with us
he also no matter how many daily visits feels lonely and anxious at times
everyone’s different - just to highlight how visiting does not really address all the needs of care fir an elderly person
that said
if u disagree with it and for the right reasons for looking after your mother speak to someone legal and check how the decision can be challenged
I imagine the issue of full time care would arise and challenge your mother not getting that living alone
visits not being full time care
wishing you the best
Several people are not being very understanding of your situation. My mother is currently in Assisted Living. Keep Mom home as long as you can.
You might want to clarify where you want her to go to when you say she has the right to be at home where she belongs. His home/their home/your home, etc. You may get some better suggestions with more info.
PO said "So he put her in there so he wouldn't have to deal with it anymore." The fact that she is now in a memory care facility does not end his POA duties. Being overwhelmed could be due to his own health concerns and possibly the steps do need to be taken to have him replaced. If he was helping her as a caregiver, it is totally understandable that he is overwhelmed, then it was his best choice unless you can step up 24/7 .
If you and your uncle do not agree, a facility has to defer to whoever is the POA, if it has been activated. Depending on her memory care needs, it is probably too late for her to personally change her POA and you may would have to involve the courts. In the mean time, you may want to continue visiting her daily as you have been doing the last 15 years to try and advocate for her and assure she doesn't feel abandoned.