I work for an agency in South Dakota that keeps talking about moving an individual to a different group home. This individual has dementia, she can't walk but is in a wheelchair, she is changed from her brief every two hours, and gets sponge baths. She is close to the last stages of her dementia. I want to do what is best for her, I would like advice to share with those who feel she should move.
Isn't it a crying shame that the level of care they need isn't moved to them? I know "patient-centred care" isn't meant to be taken literally. I just sometimes wish it was.
It could be that someone needs this space and the move would seem beneficial to everyone, but every aspect has to be considered.
You are kind to be so concerned.
Carol
It would be helpful if you could please tell us why the facility is proposing this move. Also, are you her guardian? If not, who is her guardian? Does she qualify for hospice services?
I have a son with Down Syndrome and I know he is more likely to have dementia at an earlier age. This type of situation is one I dread for him because I likely won't be alive to make decisions. This client is very lucky to have someone like you to look out for her best interests. Thank you for what you are doing!
If she is it might not be a good idea to move her. If she isn't and she will get the same care, or better then it might be alright.
My husband is in the last stages but he is now in bed 20 to 22 hours a day and sleeping most of that time. Would he be aware if his surroundings changed?...probably not. Would he be aware that I was not there caring for him?...probably. If he got the same level of care that I provide would he do just as well?...maybe.
It is very likely that the transition will cause a noticeable decline right away and that decline may not level off as fast as some declines do.
If the transition will provide better care with staff that is more trained to handle the individual situation then the move might be good.
If the move is to a facility where she will not get as much attention then I think that will just hasten her decline and ultimate passing.
Bottom line..no one has a crystal ball. All any of us can do is do the best for the person we are caring for. Ask yourself... if I were this person what would I want someone to do for me.