My mother has always seemed to enjoy illness. Her pain or sickness is always worse than anyone else's. She has been on lots of pain meds (including a fentanyl patch) for almost a decade. She is 75 and seems to be losing it sometimes. She says something totally crazy followed by something totally lucid. She is hard to explain and hard to deal with.
What I really am curious from other's who have had a family member with Alzheimer's is how does it start developing in the person? Can they be confused for a short period of time and then seem to be mentally fine for most of the other time? Does it gradually begin to get worse?
I just don't have any first hand experience with any type of dementia so am just curious.
So, I often ask myself which of the three D's I'm looking at -- dementia, drugs, or depression. She has let me take charge of her diabetes and bp medicines, but don't touch her Ativan! When I took semi-charge of Ativan by putting it where I could see it, her dementia improved substantially. I am of the mind now that at least half of her Alzheimer's-like dementia was caused by taking too much Ativan.
At her age and with her history, there is no reason to address my mother's dependence on Ativan. But I do want to keep her use of it down as low as possible. Since I have been talking to her about it, the use has gone down to "normal" and she is acting almost normal (for her).
But she still refuses to see a neurologist. Maybe she doesn't need to if it was simply the drug causing the "dementia."
OK for example my Mom was in a behavioral health hospital totally stable, for one... she was diagnosed and medicated and treated properly,meds at same time daily, and routine stable environment, daily schedule was routine.....eating meals... dressing... activities... setting... so therefore stable daily routine in conjunction with proper diagnosis(brain scan or possible loss of oxygen from other reasons, circulation etc.), and nothing to trigger a switch in any behavior is all part of "stabilizing" (as normal as a person could be, given the fact of other health factor issues).
What this ALL means is there are many factors involved.
I realized that once my Mom was stable she still was confused, delusional, story telling, wandering but her personality was still Mom. I knew they key word
"ICE CREAM" She may not have known what time of year, what day, what she had for lunch, how old she is, who I was in relation to her, but her favorite thing in the entire world that made her smile since the day I can remember about her personality was/is "ice cream"!!!! If she has a negative response to "ice cream" I automatically know that's not my Mom or she's really not well... something is bothering her. Another thing that never changes is the thought of her Dad. She see's him everyday (fantasy) but she never thinks of him in a bad way, it makes her smile when she thinks of him. She also loves music, This is how I can tell if she's "MOM in there".
OK now The transfer from the Behavioral Health to the NH was not a problem.....
until they messed with her meds. I saw her personality change way before they did. They kept telling me it was just me she's fine with us.... I knew that was a temporary mood change in the slow eruption to the exploding volcano!!!! So after me telling them the last thing I wanted was for them to fill my Mom with harmful drugs so she would accept my presence, and I knew my Mom was not acting that way just because of the dementia it was withdrawa,l and the meds were working if they didn't change them!!! I thought to myself well they will see for themselves if they don't listen, her mood will surely reflect what I am trying to tell them. I witnessed the slow decline of her hygiene approval, her wanting to get out of there, her not wanting to participate in things she enjoyed when she was stable on the meds and prior to her condition...THEN the VOLCANO ERUPTED!!! She went from being the EASIEST resident to being the TROUBLED MOST DIFFICULT ONE!!! So they understood my persistence in her stability being due to the right meds. AFTER the fact they asked me how to deal with her.
My point is everyone has a personality we are all unique. This is distorted with dementia but can be possibly regain a balanced to a point with meds, and daily events at low change of routine day by day surroundings and activities (for some cases, if it's just due to a chemical or brain disease). Anyone who tries to make logic out of a mental unstable person, prior to knowing what the cause is, is fighting a losing battle. Understanding the cause and the personality is key. If it is a parent you are caring for you know what makes them happy you know what makes them upset you know what relaxes them you know how to push the buttons... you see just because they shout out I hate you or go away your bothering me doesn't really mean just that. I remember saying those same things to my Mom to get her to ive me what I was really wanting... to get my way....to do what I wanted... she was either trying to protect me or it just wasn't possible at that moment... I didn't get that so I said I hate you or said something mean out of anger !!! She didn't give in because she knew right from wrong!!!!
So now when Mom say's go away your bugging me, I know I am doing what's right for her and I say "Ok I'm going to get Ice Cream do you want some?" If that bribe dose not work, I know she is really saying help me somethings wrong.
She deep inside knows I care but is embarrassed when I am the one she needs because that is just not in her programming, she tells me "I am your Mother...you are not mine." BUT she calls the AID that dresses and baths her, "MOM" (in a joking way) and all is good. So if I act like she is my boss and NOT like she is unable to care for herself she can handle that. BUT that is my Mom!!! I hope this helps.
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