I cook 3 meals a day. Give his showers. Wash clothes. Pay all his Bill's. Take him to Dr.'s. I do everything for him.
His dementia is getting worse. He gets around with his Walker. He uses the bathroom fine. No pull ups. Eats very good
Sleeps a little more. My sister has a problem with the amount of money I receive. He saw a lawyer and he drew up a contract and specified the amount. She's accusing me that with his dementia I set the amount.
Contract was drawn up almost 2 years ago. What do I do? She says $300.00 a month is plenty and I'm taking his money. She does not help me with any of his care and never offers.
More than the physical things you do for your father, you're providing him with the security and happiness of family care. If $1000/month keeps you on the job, it's still a GIFT you are giving him.
You should offer to take a month off and have her take your place.....she will see just how hard it is.
God Bless You for what you are doing.
Im less apt to bash or be so suspicious of your sisters motives, though she is being very unrealistic and probably isn’t going about it well she probably has no idea. She may even feel shut out or jealous of your relationship with Dad or guilty about her inability to be as big a part of his care, whatever the reason for that. Not everyone is cut out for or able to care for their failing parents for all kinds of reasons, one being the emotional strain of the in your face mortality and when you aren’t submerged in caring for them daily it can be harder to figure out how to make the most of each day rather than mourn yesterday. It’s like when your children are very young, the parents living with them every day don’t experience their growth and changes the same shocking in your face way grandparents, aunts and uncles who see them less often do. With an aging parent each time you experience the shocking change it’s emotionally more difficult and can become frightening, what am I going to find this time, as well as maybe a picture of your own possible mortality. Not sure I’m explaining that well but perhaps helping your sister understand in a more gentle way rather than writing her off or locking her out. I don’t know how far away she lives but if she is close enough maybe you could ask for her help, go away for a weekend and have her stay with Dad or have her take him in to visit her for a long weekend, week even. Maybe keep her in the loop more about doctors appointments, medication, vent a little about the things that get to you sometimes, lean on her a little more, laughter with her about dad things. “I went grocery shopping for a couple hours and came home to find a scorched pot, I fix something for him ahead of time every time I go out and remind him not to use the stove but...should I turn off the breaker every time I leave the house?! Lol I keep finding his toothbrush in the freezer, what’s that about? Hahaha” Let her know about some of the day to day challenges without using them to prove that you deserve compensation. You could even point out how expensive it is to get some help and ask if she could come stay with him for the afternoon, this way you are being cognizant trying to conserve his money and letting her know without that confrontational thing, just how expensive caregiving is as well as how much he needs the supervision.
If none of this is really applicable and it may not be, just hold firm both to yourself and to her that this is the way Dad wants it and set it up. Changing it up or down (though I could come up with reasons to increase it) is dishonoring his right to make decisions for himself, his last feeling of independence. Also I’m not clear as to wether Dad is actually living with you or not but there are basic expenses if that’s the case too an it’s not fiscally responsible with his money not to cover those in case he needs Medicare in he future an so their are less opportunities for bad feelings later around the settling of his estate.
Good luck and do try to put yourself in your sisters shoes as much as you can while trying to deal through this, I’m not saying it’s fair she is wrong but it’s a relationship that will be better to strengthen through the next 10 years, for you and for your dad, rather than strain if at all possible.
i agree that sis is clueless, which makes her appear self centered. My question is this:
what kind of relationship have you had with sis? Has she always been in charge? Has she always wanted things her way? And going forward, what kind of relationship do you hope to have after dad is gone?
it would be so satisfying for a moment to tell her off now, but doing so would have repercussions later. There are ways to stand your ground politely. I’ve seen others do it and I study them. Your sister may not agree at the time and may need to get the last word in, but stay polite.
also make sure you have POA and are in charge of the trust and are his health agent on his POLST. You are with him, so you will be the one to make decisions rapidly. Get all this paperwork in order while dad has capacity to sign.
when my kids were little and complaining about friends I told them they needed to stand up for themselves, but do it in such a way that when they invited the friend to church the friend would want to go! Very difficult, must pray first.
That is $250. A week.
That is nothing.
Im glad you get something.
My mom lives with me and my husband. We get nothing.
No rent. No bills helped with.
She has money.
Im afraid to ask for financial help.
I have 6 brothers and sisters.
Im sure if I was to get any money they would have a problem with it except for 1 or 2 of them.
I take care of mother because I want to but it would be nice to have a little help.
If you went to a nursing home as a job . You would get paid a lot more than $250. A week.
Its a 27/7 job when it come to taking care of a parent at home.
People who take care of their parents ,and do a great job, are exceptional people.
Keep up the good work.
Why should you finance your siblings inheritance?
Go to www.nelf.org and find a certified elder law attorney in your area and rectify this injustice.
If you lay down, people WILL use you as a doormat. Stand up and make this situation right. If they don't like it they can take over moms care free of charge. If mom doesn't like it she can move. You are no longer a child to be controlled, you are a grown woman with a life of her own that is being sacrificed to care for your mom, the very least that she could do is pay her own way.
Tell your sister you are glad to have her take over the job any day so you can get a real job; anyone else you do this live in work for would double your salary in a second.
Dont listen to people including relatives who do nothing to help. $1000. Is cheap!
Be sure to take time for yourself. I’ve been where you are.
Then tell her you would gladly split care and money with her two weeks on two weeks off. Bet she'd change her tune when she realized it's not easy.
Oh, I would see an attorney alright. A certified elder law attorney and get that caregiver agreement re-written ASAP for a higher amount WAY higher, and get some guidance on your own tax situation to make sure your own income taxes and social security are tended to as needed. Some people with dementia are still capable of knowing enough in the moment to be able to sign a document with an attorney assuring of that and having a witness present. They can educate your father in the moment of what the going rate is, which is typically no less than $20/hr. EVEN with an 8 hour day/7 days a week that is already over $1K PER WEEK.
YOU ARE NOT BEING OVERPAID. HE IS LUCKY TO HAVE YOU.
And I'd tell that sister of yours SHE can take over and take care of Dad for $75 A WEEK 24/7. What planet was she born on??
If she brings it up again, you might ask her if she knows of a service that would do all that you handle for dad for the $300 that she is offering. Or offer her to split the $1000 and she can come stay with dad 1/2 of the month and you the other half. When/if dad reaches a point you can no longer care for him in the home, she'll find out what facility care costs. While she may have no experience with facility care, those who observe what goes on in many facilities will find the fee for the services is way beyond the actual care patients receive.
As for the attorney, the contract and the amount - did dad know what he was doing 2 years ago? Let's just say sis is right and you wrangled a deal, unless you are getting a lot of other benefits on the side, you're still available to care for him to the tune of about $1.40 and hour. If you get extras, see what those are worth and divide by the 720 hours in a 30 day period and see what your services are worth.
Perhaps the sister would like to do the job for $300 a month . This is a really hard job.
As others have mentioned, I would tell sister she's completely correct! You need to shred your current "contract" and build a completely new one. One price for Dad's room and board, then another price for your work as his caretaker. If sister doesn't like it, she can take him in and take over, or shop around for prices at 55+ communities.
Last fall, when I went on a pre-planned vacation, my daughter who lives with us and works full-time was unable to care for my mom during the day hours, so we hired an agency aide at a cost of $25/hr for a 40-hr week. That was $1,000 for 40 hours, 1 week, not even a month.
Additionally, my Mom sounds about like your dad physically; she is 95 and forgetful. When we went to her eldercare attorney last year, the attorney suggested the same kind of contract as your dad drew up and the amount was identical to what your dad decided and you receive. We didn't do it at the time, and then all the things going on this year, I've kind of forgotten, but after reading your letter, I think we need to do this. It surely would help me as I am not working.
Tell your sister that no live-in private aide would would work for $6.25 / hour ( $250/wk divided by 40 hrs = $6.25 ), not even counting living there and being available for all the other 148 hours of the week, during the evenings and nights.
You definitely deserve it! This is not even taking into consideration, the lack of time for you to have a personal life.
1000 is not too much — and likely sis knows this all ready