What can I do to help my Dad? Last September my Dad was fine. Little to no evidence of dementia. Then in late Sept/Early October he was hit with a UTI that took a while to identify. The UTI battle continued until February when they finally killed the sucker and gave him pills to keep it away. During this time frame he began to have dementia that continue to progress significantly over the months. In August he had no problem managing his IPad, now I have to do it for him, he doesn't remember the day of the week and asks me constantly what day it is. That sort of thing. I'd hoped when the UTI went away his cognitive ability would improve but 2 weeks later he's still the same. Any suggestions on what I can do to help him?
Many older people's minds have trouble bouncing back from a hospitalization, as the drugs don't seem to clear out very quickly like they do in the young. More hospitalizations make this worse. This is when a caregiver becomes familiar with the concept of "sundowning", as the confusion is worse in the evenings.
In trying to find a sitter for my mother, one of the interviewees mentioned checking into a UTI for some of my mother's confusion. I was skeptical as it seems so unrelated, but found it out to be the source of not only the confusion but increasingly bad urinary issues, which cleared up when meds were given.
I'm guessing that the UTI's tend to repeat because our dear ones' toileting habits have become less careful, and it is not something any caregiver jumps in to do without being asked. In my mother's case, her vision had so deteriorated with macular degeneration that she had developed a habit of looking at the tissue to see if it was clean, and I strongly suspect her reaching from the front was responsible for the UTI. I imagine diapers might have the same cross contamination effect.
In my mother's case, back pain resulted from the infection in the urinary tract when it was not immediately discovered, and unfortunately was wrongly assumed to be related to an earlier medical issue. Hence, it wasn't until hospitalization that the UTI was discovered and treated, and by then a great deal of damage had been done to the urinary tract.
My advice would be to: First, when seeing the doctor, don't assume you know what any pain is caused by...stick to the facts and let the professionals figure it out. (It might not be what you think.) Second, keep an eye (if you can) on toileting habits, especially if your loved one may have trouble "reaching around" or has visual issues. Third, if confusion arises, suspect a UTI and get help immediately.
Now of course, this is complicated by the fact that recent hospitalization may have caused the sundowning and some dementia, so I would imagine you wouldn't suspect the UTI for awhile, as they should have treated any such thing in the hospital, hopefully.
All you can use is your best judgment, when your loved one can't clearly tell you what is the matter. Most of us are ill-prepared for these things. A guessing game, indeed.
Great comments from everyone here.
Carol
When my mom died several months ago my cousin was unable to attend the funeral. We found out that she had all the sudden developed dementia over the summer according to her grown children. From what we were hearing it sounded like she had actually had a stroke during the summer and showed no signs other than mental decline. She is 74, heavyset, and has diabetes. The decline was almost overnight but her kids had never considered it. Perhaps you should ask you doctor about this possibility as well.
You will find that this entire illness winds up to be a constant guessing game.
If you go online they have a list of medicines that can cause dementia. Alergy meds and many anti parkinsons medications
She had been showing signs of mild dementia previously but I think this episode caused it to escalate dramatically. She now has good days and bad days depending on a lot of factors: how much sleep she has had, how well she ate that day, what pain medication she is on etc. etc.
Unfortunately, my doctor won't do that over the phone because she wants to culture the sample to prescribe the 'right' antibiotic.
Also, try Googling 'Do UTI's in elderly cause permanent damage'
As a person in relatively good health who has experienced many UTI's I can tell you they are not only painful, but for me they are 'scratch your fingernails across a blackboard' annoying painful. After only ten days of antibiotics, I'm exhausted.
Was he on any other medications to help with the pain of the UTI? When I have one, I'm given perydium.
Another possibility is he's just tired. You don't say how old he is, but it takes time for the older body to recuperate. Four weeks may seem long to us, but his body is telling him to rest.
Definitely keep hounding his doctor and telling them over and over and over that this is NOT usual for him -- that this is NOT how your dad was before. Have they done an MRI on his brain?
me. All the best to you and your dad!
me.
As for UTIs causing permanent damage, infections in the elderly can cause huge issues, so I suppose that's not impossible. Do check out all possible side effects for the new meds, though. A pharmacist is your friend when you need to do this.
Carol
Does anyone know if UTIs do permanent damage to the brain?
Please let us know how you are doing.
Carol
The first nursing home she was in for rehab for a broken bone did not seem to understand that UTIs can cause huge behavioral changes in older people. Some doctors seem to not understand this either and yet it is so common. The first thing I would look for is a UTI and then proceed with tests for a stroke or dementia...but with my Mom is always has been a UTI and it has been such a battle getting doctors to even understand this happens. Her current doctor won't even prescribe antibiotics if the home nurse gets the urine to the lab and the test results positive for a UTI because he wants her to go to a urologist first because he " can't handle" her having a catheter that the last hospital sent her home with due to a back wound that happened in that awful nursing home for rehab.She is pretty much bedridden. By the time she gets in to see a urologist she could be in delirium again. Make sure you have a cooperative doctor on board that will prescribe antibiotics if the urinalysis is positive, which most doctors would do.