Mom was put in a nursing home back in 2010, 6 years after dad passed away. They has been a lot of sibling dissention since and is getting worse. Mom as been at this nursing home for a little over 2. I am 5 hours away and don't get to see her as much as I'd like. The brothers live close and the youngest has POA and has made noises about me at the home. We stopped talking as it never leads to anything about the topic at hand, Mom, The brothers do not know what Mom needs usually and she and I get along great so she leans on me for support, but there is a limit to what I can really do. She has asked to be takent to her house, which has not been lived in for 4 years now, so my oldest daughter, who would so anything for her, took her to see her house. She was not happy with the lack of maintainence on the yard, shrubs and trees. Needless to say, the brothers have told her that the septic system and water lined are in need of repair and they are not doing anyhing about it. So all that made her very upset. Now, today, oldest brother, who has been a bully all of his life, writes this daughter and threatens her that he will tell them at the nursing home that she nor I will be able to take her out. He is not POA but could convince brother with it to do this, I fear. Can this be done? His threat was if we did again, but I also told this brother that ' you dont; have as much power as you think you have to keep us away', a taunt now that I pray won't /can't occur. Thoughts on this?? Can I be stopped from taking her out or seeing her. She is in a Mediacre nuersing home in Texas.
Your mom has dementia, according to her profile. There needs to a consistent care plan for her well-being. It is not necessarily the best care, though very well-intended, to do everything a person with dementia wants. How could seeing her run-down house in poor repair possibly have been a good experience for your mother?
You say that "The brothers do not know what Mom needs usually," but if this is your idea of what someone with dementia "needs" then I am not sure I trust your judgment about them. Maybe oldest brother has been a bully all his life, but that doesn't automatically make him wrong.
Can you and your daughter agree to visit Mom in her current home, the place that is likely to be her home for the rest of her life? Can you agree to learn more about dementia?
Ideally the family discusses and agrees to the care plan for Mom. That often does not happen. But in any case there is one person empowered to act on Mom's behalf because she gave him (or her) the power of attorney document to do so.
You are your brother have taken this back to childhood level. "I'll tell the POA on you and then you'll be sorry." "Ha you can't make be stay away."
My advice is to put your childhood history aside and have a mature discussion about why your brothers think this kind of outing is a bad idea (they are right) and what else you could be doing instead to fill Mom's final years with as much comfort and happiness as possible. That is what you want, isn't it?
Your brother couldn't possibly have just picked up the phone and explained in a friendly way? Tsk. Unfortunately, caregivers' tempers do fray and run short. I hope your daughter isn't feeling too crushed or angry.
To answer your question, the people responsible for your mother's care are duty bound to act in her best interests. If it were the case, for example, that visits from you ended with her being distressed or put at risk, then yes they most certainly could prevent you from visiting. But it isn't at that extreme stage, I really doubt that your brother wants your mother to be anything but as happy and comfortable as possible, and as long as your mother wants to see you then that's what matters. It is also, I agree, important that there is someone around who understands her feminine side. Not many sons, however dutiful and however hard they try, can tell the difference between Lisle stockings and 10 denier, for a light-hearted instance.
Cross-posting, only just saw your additional post. Seize the day! - if there's even a slight thawing in your relationship with your brother, now that you can work with. Eyes on the prize, of making your mother happy. Believe me, I know how hard this is - three years of hard graft and I'm just about speaking to my POA brother. Just. Fingers crossed!
By the way, my mother can talk a good talk, too. But she gets lost between the bathroom and her sitting room. And whereas she used to be able to name all the senior people in government, she now claims that she doesn't know what the current Prime Minister is called because she doesn't think much of him. Hmmmm… Best to keep your grain of salt to hand!
I do not trust your judgment of your brothers or your perception of what is best for your mother now because your mother has been diagnosed with dementia, and you do not understand what that means. Not your fault. Nobody is born knowing about dementia and most of us haven't learned about it at school. But unless you are willing to educate yourself about it you need some guidance. Your brothers may be jerks in how they try to provide some guidance or at least try to protect your mother from your well-intented ignorance, but the POA really has a responsibility to do that.
My husband lived with dementia for 10 years. He could often have perfectly lucid and normal conversations. But there were also times he saw things no one else saw. There was a time when he sincerely thought he was an airplane. He remembered his school bus driver from childhood (he was 82 at the time), knew his name, his normal route, that he gave each kid something for Christmas, etc. But he couldn't remember if he'd eaten lunch or not. My mother, in her 90s now, remembers things from my childhood but doesn't always remember that my husband died two years ago. Being able to remember the past is absolutely no evidence that a person doesn't have dementia.
Your mother wanted "closure" and that does sound reasonable. But a person with dementia is losing her ability to reason and must depend on those who love her and care for her to do the reasoning about what is in her best interest.
I don't mean to criticize your lack of understanding of dementia. Each of us caregivers of loved ones with this hideous disease started out knowing very little about it. I just know that being an effective caregiver for someone with the disease requires learning about the symptoms, behaviors, and impairments that go with it.
Your mother does need a daughter's love, and the company of a granddaughter. I surely hope you can make enough peace with the POA brother to be able to continue to provide that.
part. I am not ignorant on the subject as some of you have suggested. She does have her bad days. She is not bed-ridden and is very active.
It's a terrible tease for the patient, to show them something they can no longer have, and see it so changed really rips their heart out.
Even if it had been fixed up, it still would not be the same for her, she would still be upset that the past was altered in her mind..
You say that your mother is in a Medicare nursing home. I assume you mean Medicaid, since Medicare will not pay for long term care, unless it's for temporary rehab. If Mom is on Medicaid, it means she has no funds of her own. Therefore, there is no money to maintain the house. It will be sold and the proceeds will go to Medicaid Recovery to pay, in part, for mom care after she passes. Your mom would have difficulty comprehending that if she has even mild dementia I think.
I'm sorry that you're farther away from mom than you'd like to be, but most of us find that having an elder situated physically close to one child, usually the one who is POA is best, especially in emergency situations. Unless you're willing to take on this burden as a whole ( managing her care, visiting several times a week, dealing with her doctors and care providers) I would try to work with your brothers and be on the same page with them. Frankly if my daughter took my mother out oh her NH without my brother (who is POA)'s consent and permission, I 'D be furious at her. Why would you upset her?
Please, as Jeanne said, learn more about dementia and hang around on this board and find out more about ways to support your mom.
Since she was about 85, I realized that my mother was becoming increasingly anxious about everything and at the time, I made up a maxim which I communicated to my brothers, my kids and extended family. NEVER TELL MOM A STORY WITH NO ENDING. In other words, don't tell you have a symptom and are going for tests. Don't tell her that she may need a new sewer line. Don't tell her that the archdiocese might close her local church. Only tell her things that have closure built in. If you have any influence over your brothers, you might get them to think about this. Of course, that WOULD require THEM to think like grownups! ( that was snarkiness!)
As you stated about not putting problems out to her with no ending, that is what I don't do.The brothers told Mom about the broken condition of the house.and Now I have no answer for her..I hear about her sleepless night because she has no more control over anything. She was thinkful to see her house and a neighbor brought her some roses from Mom's house and told her that her sons were going to mow her yard. She felt much better after that. Sadly, the brothers and my sister have a lot old issues and every time we talk it turns bad. They wouldn;t listento me about anything,,I knew Mom had the bad UITs that were making it seem like she was demented. I did a lot of research on that and the drs agreed that that di cause her a lot of problms. And as I have said, I know mom has some dementia, but all I can say is she is doing very well, The brothers had said back when she was going thru the beginnings of this, that she woudl outlive us all,,Oh, and she has had open-heart surgey back before all this happened,
The answer is yes, very probably he could. That doesn't mean he is always right or that he has never made a mistake in caregiving or that restricting you would be a good thing. But he has POA and he could do that. For your mother's sake as well as for your own, I think you want to avoid that. I think you want to cooperate with your brother. Perhaps propose the you give him a list of the outings you might take Mom on, for his information. If he feels like you are respecting his authority maybe you'll have more peace.
I am very glad for you that your mother's dementia is mild so far, and that she is healthy. Dementia is a progressive disease which means it gets worse. I'm sorry if I sounded snarky in saying it, but I truly believe that the best thing you can do for yourself and your mother is develop a better understanding of dementia. You did that about UTIs ... good for you! Now expand your knowledge of dementia symptoms and behaviors.
See All Answers