I have been my husband’s full time caregiver for several years…we have been together for almost 40 years he has been hospitalized several times…for his heart, falls , COPD, syncopes, breathing problems, stents, stent repairs, carotid surgery, and the list goes on and on….every time he is release from the hospital…they tell he won’t make and to put him on Hospice…so I do, and then he outlives the time allowed to be on Hospice and he is released and then we go back into the same vicious circle…we are suffering a financial hardship…and I am a wreck…I don’t know where to go with this…even my daughter has stopped being a part of my life…she says we can’t do anything together or enjoy each other, because her stepdad has taken over my life…
I think this is a little callous on your daughters part.
If you are suffering financial hardship because of his care then you need to place him. Yes, you would need a lawyer if there are assets but if none you maybe able to file for Medicaid as a Community Spouse. Call your local Medicaid office and ask how it works. As the Community Spouse you remain in the home, have a car and get enough or all of your monthly income of SS and pension/s.
On Medicaid, he will continue with his Medicare and Medicaid will become his suppliment paying for anything Medicaid doesn't. His prescription, dental and vision should be covered. His care will be taken care of, you just visit.
My husband was under hospice care in our home for the last 22 months of his life,(and I was his caregiver for over 24 years)and I know that there are others on this forum whose loved ones were under hospice care for even longer than that.
It sounds like you burned out mentally, emotionally and financially. So now you must do what is not only best for your husband, but for yourself as well.
Like others have suggested, see an Elder Care attorney to better understand your rights as his wife, and if need be you can apply for Medicaid for him, and get him placed in the appropriate facility, so you can get back to just being his wife and advocate.
May God bless you and keep you.
Wishing you the best of luck.
Are you considering placement for him?
Have you applied for Medicaid?