I have tried warm baths and even cbd gummies that were suggested by her doctor . If anyone has any suggestions I would appreciate them. I also have a hard time convincing her to wear depends for her incontinence. This is a big problem for me , she has wet herself in doctors offices and business stores. I am embarrassed for her. Joee has FTD Dementia and digression is becoming very rapid.
One other thought is this: have you replaced all of her regular underwear with pull-up Depends briefs so she has nothing else to wear BUT those? That's always a good idea for people who refuse or struggle with the concept of wearing incontinence briefs.
Here is a link to an article about sleep issues with Sundowning & how to cope and what to try to reduce the issues:
https://www.alz.org/help-support/caregiving/stages-behaviors/sleep-issues-sundowning
Wishing you the best of luck with a very difficult situation. Please keep your own health and care a priority here as well, which is just as important as Joee's.
Great big warm hug! It is difficult to lose a child, adult or otherwise, death or dementia.
Remember that you matter as well and she needs you to be her advocate and have her in a safe place in the event you can no longer be there for her. This doesn't mean you are giving up or don't care, in fact it is the opposite, you care enough to see her safe and settled while you are able to ensure that.
I have to agree that you should be looking to place your daughter in Memory Care . It sounds like it is getting to the point where it is not safe for YOU to care for her much longer.
You remove ALL her other underwear and replace it with disposable incontinence briefs.
You start carrying a backpack with extra briefs, gloves, ointment and an extra change of clothes. (very much like you did when she was a baby)
There is no reason for you to be embarrassed for her. I am sure you are embarrassed by the fact that she is incontinent. But she, herself is probably not embarrassed as she probably does not realize what has happened.
If this is a sudden change you might want to have her checked for a UTI.
There are medications that will help with the Sun downing, agitation and anxiety.
Just like most herbal products CBD does not work on everyone (personally I feel no effect and it seems to be a waste of money for me)
There are herbal teas that might work, melatonin sometimes works.
Just curious, have you ever got an explanation why your children had/have early onset Dementias? No need to respond if you don't want to.