What do I say when my father insists he can eventually live on his own?

I don't think there's anything wrong with chatting cheerfully to your father about new cars, new furniture, garden design, adaptations to make his home more convenient or anything else that he likes to dwell on. Just at intervals remind him that this is all hypothetical, subject to his being signed off A1 fit.

When he asks you to buy items, say you'll make a note. You can even do that, if you like; then if he asks about a certain thing again you can show him that you haven't forgotten.

It's harmless playing along: comforting for him, much less stressful for you, and no more deceitful than discussing what you'd do if you won the lottery.

I also agree,, with agreeing with him! He may easily forget it, and if not while you are making plans he Is happy. My MIL is in a MC, and always says things like this,, and "don't forget to take me with you when you leave". Heartbreaking, but she forgets soon and its possibly harder on the family than on her,  Her roommate also asks us to take her with us..but she has no idea who MIL is , and they have been roommates for 3 months now.

Thank you for the advice. I don't want to lead him on, but as you all said, there isn't any harm at this point. He was so independent before the stroke, so I understand how hard it is on him. he blames the facility for not being able to leave. He thinks they are intentionally not helping him get better so they can keep his money. It's hard to hear him talk so bad about the nursing home when they have done so much for him. I try to just listen but sometimes I have to speak up. He was going on about how all the women in the facility probably didn't work or pay into social security so they are using his money to pay for their care. I told him that was not true because I just could not sit there and let him talk bad about people he knows nothing about. That's when he got mad and said he wasn't going to talk to me anymore because I argue with him. I never knew how difficult it could be to have a parent in a nursing home. I'm grateful to have found this forum for support.

Dear Bobbi,

I have to agree with Countrymouse. I would try to placate your dad and play along for now. There is no harm. I think its harder for men. They value their independence above everything else. Maybe by playing along you are giving him much needed hope and encouragement to just go on.

Strokes are so devastating. My dad thought he could drive again and for awhile I had that wild hope too. Try to spend as much time as you can with him. As you said, you never know when the last day will be. Make each day the best you can. I wish I had...its a major regret.

Oh dear.

Has your father's doctor assessed his mental state? Just wondering if anyone's considered treatment for depression, which is very common post-stroke.

I can't blame him for wanting to find things to be angry about. Very rough on you, though - and trying to the patience, too. But I'm sure the staff will be taking his comment in their stride as something that just goes with the territory. Hugs.

Catalogues. Lots of catalogues. And make lists. That might help with the stuff. And if they include the prices, you can also (tentatively) see if you can compare what's on his bank statement with what sort of bills he's planning to run up. But do this gently, and stop if he begins to get upset. It's not about the money, as such. It's about the reality of his position. If you successfully spell it out to him, making him see what's real, that in itself could be quite upsetting. Well! - wouldn't you be upset if it were you?

Oh gosh. I'm so sorry that both you and he are having to go through this.

Rest your mind that you can either encourage or prevent his thinking that he is able bodied and could get well enough to go home. It really does sound as if his brain's ability to retain, process and retrieve information has deteriorated past the point where anything you say makes much, if any, difference to what he understands in the present moment.

And the refusal to participate or to socialise: well, that could be "there's no point, I'll be out of here in five minutes." But actually, it's far more likely that he hasn't the energy or the mental ability to handle what are quite demanding activities when you break them down into their component parts. Still! - you can encourage them as far as possible; especially things like not eating alone, making sure he does use the shared spaces and the garden if there is one. Tell him that there's no time like the present, and if it's a nice day he may as well make the best of it while it's there.

Have you, yourself, just privately, discussed his prognosis with anyone?

Why not make him happy by planning this? A goal in life is so essential

Help him create milestones to this goal. Goals for rehab, but also as another poster remarked...goals for the creation of his home. What he needs to assist..medical equip, aides, etc.

I see a lot of benefit to him doing this and giving him life goals.

I think that telling someone he or she can't do something, such as going home, is harder for an older person to accept, but is similar to parents telling their children they can't accomplish a specific thing, or doing something else that inadvertently discourages the child, withers his or her self esteem, and produces resentment.

I've found that it's better for both parties in a conversation to give encouragement, albeit false, and this especially applies to older people. Sometime ago a co-worker suggested I was old enough to retire and stay home, so why was I still working? I thought she was quite stupid to make such an idiotic comment. I was only in my 60s at the time.

Since then I've been told that I'm getting TOO OLD to garden so why don't I just turn my garden into a (high maintenance, non energy efficient) lawn. These are to me stupid questions and suggestions, but I also found them insulting. I've also noticed more people asking to help me carry out my laundry, pack my groceries, etc. And I'm only in my 70's. There is that presumption of older women becoming more frail, I suppose.

So I think that being truthful and realistic is not always appropriate for us old folks, but especially so when someone's facing recovery from what could be considered a catastrophic medical event. I won't deny that I fall into this trap myself. So I'm trying to focus on what CAN be done, and providing encouragement all the way. And it's not always easy to deal with unrealistic thinking.

But it does create a better mood and relationship.

One thing you could do to stall the attitude your father's is developing is ask what he thinks SHOULD be done in therapy - what does he want to work on? Then make arrangements with the therapist to focus on those aspects, and complement him even if he's not making much progress.

Getting his mind to focus on positive outcomes can be a major task, but could be the trick to rehab (assuming his regular doctors haven't ruled out recovery of his functional ability).

In the meantime, what did he do before the stroke? What are his interests? I've had some success in rechanneling activities into ones in which only decisions are required. I.e., Dad gets a lot of junk mail, including cards, some of which are quite nice.

We both have more cards than we can use, so I've called the local senior center, the VA, and I believe at one time the United Way 411 to find places to donate cards. So we go through cards (therapy in itself b/c of the beauty of some), choose ones for the VA, others for various local rehab facilities, some for the senior center to sell at low prices.

We also select cards to send to people who help us; the process of making those decisions and seeing the beautiful designs is uplifting and helps stabilize our moods. I'd like to add a project to send cards to our military men and women, especially those in country. I began this a few decades ago and really felt as though I was making a contribution to their morale.

Another thing you can do when he wants something specific, is not only provide a catalogue of lots and lots of items to review and on which to decide, but tell him that his funds are a bit short this month and you need to wait until next month's SS check arrive. Then of course you'll still short on funds the next month.

Redirect and substitute.

And kudos to you for your insight in recognizing the elements of the current situation.

CM, your post included suggestions I also thought of but foolishly lost when I checked Bobbi's profile to see what state she and her father live in. Thanks for suggesting the catalogue issue -it's exactly what I had written, plus other topics which I can no longer remember. I'm glad someone else is on the same wave length and posted while I was goofing up my own post!

Bobbi, like MacArthur, I shall return, when my mind is capable of remembering what I wrote.

I do have one question though, and that's what kind of nursing facility is your father in? Is it a rehab facility, skilled nursing? I ask b/c I'm wondering if he's getting stroke therapy that could be enhanced by a different facility that has a specific stroke program.

When I had knee therapy at the Rehab Center of Michigan (part of the Detroit Medical Center complex), I saw patients there with severe mobility injuries; one was on crutches and looked as if he might have had a stroke from the way his limbs were so rigid, yet he was struggling and successful in getting out of his wheelchair and onto a therapy bed for a workout.

At another facility, also a hospital facility, I saw another patient in some kind of stroke support cage. It extended up almost to her shoulders, with a ring around her body for holding onto. There was another ring at the bottom, spaced to allow foot movement. I think both rings were not only for support but also protection if she fell, which she probably wouldn't have b/c 2 therapists were walking with her.

I've tried to find a similar device to illustrate this technique, which I've never seen in any ordinary rehab facility, but was unsuccessful. I did learn though that some stroke specific therapy places have similar support devices for rehab or for therapy for neuro degenerative conditions. Google "universal spider cage" and you'll see examples, although these aren't like the "walking cage" I saw.

Some of these hospital affiliated programs have really top notch programs, specifically catered to stroke rehab. They're well beyond the leg lift and arm lift exercises that are literally a staple of elder rehab.

I was wondering if there are any such facilities in your area.

You might also call local hospitals, especially if they're teaching hospitals, and ask if there are stroke support groups. There's one in my area. This might help provide support for you in connecting not only with other stroke survivors but their families.

I would also wonder just how realistic his goals are, especially is they're set with the assistance of a SW. My experience has been that PT and OT set the goals. Are the SW's assisted goals more social and for re-integration back into society and to home than physically oriented?

Bobbigrl27, from what you had written, I think I am seeing some signs of dementia starting with your Dad. Especially the way he is talking about the Staff in the nursing home. Either it is that or gossiping.

Thus, if dementia is starting, you will find that Dad will continue to talk about going home, but eventually down the road home will be his childhood home, back when life was innocent and fun. It took me a while to realize that with my Mom, when she was in a nursing home, as I thought she was talking about the house that she and Dad had owned. Until one day she asked if the cattle were out in the field. Ok, now I know, as the last house she lived in where there was cattle was her childhood home. I let my Dad know about that so that he could play along.

My Mom kept falling out of bed, as her mind thought she could stand and walk, but in reality she couldn't.

So while your Dad is planning on moving back to his previous house, setting it up to be his home again, it is best to play along, as that limits any arguments trying to to get the patient to believe that is not reality. If Dad wants a new cellphone, tell him you can't get to the store until next week, hopefully he will have forgotten about the cellphone. Just keep making excuses for not taking him.