I read comments from so many who seem to be coping well with their role as a caregiver. I'm not. I'm exhausted. I'm going through the motions of caring for my loved ones and facing the possibility of having yet another to care for. I am not superman. I love these people and want to make them comfortable in their old age, but I cannot find respite. While I can find someone to care for one of them, they will not care for the other two. I'm not really looking for solutions, just need to know that I'm not losing my mind (or maybe I am). I feel like I'm failing the people I love. Thanks for listening.
Please consider your wellbeing before adding a 4th person.
You have given them all a wonderful gift, just don't lose you in the giving. You matter as much as any of them.
Great big warm hug and prayers for you!🤗
Works for us, we have no need to have them live with us or us live with them as neither my brother or I are clinically trained and have no desire to give up our lives for them.
Your responsibility is to your husband. And he needs your attention. And believe me, the majority of us do not do well with Caregiving. We do it because there is no choice. Or, we had it dumped in our laps. And parents are too stubborn to go to an AL or allow outside care. Its a hard job caring for one and sometimes 2 but not 3. Me, I have no patience and I overwhelm easily. I had my Mom, with Dementia, and she was fairly easy. I was 65, just retired and taking care of my grandson when I had to take Mom in. No siblings near by. I was trying to sell her home to get her into an AL. It didn't sell but I took what she had and placed her. Such a lift off my shoulders. (My house was a split level not good for someone who couldn't do stairs)
PLEASE, don't take on caring for someone else. You can not physically or mentally spread yourself that thin. That person is going to need to find another answer. And your answer should be NO. I have enough with the 3 I have. I cannot possibly take on someone else. And if the person gets mad, oh well. They aren't, or their family isn't sympathetic to what ur doing. They are trying to find the easy way out. I can even imagine that you would even be asked. You really need to lighten ur load u have.
I remember someone posting that they had been caring for, lets say, their parents. For years, like one passed but she still had the other until that one passed. She was really glad that part of her life was over and she was moving on. I think her question to the group had to do with a relative saying that now she could take care of an Aunt since she was so good at caring for her parents. I think she wanted to know how to go about telling this relative that NO she was not caring for this Aunt.
I can remember thinking when I was younger how people could place a LO in a NH. Back then there were no ALs. The nursing homes did not have the activities for residents like they do now. I now know why. At a point you just can't do it all. And you will eventually need to realize this. Moms Dementia will worsen. Dementia goes hand in hand with Parkinson's. Dad will worsen. What is going to happen to these 3 people if something happens to you.
You are doing the work of three shifts of young, trained, well-rested caregivers who go home after an 8 hour shift.
Please ask yourself what will happen to your 3 clients when (not if) you fall ill or die.
I understand leaning on God for support, but we human and have limits.
What are your mom and dads financial resources? Are they eligible for Medicaid? Hospice? Can you use their resources to pay for in-home care for them so that you can concentrate on your husband?
Can your husband afford to go to an Assisted Living facility?
Have you tried brainstorming this situation with a social worker or geriatric care manager, or with an advocate from the local Area Agency on Aging?
God give me patience! Thank you for your concern. 😊
Here you are getting the support and encouragement to take care of yourself now. Find respite however you can after your mother is settled. This is a time of adjustment for your father. From a balanced mind, you can move onto the next steps of finding the best care for each of them as their needs will only grow.
I think you are past the point of serious burnout and are running on fumes. (I've been there).
Have your dad and husband always treated you as part of the servant class?
I know that sounds mean, cruel, awful, but I can't picture a loving husband demanding that his wife care for him AND 2 others and NOT see that she needs some help from "outsiders".
Please think about the fact that you will not be doing anyone any good when you are hospitalized.
Get in-home help and what the others think? Who cares? You're in charge.
1) Have a husband/wife relationship.
2) Or be a caregiver for your husband.
3) Or Lose your sanity.
Add more to the mix, and just check off #3 now.
(Some of us are more vulnerable and as caregivers are challenged
to do more).
The role of Care Coordinator is a good place to be, but it can be stressful too if you aren't afforded decision making authority.
Please re-evaluate this situation that you are in. It is not working. Trust me, I have tried it myself and all it does is destroy our lives and negatively impact those around us.
I bet you feel like you have lost control. That’s how I felt. In reality, you have lost control. I did too. The good news is that you can get it back.
Please speak to a therapist for yourself. It helps tremendously. Also speak to doctors that are involved and any social worker that can help you.
Find out what is available as far as help for now and in the future. Nothing stays the same. Diseases progress. It will become harder, not easier. Stop thinking something is wrong with you and that others cope better.
Accept that no one would handle this situation well. Change your reality. It does no good to continue thinking that one day everything will fall into place because you are hoping to learn to ‘cope better.’
It’s better to learn to be proactive and learn all that you can and find ways to help everyone involved, that includes you! You matter just as much. Ask yourself, would you want everyone to sacrifice their entire life for you if it were you in their shoes? Most likely not, so realize that they are asking too much from you.
Of course, you love them and deeply care but you are giving more than you have. Now you are emotionally in debt. Start paying yourself back by making time for you. That isn’t a luxury. It’s a necessity.
They made it work for several years until she fell and broke a hip. Dad didn’t want home aids or anyone coming into the house to help out. I flatly told him it was the only option since I had no plans to be the maid or caregiver. I took over the financials, interviewed and hired help, scheduled medical visits, dealt with hospital and emergency room stays, everything.
All this in addition to a full time job that entailed frequent travel and weekend meetings. I can’t imagine adding physical and housekeeping chores on top of all that!
Residents in AL or SNC get round the clock monitoring by staff who get to go home after an 8 hour shift. Can you imagine expecting them to work 24/7 the way you are? It’s inhuman and no one should be forced to do that. As caregiver you are responsible to ensuring you LO gets the best care for him/her and that includes making hard decisions, standing firm, and asking others for help.
I haven't found respite or help on a regular basis. I do manage to give a very advanced date for a week off in the fall for an annual trip with some friends. Even then I have to listen to the bickering over one sibling saying if another doesn't help then they won't either. I don't get in to the middle of that and if it comes up I tell the complainer - not sure, but I'll be gone so figure it out.
Oddly enough, when I return I hear - I don't know how you do it and I'm going to start coming to give you more relief. Relief comes the following year. I find no point in becoming bitter with siblings because I just don't have the energy for all that anger. Bite my tongue and just move on.
Each day that you rise you are providing love and care for your family. It is a huge gift to them...although draining for you.