Every time I try to discuss moving my mother into a care facility or my own home, I am cut short because she is supporting my 54 y/o sister who lives with her, drives her car, spends her money on groceries, etc. The problem is, my mother's dementia is getting worse and she needs help with bathing, mobility, meal preparation, medicine, etc. She won't leave my sister (her "baby"), but my sister will not provide consistent, good care (I suspect she is over-using pain meds and is often asleep). I am the power of attorney (both health and financial) and feel like I need to make a move regardless, but my sister is really good at making me feel guilty. I cannot have my sister in my home. Is it cruel to move my mom against her will?
It does sound like your mom needs assisted living, to include medication management. If she is not able to perform her ADLs and is not taking her meds properly, the situation she is currently in is a danger to her health. Not to mention, it sounds like she is being financially exploited by your sister.
Your sister will continue to try to make you feel guilty because her meal ticket is about to get cut off. I wouldn't let her guilt tripping get to you. As long as you are doing what is best for your mom, you don't have anything to feel guilty for.
As mentioned by another poster, you can also discuss with the attorney the possibility of a rental agreement should allowing your sister to continue to live in the home be a possibility agreed upon by you and your sister, provided she pays rent and is responsible for utilities, her own bills, etc. The rental income, however, may affect your mom's Medicaid application should she need to apply, so I'd be sure and ask about how to properly account for that as well. Sister should not have access to your mom's bank accounts if you are the POA.
There is no easy way to say this, but you have two problems to solve, which means that you need to spend time, creativity and ask for help via community resources.
I would recommend that you keep Adult Protective Services out of the mix; the government is not great at solving problems and caring, but they are great with dictating the rules. Neither do they work and play well with others. With POA, you can already dictate the rules; you just don't want the guilt associated with it. And until you come up with the best possible solution, you will feel guilty.
That means starting with an elder care attorney for starters and taking a good look at the finances. What can your mother afford? Does your sister work? Can she work? Is caregiving her sole job? Do you or other family members help? Is your sister mentally ill, drug-addicted, or both? Does she see a counselor or psychiatrist? It's possible that needs real help herself. If you have performed any caregiving for an extended period of time, you know what it can do to someone. It can cause depression and act as a catalyst for alcohol or drug abuse. It can eradicate all the joy of life. It's always more complicated than that, and your sister probably has a pattern of using others to avoid taking responsibility for her own needs, but her problems aren't going to go away by themselves.
You need to dig in and get some real answers so that you know what your options are. I'm so sorry; this is incredibly hard, and none of us are equipped to deal with it. We have to advocate for anyone in our families who is vulnerable and not able to fend for themselves, even if it's against someone in our own family.
Just so we could hold it for him. We were not able to drive up till end of Jan and we moved him out of the house. The month before he moved he threatened to kill himself. My mom had to live with this kind of talk for 15 years. Also, I do have another brother who lived only 2 miles from my mom, but my mom didn't like anyone coming into the house. She never said it but we all knew it was because he was so protective of her grandson. My brother in PA respected her wishes, which I am not sure that I would have. He did call her every day but that's just not good enough when ones cognitive functions are going downhill. It would have been an awful ending if my mom died while in the house. Her grandson would have been evicted from the house, been homeless as no one would have taken him in as he is hard to Live with. These are tough decisions to make and yes they take a lot of time, effort and work. My mom was priority but something had to be done with the grandson so that my mom wouldn't have to worry about him. I took charge of ghat situation also. Well guess what.. he's in a good place now, the house is being sold next week, and my mom still worries about him. Contact an elder lawyer and get his advice on what he thinks may be the best . Hugs are going to you. I hate you have to go through this. I never in a million years thought I would have to be my mom's caregiver. I love her so much though and she doesn't have the means for AL down here. Much more expensive in PA. There is no help with AL in SC. For now I am ok with her being with us but it does closet you in your house if you can't leave her alone which I cant. I am looking for help. Good luck to you.
You are doing what you are supposed to do....Looking out for her, let me repeat that HER best interests.
You have a duty to provide care for your Mom, you should not feel guilty. I am guessing this is why YOU were made POA and not your sister. Is there something in the back of your Moms mind that when she made that decision that SHE knew you could do what she could not do?
You have a few options.
If the money is not needed at this time for your Moms move to AL or Memory Care then set up a rental agreement with your sister and rent the house to her. You have to do so using fair market value for the rental. The money to be used for the upkeep of the house any left for your Moms care.
Or
Give notice to your sister that the house will be sold and the money used for Moms care.
either way make sure that it is done with the intent that if you have to apply for Medicaid that any transaction will be looked at under a microscope.
At his point your mom and you are enabling your sister to maintain the lifestyle that she has and there is no incentive for her to change.
You might be wise to contact an Elder Care Attorney just in case it is needed. Depending on what problems your sister might have you may have to become Legal Guardian for your Mom if worse case scenario comes about.
(don't even want to think that you might have to become guardian for your sister as well but that is a whole 'nuther post!)
Ignore the guilt from the “renter”. You are POA for a reason and were/are trusted.
It will be much easier to get mom to move if there is a plan for the daughter she clearly feels responsible for. In the meantime, home care a couple of hours a day may be enough.
I agree with seeing a lawyer, reporting to APS, and also contacting your mum's doctor for his(her) advice. As she has dementia, this situation will get more and more dangerous for your mum in several ways, She needs intervention.
Impaired mother is at risk, living with her drug-addicted daughter who does not care for her properly. You might also use the therapeutic fib and tell Mom that sister will be coming along later.
Before you do anything, make sure you have Durable Power of Attorney so that sister does not continue to live in Mom’s house. You may also want to consult an attorney so that you can legally toss your sister out, sell the house and the car and use the funds for Mom’s care.
Does sis have any income? If so, it may be enough to cover the second person fee for mom’s IL apartment.
It could be a problem when mom dies. If sis doesn’t inherit enough money to stay, she’d have to move out of IL.