Maybe you've seen me more active as of late. I made a promise to myself last year I was going to find a way out of here, out of this role, and out of this house. It's been too long, too much F.O.G., and tired of the feeling of constant desperation and constantly doubting my sanity, my need for freedom and what happens if i leave. I could stay, but I really don't want to. I'm being weaker in certain ways trying to be assertive and end up being aggressive and the only one hurt.
I've already got deep plans about where to go, When, is hesitant for multiple unpractical and practical reasons, but it will be a hard no longer than May. Also I know I will definitely need therapy once I leave here. I'm looking into that also with the area to live. I honestly don't think I would be safe with myself if I leave without a support to work with. So therapy will be that.
The biting issue that has me feeling absolutely torn is, what to do about my parents... My dad is 68 i believe (i don't keep close track of ages as much), he has mobility issues (no feeling in the feet and weak legs, which has him bed and wheelchair bound when going to appointments), I suspect dementia on top of his naturally demanding and shifting personality (he's always been that way, but the stroke he had years ago and this possibility make it magnified and predictable, but not easy to deal with). He needs a lot of physical care, but refuses to do some things for himself unless i aggressively refuse (which is psychologically harming me and not him). Also I'm not as strong physically (even with exercise) as I was in high school. It's hard to shift his weight in a sling these days and I no longer what to do that much longer for both of our sake. Mom is 70 something, has arthritis in the hands, has to use a cane intermittently for knee troubles, and possibly dementia or something slowly creeping up on top of her natural personality similar to dad's but not as frequent (she's a little easier to deal with these days). She has limited hand strength, but is able to cook, do a little dish washing, and sweeping. Her mind is ok enough to do dad's medicine, take care of bills and she's able to get around more with my assistance to drive her to appointments, errands, etc.
Knowing this, exactly what is the experience you may have had with calling an AOA (Area on Aging). What happens? How much of my or possibly my brother's involvement is necessary? And if say they need to place my parents, could they place them in the same facility or is it a chance they'd be separated?
Any answer can be helpful. I'm really trying to get a good idea of what may happen. I may not like, or even stand them at times, but I am not the type of person to be a "butt" and abandon them. No matter how much I feel that, I cannot bring myself to do such a thing. It's the decent thing I can do for them as human beings.
One last thing, if there are other agency I should investigate that you may know of, I'm interesting in hearing it. I have to balance this fear with some rationality. Thank you all.
Keep in touch and let us know how things work out.
Carol
Cmag the reason I brought up my brother is, if i decide that I want not continue with the overseeing of their care (and I have no legal obligation to), the ball may fall in his court. There is a possibility he may or may not be able to handle that responsibility, and it would be important that someone professional will completely monitor the more important parts of their care and other processes we may not know about.
I want to arm myself with information, before I decide to talk with my parents and my brother about these plans. No one knows what I plan to do yet, and I want to keep it that way until I'm sure I have something in place for them.
I'm tired, I'm going go back and rest. I'll update this discussion with whatever may come up.
I was actually caught off guard for the call, so I was mostly awkward and nervous the whole time. I told the agent I would take the information and talk with my parents and come up with a plan and would return the call in a week or so.
Since I've mentioned in general needing to do this, there has been nothing but a very sick and nagging sensation of fear, guilt and possibly obligation about needing to tell them. On one hand I just want to run like a flood and the apocalypse is chasing me. I don't want to deal with the whole process of telling them and witnessing their reaction or lack thereof, and also what may happen when I tell my brother about this. Realistically, I am the only who knows what is going on around here, and the only one who cares on a human being level about where they should be placed. This house is no longer fit to me. We've had floods the past few years (this may be the last one as the backyard was dug), We've got 'critters' of the night kind, and add on to the fact, the house is small and inadequate for real care. I'm not able to keep up with the chores, changing and other things have me in tears when I walk away, and I say to myself outloud that this is No way to live and they really need to be elsewhere.
This whole thing has kept me up some nights crying, wracking, and pondering a tactful way to say what needs to be said.
Then there's the move. As I mentioned before, regardless I plan to move. May will be the month, and I plan to move to another state. It's imperative I may sure I do things with minimal damage before I leave, because when I move, I will cease contact to people here. I want to make sure the process is ok and they are going to be taken care of, but that part of me just nags and nags.
I'm going to do some drafts of what I want to say, when is the deciding factor. Thank you for reading and I'll update again soon.
Carol
I will post a few more major updates soon. Thank you.
Good luck with moving forward out of and away from the FOG!
When i got back home Saturday before dark, they wanted to talk to me an hour after. My dad brought up a purpose dear to my heart, and they both..or least he said he would support me in whatever I chose to do. He said he would take me to the doctors, etc, when he got up on his feet. In the moment I was awkardly overjoyed, but smiled and nodded. It was a bit eurphoric. Then I talked with my closest friends and as I did, I was thinking about what dad said, and how it seemed...odd he would wait till now to mention his support. They were disappointed I didn't communicate with them, but I learned from all I've been through, that I couldn't trust them with what was going on. Yesterday, though, i was open and honest. My intuition is poking me and I'm keeping alert. I would hate to have trusted a certain percent only to find out they used the one thing I really care about as a vice to keep me here or near. That's...that's my straw if it's true. I'm mean that's very low to me.
Today though, not wanting help to come in and condemn then out of their house is what they worry about. It's not that bad, but there are hazards. If help came in and saw what I see in the basement, they may say something or not.
I don't want to be blaring opposites of my parents. I've been working hard to balance out the opposite, while not being overcompensating for the bad. Don't know if I said that right.
Currently I need to figure this out. It's taken focus off my plans, and I still have ends to sort. Thankfully I have supportive friends. My brother..I'm not sure about. But it's hard to see. I'm in the kitchen, and I stayed in the heat so long, not sure what it feels like to sit on the window sil and cool off. I'm going to journal a bit, but this update was important i believe.
Floods? Basement? Fog (in brain?). Is there mold? Let people come in and see, do not be afraid or try to keep this from the people who can help. One cannot will themselves to do something if they themselves need help to function or are ill.
What would happen if you called The Red Cross and told them exactly what is wrong?
From that point until today: The first day assertive, but dwindled into heated discussions about “abandonment, not discussing this with them (which was why I was there in the first place), and a downplay of my goals to move to a completely different state ( because they and my brother feel I'm not ready because of lack of experience). The last half was a “touching” discussion about accept of something unrelated that's personal to me and their pledge of support when they become able if I stay and help them further. Sunday was another discussion about what I planned to do (there's a lot of pressue on me lately since that) and I told them I need more than a day to think about this. Monday flate out refusal for me to call outside people for help. I mention earlier to you all about the basement. We've had flooding for a few years (total 4 I believe). There has been some damage, and I and my brother and some other had cleaned up these floods at alternating times. My parents refused to pay for professionals. It's possible to go down there now, but the walls and other things I cannot reach are growing mold in some places and that concerns me 1. I have asthma that is under control for now, 2. that can be a problem as the furnace circulates through the vents, 3. unsavory critters, and 4. If some how I got help here, It would not be fair to have a caregiver here knowing the basement where they need to do laundry, has some issues.
The good news is, it should not flood anymore since a recent overhaul to the offending pipe. However there is a lot of junk and clothes that are still there, that need to be tossed. Because of what I mentioned to my parents that day, mom is in complete fear of losing this house and having it condemned. The house is not that bad, but something needs to be done. She said they can pay for professionals to clean it, and I asked her honestly, If she pays that much money now, how is she going to pay for a caregiver. That's why I suggested nursing home which both browbeat me about. My dad is not horribly bad, but he needs more care, space and other people to interact with. Mom would qualify for assisted living, but since they are married it would be an issue to separate them. I suggested she could go with him and be his support and voice, since at times he stutters or just has trouble getting his point across clearly. This has caused a lot of heat early on, my brother felt that they were not ready, but he has not been here physically caring for my dad. He would watch him, while mom and I are away and I'm grateful, but he will know soon enough what I'm dealing with.
After constant pressure and seeing my mother cry (I don't deal with women crying very well) I decided to stay and see things through. I'm not happy, however I feel if I left it would be dumped on me because I'm skipping duties.
Lastly: My dad want us to have a family meeting Sunday and wants me to discuss with my brother what he needs to do. Basically delegate. I do not and have not ever felt comfortable talking with my parents. They say I don't need to be afraid, I can trust them, but I've fallen for those words before. I'm not dumb and my intuition is saying “warning”. So I'm giving them the benefit of the doubt, and proceeding with caution and half trust. I would really like this to be easier and be done and I can move on. But things are always blocked when I want to move forward. No matter the path, there is always a roadblock and I don't have to strength to figure it out. So I have to stay back and 'go with the flow'. I know fully that this situation won't end until they both pass on. As long as they breathe the hooks, the spirit grab is always there. Dead people cannot pull you don't in the same way. It's just you and you alone.
I hope this helped, and I hope it makes sense. My thoughts are abit scatter and fuzzy these last few days. If you have a question, I'll answer as best as I'm able.
I cannot keep doing this a whole lot longer, it's not fair to anyone that this situation goes on, but I seem to be in my own corner about this. I've been so discombobulated about the dicussions (talking wears me out), that I've had to toss my plans to move aside and my confidence in it has dropped to the floor flopping like a fish waiting for water again. I'm feeling “Whatever happens, will happen” I get tired of the fight.
Please don't feel you have to answer or explain this note. Take care of yourself, first.
This is not a power of attorney, he can only manage their social security, and not other assets. He would go to the local soc. sec. ofc. with your parent.
If, however, you call Adult Protective Services, they will come out for an evaluation, and this would be the time to open the basement door. Calling them would be a last resort, because protocol requires they first send out the sheriff, police to inquire of your safety. Would it be better to plan to preserve your parents at home as long as possible by making it safe to live there? Someone else should do this, not you. Then help can be brought in. You are still free to leave anytime. If you leave, call Adult Protective Services to report they are alone and unable to care for themselves.
If you end up not going right away, at least you are organized.
Baby steps.
Many prayers for your and your folks! Let us know how it goes!! We are with your decisions!
Keep packing. Be safe and happy today.
I've been packed since last month. If i can get myself moved out late this month (for practical reasons) or early June, I would leave with only necessities and one piece of entertainment. I have a large duffel I have pack and keep rechecking to make sure it would be too heavy, and an overstuffed bookbag that was filled with necessary electronics items (I had to unpack it because dad had an appointment to day). The entertainment item is something i need to figure out how to take with me. I don't want to seem very odd with a load of electronics and a fat bag. So I'm keeping a check on that end.
Home. While I keep low profile on still planning to leave, my dad is trying to rally things together. I'm in an honest wait and see on that. He has gotten himself into his wheelchair without using the sling (At point it could have gone wrong, but his arms are stronger than they were last year). I'm not comfortable with him doing that, but I decided not to stress myself worrying about what happens right now. I'm letting him do what he needs, and letting them figure that out, and I'm keeping my mouth as closed as I can. A uh huh and nod, and move on.
Brother is coming Monday for our family meeting. I'm interested in what may happen, but I need to be smart and keep an open mind, but still protect myself incase there may be a wrong.
Also keeping my head sane has been a struggle the last few days, because of some memories coming up. Whatever does happen, I know for a fact therapy will be my number 1 priority once something opens up more.
Vicky, I'm actually going to try again after this next week to tell them. But I do need to stand a bit stronger. Even though I crumbled a bit at the end before, I did surprise myself at how long I was able to manage in general. Once I get tired though, it's hard to keep my head up against the odds. Also I need to find a laundromat as I really don't know where one is around here. They aren't common in my particular location. It may be a drive, but I will keep washing until I leave.
I want to know. Let's say I stand up and do end up moving out. Is it possible to still call APS to do a check on my parents to make sure they are cared for? My brother said he would stay in my place if I should leave, but I have this inkling about that. I don't want make a "fulfilling prophecy" of anything horrible, but this year the gut, the intuition is definitely fired up and won't back down until I do something.
Also bless you all for your contribution, as I said I am reading and putting things together behind the scenes, and plan to do something this month.
Why do people do this to others? I'm just feeling some kind of way right now.
Well, foggy parents as I like to call them, hate to loose. For them, it is not important how they play their game as long as they don't lose. To an emotional blackmailer, keeping our trust, respecting how we feel, or being fair does not matter. The usual give and take of a normal, healthy relationship does not exist for them for it is all about them, what they want, and their getting what they want for themselves.