I have read here a lot about patients being negative, and my Dad, 80, whom I believe has alcohol dementia, has become so negative its just unbelievable. He lives in the past and wallows in resentment. Is there something about dementia that causes more negativity? Why doesn't it go the other way, with positively?
Maybe because she is remebering the past alot now and talks about nothing else and its usually the bad times?? I always try and talk to her about her childhood and better times which works.
It has been a while since my post about the Xanax and the Geriatric PH has put him on Serequil. (sp)
He does OK with it but is still awfully negative. But he always was even when he had all of his mind. I am always amazed at how this man can think of only himself and how he has no regard for anyone else but himself. He rarely thanks anyone for acts of kindness towards him. But looking back at the past 40 yrs of knowing him....I realize this is nothing new. So we just grin and bear it. No fun but nothing else we can do. I wish all of you peace in these difficult times.
I am a licensed therapist so I thought I would be able to help her more than anyone, so here we are. I want her to see a therapist since I have been unable to help, but she refuses.
Her negativity is taking a toll on me, my family and my practice. I remain prayerful. If anyone has any suggestions, I would definitely appreciate it.
This just broke the family apart also because the rest of the family never came around so they never knew the problems she was having. I don't know if they did think we took her things. She was in a nursing home for over 5 years and the average cost is over $30,000 per year and some years double that when they need more intensive care.
Anyway, I was able to bring her home for her last days. She was at home with us for 12 days and she knew where she was. After that first year, she was really happy. She was the sweetest person I had known. She would still get upset that her other boys didn't have any time for her and she knew they did not come in to see her. She even knew when they didn't buy her a gift for her birthday or Xmas. I would buy for them and keep the tags so she thought they bought her a gift. It saved me alot of aggravation because she would get "stuck" on something like that and it would deepen her dementia. I did whatever I could to make her life happy.
Mom had a male friend and they were constant companions. I would take them and others to dances and dinners and picnics. I would see her all the time so when I did have time when I got really sick, she still thought that she saw me every day.
She would hold my hand and tell me I was her best friend. She would introduce me as her daughter. (She didn't have any). When she passed at home she was having a difficult time and I didn't want my kids or husband to witness that....I got in bed with her and prayed and sang "Amazing Grace" and I told her it was time for her to go see PapPap. I held her close and asked her not to be afraid.
I am grateful for Dementia. The beginning was very difficult but the end was wonderful. Mom didn't focus on all the bad things of her life or the things that she didn't get to do. She was so happy in the end. There were stages and we went through each stage together. I am grateful that I had those end years with her. Would it have been easier if she would have had a sudden death? Yes, maybe. But I can tell you that I wouldn't trade those last years for anything. She shared things with me about her life that I would have never, ever known. I met parts of her personality that I would have never known without this illness. But, I learned even more about myself. I learned that I could be totally selfless. I was willing to clean up anything and do whatever to make her life better. I learned not to focus on tomorrow, next week or next year. I still always worried I just tried not to focus. The only time that matters is right now! This woman blessed my life with her son, my husband and two wonderful children.
Even though things were really difficult in the beginning, she was the center of our lives. She took care of us when she could and we took care of her the last 13 years. She would tell me she hated me and I never did anything for her that first year in the home but she didn't understand what was going on and this wasn't her speaking. She then started to understand and she would say to me that I couldn't take care of her at home. She was dangerous to herself and she would wander so we had to have someone with her 24/7.
I feel blessed that she chose me to care for her.
Seriously, it amazes me that some caregivers in my local Lewy Body Dementia support group do report reasonably upbeated loved ones, and that often the sense of humour hangs in there to almost the end. And some report negativity and even violence where it didn't exist before.
I'm dealing with a couple of health issues myself right now. Nothing life-threatening, but very annoying and limiting. Frankly, I'm crabby and more negative than my baseline personality. I can't imagine how I'd cope with permanent and worsening disabilities and confusion.
I'm not saying that it is not the dementia that causes your dad's negativity. Who knows? I can just say it is not always a component of every kind of dementia.