My siblings and I recognized mom couldn’t live alone any longer. She refused to consider independent living in a senior/graduated care setting so is living with me. After one month, it’s clear the correct decision has been made - but I had no idea how bad she was and in one month seems to be getting worse.
We've ignored and/or gently indulged her memory issues but today she wanted me to search my closet for a purse she has misplaced. I reminded her that we had done this together last week. This purse was a gift she received more than two years ago, she has never used it, and when we were moving her out of her home she was considering giving it away. She misplaced it or may have inadvertently thrown it out, but she’s alternately convinced I’ve hidden it or that it is at my sister’s house. (It’s not). At any rate, she became very defensive, angry and then embarrassed and apologetic and then just shut down. We’ve been planning a trip to the doctor and that will happen - but in the meantime do I indulge this behavior? She forgets increasingly important things and is making up stories which is not at all like her.
Read the 36 hour day.
Yes, you indulge her, because there's really nothing else to be done. You won't be able to fix her memory problems, so more and more you'll have to let her take the lead with her version of reality and learn to make white lies to satisfy her desires for things that aren't real.
My mother invented a new husband when my dad died, ro for two years now we've had "Dan" as part of the family. I even went through the resentment of having my mother replace my dad with a stepfather I not only don't like, but I also can't see him. Still, he's real to her, he makes her feel safe especially during Covid isolation, and I've learned to live with the fact Mama doesn't remember her real husband of 66 years. Her reality is all that matters when we're together.
May be too early for that now, but an idea for the future if the loop on purses continues & worsens.
Having giving a little perspective from the other side of the coin, just repeat and repeat as much as needed. It's the loving thing to do.
FYI, since I started forcing myself to eat healthier my memory has improved and I now have a circle of close friends who understand as we all have the same problem. Lots of great laughs over it. Hugs and best of luck for you as you walk this journey with your mom.
THEN, if we choose, we can reshape our own language accordingly, and be more at peace with what we’re dealing with in our LOs.
I’ve become terrifyingly aware of this during the Pandemic, since I have found VERY FREQUENTLY that I myself lose track of a thought before I finish a sentence.
I’m fairly confident that I haven’t begun to experience cognitive changes that are causing this, but depression, loneliness, boredom, fear, and our present imprisonments seem to result in that effect.
If a LO has received a thorough, compassionate diagnosis, and dementia has been confirmed, I find it so much easier to overlook, finesse, white or pinkish “creative fudge on truth”, and just admire the fact that my LO still has some semblance of her personality left after all she’s been through, than try to hold her to the line of verbal accuracy.
The last time I saw her or talked to her (early October) in an outside visit, she was cold. In her healthy pre-dementia life, she was ALWAYS COLD. During that last 20 minute visit, she said “I’m cold” approximately 14 times. Thinking back, I savor the fact that after surviving Covid the first time, she could STILL, at 92, comment accurately on her circumstances with the expectation that someone would help her get warm (we finally did).
I was a speech therapist before I was retired, so I may just overthink this, I admit.
You have to learn to redirect. You have to learn to go along with some of the things that she believes. (If she thinks there is a child in the house, is is a boy? what is he doing? what does he want? can she talk to him?) As long as she is not frightened by her beliefs, as long as it is safe to "go with the flow" then go with it. If it gets to be a bit much for you do not argue just leave the room. (as long as it is safe to do so.)
If this gets to be more than you can handle forget about her resistance and look for Memory Care for her. (Particularly if she begins to get violent)
Who knows where the purse is but it's not going to hurt anything just to look again or have your mom look
If you remember what the purse looks like, look to see if you can find one very similar and say - this was in a box, is it the one you're looking for. There is every possibility she remembers, in detail. a purse from several years back. The mind gets erased from present time to past time. So she won't remember you just looked in the closet but can remember the details of wallpaper she had as a child.
So, yes. Indulge. You aren't 'giving in', you are accepting the situation as it is
Please let her doctor know about your mom's symptoms and her reactions. Your mom may respond to medications for Alzheimer's disease or may need some mild anti-anxiety agents if she is getting upset all the time.
There's really nothing you can do. No corrections to her memory of events, or people's names, just try to move the conversation around to something else. If it's driving you nutty, and it can, you can always leave. I know that sounds mean, but I'm kind of all about self preservation and it doesn't help to listen to the same old, same old talk, or worse yet, see her struggle so hard to find the right names or sequence of events. It's frustrating for her.
That said, when I moved my Mom in with me I needed to learn how to deal with my Mom's thoughts and words and not only did this forum help me but watching the Teepa video's helped me as well. It's important to acknowledge your Mom's thoughts and then redirect.
Your Mom can't help it and you can learn how to react to her so she doesn't get upset. Stress is the worse thing for an aging person.
Best to you,
Jenna
I even wrote a book about my husband and I taking care of her called, "My Mother Has Alzheimer's and My Dog Has Tapeworms: A Caregiver's Tale" I also address the lying issues in the book. At first, I tried to push her into reality, but it was easier, as other people have said, to just go along with her delusions and illusions. "Ill"-usions is an appropriate term, since Alzheimer's is an illness after all. I reached the point where if she thought she had played golf with Tiger Woods, I let her go along with it.
I hope it gives you some comfort that you are not alone. It sounds like you are in similar place as me five years ago. Let me ask you, what will you gain by calling out your mother’s memory loss? Will that help her remember? No. It will just add to her stress. It’s a real mind shift to let that go. It takes practice.
A visit to the physician for your mom may be helpful, occasionally confusion is caused by something that is easily correctable, like b12 deficiency, hope things improve for your mom
To learn how to accept that these changes in our loved ones are permanent, that we cannot turn back the clock and that we must always respond with love and complete acceptance. Very challenging but embrace the support I find here.
This is what 'time - outs' are for - regroup, find one's balance (emotionally), return to a state of equanimity.
Really important ! Make it the MD, the DMV.
Before you get too mad at her—-
Remember what it feels like when you have misplaced something important to you. Maybe that thing wouldn’t or shouldn’t be important to others, but it is something you like. Do you ever obsess and overly focus? Maybe not, but I have done this before. Sometimes this feeling remains until the object is recovered.
She has gone through a lot of change and change is hard. She has gone through a loss of independence and freedom. Wars are fought over these intangible concepts. It is understandable that she should feel less than whole.
If you are hard on her now, she could feel like her life is useless, she is imprisoned, and her best friend has transformed into warden. You don’t want her to grow distant from you. You moved her there because you love her.
If you have kids, do they ever correct you? It is possible they are right or you are right (probably a mix), but it is hurtful to be constantly corrected. It is torture when there are incessant “mini”-corrections. Don’t be that kid for your mom.
You will both be adjusting to your new living situation and there is an inevitable power struggle as you all settle into your new roles.
Welcome her with a hug and encouragement rather that a correction which feels like a put down. Face her inevitable decline with positivity, comfort and let her know “everything will be okay.”
What would you gain from a correction? Not much. Drive a wedge between you? You will save time not looking for the purse, but instead of calming your mom’s anxieties about the problem, you will be raising her anxiety about the purse (you want that? No one cares and by the way, you will never find it, end of story) and/or raising her anxiety about her mental function (you are “losing it, mom, don’t bother us with the things you are forgetting”) that will only scare her and cause her to feel misunderstood. You may not say such harsh things, but that is what she will “hear”. These words and feelings cause us to shut down.
You invited her because you love her and want her to be happy. Be nice about the purse for these reasons.
I don’t know it all— but I know how you feel. Mom and Dad came to live with us too. Sometimes I said the right things, other times I said the wrong things. Now they are gone and I would do anything to enjoy even the hardest day with them once again. I know your position right now doesn’t feel lucky, but some day, these days will be the “good old days.”
Go hug your mom. Love her.
If she is having memory issues, instead of pointing them out, play cards. Checkers. Puzzles. Activities that are interactive, take a drive and have a discussion. A walk if she is able. These are therapeutic and memory-strengthening. Exercise helps. It works! Dementia is a “catch-all” that is overused. Mind and memory can sometimes be improved or preserved. It happened with my parents. A big part of success Is having a positive outlook. Watch a film or read together and have a discussion. Listen actively when she needs to tell you something that is important to her. Talk gently about happy times, asking her about her recollections. Ask her to help you in the kitchen, help you with some problem, some task, some advice. Thank her. Make her feel useful. Needed. Tell her you are so glad she is there. Hug her. Make her favorite meal - together. Make her feel grateful she is there with you and not alone with all the worries and responsibilities of living alone.
This is common. Indulge her. What harm could possibly come from indulging her? You’ve already seen what happens when you don’t.
Best of luck.
Doubt she really thinks you are incompetent. But of all the things she's forgotten, she has NOT forgotten is that she's "mother" and therefore knows best about everything!
Your relationship with her has changed. She hasn't forgotten that she is "mother" but, in reality, it is more like she is now the child. Indulge her, as advised by others. You must take the role of the adult. This is a role reversal that's always hard to take, but it happens to almost all us when our parents begin to fail. Don't be too hard on her OR yourself.