I just started caring for my mom and I am trying to keep my job. My sister lives 30 miles away and hasn't even invited my mom over to her house yet even though she has been in this area for 3 months. I am doing the vast majority of the work, cleaning, cooking, appointments, shopping, washing, exercise, etc. Sister has come over twice to go to the doctor and dentist and once to take her shopping. I have taken Mom to doctor 8 times and I have taken her shopping more than I can count. I need a break. Should I ask her to take mom at least for the day to her house to hang out so I can have time to myself? She refuses to let her stay overnight at her house. She gives some lame excuse about stairs, but my mom wouldn't have to use those stairs. She hasn't even invited her over for lunch. What is the deal? I am too tired to write anymore. I really need help. This is killing me emotionally, physically and financially while my sister just goes on her merry way taking trips, classes, doing everything and anything she wants. Frankly I hate her. I don't think I can get passed any of this. I just imagine being dead all the time. There is no way out. I hate my family.
anyway, I will keep posting here, it helps. some of the comments I felt were a little harsh although I know they are well meaning. please be gentle with me. I am having a difficult time and I am well aware of needing to reach out for help, etc. but I don't need to be reprimanded for not doing things that are suggested or doing them quickly enough or whatever. that doesn't feel helpful to me. anyway, thanks again. I am going to try to get to bed early again tonight.
It is now three months later. The doctors say that she has recovered well from the stroke and that she can live on her own. She has no cognitive problems. You are overwhelmed with having someone living with you, and you also don't have the energy to explore other options.
The one option you are stuck on is having help from your brother and sister. They are not willing to provide any hands-on help, though they do provide small sums of money. You seem convinced that there must be a way to get them to help you. Your family was dysfunctional while you were all growing up.
Is that a pretty accurate summary?
Annabelle, some of your posts have sounded desperate. You are clearly very distressed over this entire situation. I am glad to hear you say, "I was thinking of calling a mental health counselor for myself." Reaching out on this forum was a good start but I'm afraid it isn't enough. Seeing a trained person face-to-face is the next step. Annabelle, you DESERVE a chance at happiness. You deserve to enjoy the love you have for your mother, without so much stress. You deserve support in this distressing situation. Yes, you are very tired and getting yourself into an appointment will be tough. But you deserve it!
Please keep posting here. We've come to know you a little bit and to care for you. And also reach out to professionals.
Let me share about my sister and me. My sister's relationship with Mom was always much closer than mine. She lived a life style closer to that of my mom's and they did lots together. I was seldom invited. As a matter of fact, I was told I was not welcome at my mom's house unless invited...and the invites were few and far between. I know they both love me, but my focus was always my children and their focus was different. When my mom was diagnosed in 2009, my sister would go over with my mom a few times a week to help her and our step dad out. I offered but was not wanted. As my mom progressed, they decided they needed my help more and more. At times I could offer once a week, sometimes more. It was a bit challenging. I had a husband (who my parents didn't love), 5 adult children, grandchildren, and a full-time job. One daughter was living out of state and I was making the 7 hour drive every other week to go there and assist her family. My mom lives 45 minutes from me so to go pick her up for the day involves 3 hours of driving...there and back twice. She was welcome to go to work with me or come home with me but picking her up and getting to work on time was tough. At that time, my step dad didn't want us to come hang out at the house...just take Mom away for the daytime. It was challenging but I did what I could. My sister was always frustrated that I didn't do as much as she did. I felt bad, but was doing all I could. Mom progressed further (about 5 years ago) and my daughter's family returned to our area (her husband had been doing a medical residency). I was able to help more. My sister could handle less, emotionally. Now I was going more, sis less. Mom had a couple if falls, no injuries, but my step dad couldn't get her up. Now he knew he needed to let me help more. My employer allowed me to go to working mostly from home. My husband and I started staying at their house nights, then bringing mom to our home in the daytime. It was killing us going back and forth and mom was getting much worse. At that point my sister was helping once a week, then she called and said she was ill and couldn't help until the doctor cleared her, that was 2 1/2 years ago. She has never started doing any set days again. A little over a year ago, we moved mom into our house. At this point, mom is totally bedridden, she talks or yells all night if I am not in the room (I have a recliner). She has to have her briefs changed every 2-3 hours as she is totally incontinent. I give her a bed bath twice per week. She has to be hand fed and given fluids, with prompting to swallow. She says mean things to me but I just respond, "I love you mama" and continue on. My step dad comes twice a week to visit for about an hour. My sister has come 5 times to visit. I understand that she just can't do it... Emotionally and physically... And it is okay. We each have done what we could, when we could. I don't have any expectations of her. By the way, we have a brother too. He has seen mom maybe twice a year.
I guess my point is that you are only hurting yourself by hating your sister. Don't wait for her to help. Focus on finding ways to deal with mom's situation and still keep your life. You can change your decision if you need to. Medicaid is there to provide for her if you can't. Look at day care, or in home care givers.
Good luck and don't push yourself past what you can do. Take care of your self too.
Regarding those pesky neighbors! In most towns and cities, there are noise ordinances, usually 10pm, and you can call the police to shut them down, if they really keeping you up past a certain hour. I'd definitely call them, if they don't lighten up! The police can explain that you are caring for a vulnerable senior, so "have heart, huh?" It can also be anonymous if you prefer not to engage in them.
I know that you have had lot of helpful suggestions from the senior caregivers here, and believe me, they have been a lifesaver to Me, many a time! They do all means well, and some of their suggestions might work, others may not, and nobody expects you to "get um all done", in any sort of time frame.
Heck, I've been on this website for 7-8 years now, reading, asking for help and ideas, in the caring of my own FIL, who has lived with us for 13 plus years now.
Finally, and this weekend in fact, he is moving into Assisted living, just a few blocks from us! So yes, things can change, but they often do take time, and depending on your own timetables yourlifestyle, your own frustration level, and what you can put up for, and for how long, things can, do and Will get better! But you do have to keep reaching our to other, here and in your community. My husband's 2 siblings are a joke, and have Never been any he to us, Never, so I totally get your anger there!
Have you considered selling your Mom's home, and putting her money from the sale towards her care? Maybe she is well enough to live in a Senior subsidized Apartment, or go into Assisted living?
That would surely get her more independent of you, and you of her, more importantly, so that you can get back to living your own life, and resuming your "normal" Mother/daughter relationship?
This is something we are very much looking forward to, just being able to have a life of our own, after caring for our 4 parents all these years, and after raising our 4 kids to successful adulthood! Of course we will still be looking after my FIL, just in a different way.
Finally, my husband and I will be able to work on our marriage, which actually needs a lot of work, as we've spent the last 32 years caring for our family! I sure hope I still even LIKE him, once the focus is on us, rather than on others, Lol!
Just know that you are not alone in this crazy caregiving role, and to give the kind folks here Big Thanks, for even offering great suggestions, and for the Awesome friendships you will find here along your caregiving journey! I do see that you have done this and shown your appreciation!
From one mutual caregiver to another, God Bless, and Take Care of YOU! Love, Stacey B