My mother entered the skilled nursing wing of the nursing home for therapy. She has dementia secondary to normal pressure hydrocephalus which is often misdiagnosed in elderly because it looks like Alzheimer's or other dementia diseases. She had surgery to relieve the pressure, however, she was almost invalid before a doctor looked past the "Alzheimer's" label to look at the "big picture". Neurosurgeon said it will take time and patience for her to make progress. She has dementia type behavior and is wheelchair bound (cannot walk at all) and has expressive aphasia (unable to find the words to say what she wants) She just entered the nursing home wing a week ago. She was in a room without a roommate. Yesterday she got a roommate. The roommate appears to be bedridden, blind, hollers out, moans and cries out rather persistently. While my mom does have dementia, also, this roommate is really disturbing my mother. Mom gets upset by the sudden outbursts of the roommate and fusses at the distressing sounds. Am I out of line is suggesting this roommate is disturbing my mother? It just seems to be lacking respect for my mother. She should be able to "rest" and not get upset by the roommate.
The biggest problem in the home she's in now has been "mean" stuff. The first "roommate" is supposed to be in a double room, but wants a private, so historically she is beyond nasty to anyone they put in there. She's "lucid" but incredibly abusive, so they have to move the new roommate out and she gets her wish for the "free"private. The second died, which was of course upsetting... The third was actually friendly with Mom and wanted to be in the same room, but the rooms are set up very poorly, with the division set up horizontally, so one "half" has the back with the window, corners, privacy while the front half includes the sink, storage, on one side and the bathroom taking up room on the other, with the bed sort of in between. Everyone has to go through/by that section's bed to get to the back part, or for that resident to go outside of the room. Her roommate eventually got angry every time Mom wanted to leave the room because she had to move (in wheelchair) to let her by, or people going to Mom's area had to go by her. She got abusive (nasty, calling Mom names, whacking her with a wooden back scratcher, barring her from leaving the room). Mom has some mild dementia now, and would tell me what was going on, but (I'm ashamed to say... I guess sort of like the Mom who doesn't believe her child when told of abuse?) I thought it couldn't be true. (Her roommate loved me and was as sweet as she could be!) Finally the woman across the hall was concerned, took me aside, and confirmed what Mom was saying.
I addressed it with the home, and they said they'd take care of it. However, the same woman told me again a few days later that it was worse, and this time I told the management that if they didn't remove the roommate I would call Sr. Protective Services and report them. She was out the next day...
Her roommate now is very quiet most of the time (except she snores horrifically :)), not very "present", basically bedridden (they use a lift to get her into a chair for meals, etc.), and mostly nice. She's actually gotten very attached to Mom and almost dependent on her (gets upset if I take Mom out because she's afraid she won't be back), which is kind of sad because Mom isn't as empathetic as she used to be and thinks she's kind of a pest...
As far as noise and peace & quiet in general - forget that! There is a memory-care facility next door (same owners) and when someone there has a medical problem, they transfer them to Mom's facility for care. If the medical problem doesn't clear up (or, I suspect, if there aren't any rooms available at the memory care facility) they stay in the nursing home. (They've told me the State no longer allows them to transfer people with memory and physical problems to another facility because they call it "patient-dumping").
Mom does get upset (sorry - sad, but true?) at people wheeling up and down the halls banging on walls, crying out, screaming or yelling, grabbing at people as they pass by, or old ladies giggling and crooning to baby dolls. When Mom first went there, she acted out like never before or since, and tried desperately to get out - wheeled in and out of other rooms, tried to make a break out the front doors, repeatedly yelled for me, knocked her meds out of the treatment nurse's hand and spilled water all over her... She was totally panic stricken! They let her call me, and it was so pathetically heart breaking! She begged me to call 911 to save her, to come and get her out, etc., said if I didn't come quickly I'd never see her again... When I got there (I brought a friend she knows, also) it took us quite a while to calm her enough to find out what her problem was. She refused her meds with us, too, and finally told me "if you love me at all, please don't let them give me the Dumb-Dumb Zombie pills!" It broke my heart, but I could understand.
I truly feel so sorry for people who have lost - or are losing - their loved ones to Alzheimer's or other dementia-based diseases (I've had friends lose their parents and know how horrible it was for them - it's actually a double loss), but it is really upsetting to people who are still lucid... The last chapter so far here, though, is that after a year in the facility, my Mom now has very short term memory, becomes confused frequently, and I fear is on her way to the state she fears the most... So, again, my heart is breaking...
Please go to the bulletin board in the facility and write down the state hotline number for complaints. The next time this happens you say "If you don't clean her up in fifteen minutes I call the hotline." Make the call if you have to.
What are the rules concerning these roommate issues? The woman is from a very influential family who "are pulling strings" I am told to keep her in the assisted living facility rather than moving her to the dementia ward.
Good luck. We've had some bad roomnates, including those who vegetate in front of a tv all day long and don't even want to get out of bed to do PT.
I know that facilities have a lot of challenges when it comes to roommates and not getting along is an ongoing issue, but this situation is different than personality clashes.
Your mother has to put up with too much and this could contribute to her decline. I agree that something needs to be done. They either need to help this other poor woman get rest with some sedation or else your mom or the other woman needs be moved.
You'll have to stand firm on this to get them to do something. See if her doctor will back you up. If you can’t get action you could see if the long-term care ombudsman can help you. Go to ltcombudsman.org and type in the Zip code of the nursing home. This contact is your representative. If you can show that your mother's health is threatened by the situation they may be able to assist you. They are trained in solving problems for residents.
Good luck,
Carol