My mom lives with my sister, Billie Jo. In the past two weeks, she is telling Billie Jo that she is not her daughter. She is insistent that Billie Jo tells her who her parents are, and is very upset that no one ever told her that she is not her daughter. She calls my sister "the other girl" or "the other Billie Jo". She will not let it go. She calls my siblings and me and ask us if we know her situation (I guess living with "the other Billie Jo". It is really upsetting because we can't get her past it. Any suggestions on what to say to her to calm her down?
It might work and might not.
But as everyone else has stated, don't argue.
Best wishes.
Has this happened to anyone else? I lost my father and my inheritance. While the money could be said to not be important, it actually is important. Not in the same way of course as my fathers love.
I learned to talk about grandma, her mom, and grandpa, and bring it up on my own things from her past how I sure miss grannie's cook and kolatches, and poppy seed rolls. Then I began singing the songs she likes. When she hummed a tune, I complemented her on it and try to learn what song it was and certainly to hum the tune around her. I also write music as did mom, so I wrote little polkas, which when a man sings a polka, hums the tune of it, around a elderly person, around anybody, it creates a happy atmosphere where trust abounds. Happiness. Your sister will be aided tremendously by talking about your mom's interests. She obviously is very caring as she is the one there. A few alterations and it should be fine. It will help brain inflammation if she can give her liquid acetaminophen every 12 hours, about 167 mg each dose, mixed in with a drink. You can also dissolve her aricept and lorazepam in the drink. Then you don't have to try to get them to take a pill. because your sister is in charge of giving the meds, that itself is a cause of paranoia for a memory patient. Because to them they don't take meds, so why are you giving me this? You must be trying to hurt me. Therefore, you can't be my Billy Jo. I treated mom with her meds dissolved for many years and it doesn't destroy their strength. I took a 23MG aricept, dissolved it in Pedialyte and made it into 3 drinks, one every 8 hours. If I missed a meds drink, she might have an episode. Just for being late, too. But once I began the regimen of 350 mg of acetaminophen, Tylenol, I was able to just give her two of her Aricept glasses a day, every 12 hours and save the third one for the next day. It was a miraculous discovery. She didn't want her midnight drink. (8am, 4pm, midnight). I said Okay. After two weeks on Tylenol, she said that. She refused meds, technically. I sai, Okay, now we see if the effect on brain inflammation is valid or if she blows up in the morning due to no meds the night before. She got up at 3 to pee and went straight to bed. Miracle. Then got up at 8am and was sweet all morning. I even delayed her 8am dose to 10am to see if there woud be any hint of the usual craziness that always happened when she missed a full dose. NOTHING. Wow. So A week later this happened again. Miracle. And after the week after that, the third time I said Okay, you'll be okay, same miracle. Soo I quit give the 23MG of aricept in 7 2/3rd MG portions three times a day and went to 7 2/3rds TWICE day, saving the third dose. After 18 months, I had 6 full bottles of unused aricept 23 mg. And NO episodes. I also reduce her lorazepam (ativan) from 4.5mg a day to 1mg a day. All of this is unheard of, as all dementia alzheimer caregivers can tell you. I credit everything I did to fight brain inflammation with mom's turnaround. Tylenol was the greatest of them all. Just think about it and you'll see it makes sense. It's the only NSAID or pseudo-NSAID that goes INTO THE BRAIN and that's why I tested her for it. You won't get in trouble for doing the same thing. You have the right to give your mom any number of pain relievers. Tylenol is on the approved list. The only thing to be concerned about, in my psychological opinion, that's my field, is the liver. But if your mom has a strong liver, then you can give your mom a single dose per day of 1 Tylenol a day. To make it easy on the liver, don't give it all at one time. Give it by drink 2 or 3X a day it's a small steady dose.
Prepare yourself.
Also, please recognize that aggression is an example of what we call "behavioral expressions" - our task is to look at the situation from her point of view. She has dementia, but she's not stupid. What does she perceive? What does she need to bring her understanding and peace? - - - and BTW Telling someone that she has Alzheimer's is as devastating as telling her she has terminal cancer. What would you do with that information? How would you feel?
You are not going to be able to change Moms mind. They get something into their minds and you can't change it. Your sister is going to have to just play along. Maybe say "Billie Jo had to go to work and she asked me to come over and do some chores for her and make sure you were OK"
You also need to realize that your Mom may not see her Billie Jo as an adult but as a child. This happened with my daughter and my Dad. She was trying to help him and said "Pop Pop its Renee" he said "No its not, Renee is a little girl".
Your Moms brain is literally dying little by little. You can no longer reason with her. They lose the ability to empathize. Their short term memory loss will not allow them to remember from day to day, minute by minute. They become self-centered and like small children. If this gets too much for your sister, think about placing Mom. Dementia has no rhyme or reason and because of this, its very hard to deal with.
I can’t imagine how hard this is for your sister and for you watching her go through it. It strikes me that your mother knows who you and your siblings are on the phone, perhaps your sister “the real” Billy Jo should try chatting on the phone with her. Maybe it’s a visual disconnect and changing her appearance when around mom would help, I’ll wear a hat Mom so you know which one is me but when I’m not there the other Billy Jo is there to help me out so please be nice to her”.
Here is an article that will help you understand it better and some suggestions.
https://www.healthline.com/health/capgras-syndrome
There was a post on here once where a caregiver wife told her husband with Alzheimer’s when he insisted she wasn’t the wife that the next time the other wife showed up to have her do some laundry.
My FIL had a similar problem with his house. He thought he had another house in a neighboring community that was exactly like the house he was living in. You won’t get her past it by trying to convince her she’s wrong. The article has some suggestions.
If she insists that Billie Jo is not her daughter let it go. Billie Jo knows, you know and so does the rest of the family.
When she asks about Billie Jo's parents tell mom about HER, her husband (your dad) and the rest of the family. Tell mom that she had a good mom, that she loved her. If mom asks why she is not with her mom just say mom is not feeling well and we have some very nice people taking care of her.
I doubt seriously if my Husband knew I was his wife. He did not call me by my name the last 4 or 5 years of his life. Occasionally when we were out he would follow someone and I would ask where he was going and he would say he was looking for his wife. Did it upset me? Not really it made me sad. But also happy that he still knew I was a safe person for him.
I think with dementia we all loose identity .
The person with dementia looses themselves.
We lose ourselves as individuals
And our loved ones no longer know us for who we are.
Sad all the way around.
Don't stress about this, you all know who you are.