My siblings and I recognized mom couldn’t live alone any longer. She refused to consider independent living in a senior/graduated care setting so is living with me. After one month, it’s clear the correct decision has been made - but I had no idea how bad she was and in one month seems to be getting worse.
We've ignored and/or gently indulged her memory issues but today she wanted me to search my closet for a purse she has misplaced. I reminded her that we had done this together last week. This purse was a gift she received more than two years ago, she has never used it, and when we were moving her out of her home she was considering giving it away. She misplaced it or may have inadvertently thrown it out, but she’s alternately convinced I’ve hidden it or that it is at my sister’s house. (It’s not). At any rate, she became very defensive, angry and then embarrassed and apologetic and then just shut down. We’ve been planning a trip to the doctor and that will happen - but in the meantime do I indulge this behavior? She forgets increasingly important things and is making up stories which is not at all like her.
Teepa Snow is terrific. However, she is a professional who specializes in geriatrics and neuroscience. You will learn a great deal by watching her YouTube videos. Also keep in mind that you may reach a point where you no longer want to have your mother living with you and that is okay. Burnout is real risk among caregivers especially those who are caring for elders with dementia.
In terms of duration of time within this will unfold? Anyone's guess.
This has to be monitored and you have to ask yourself key and relevant questions:
Has she lost the capacity to:
-Bathe
-Walk
-Eat regularly
-Take her medications regularly
-Communicate what she is thinking
-Remain sufficiently cognizant of her surroundings so as not to make dangerous mundane errors such as leave the stove on, or leave sink running?
If you answered yes to any of these questions, a systematic review of her circumstances, and and honest assessment of your ability to assist or care for her is in order.
Often times these changes take place over a period of years, so it is relatively safe to say that you needn't panic, but be prudent and start researching and evaluating now.
Best of luck!
* Some people will start to believe others, even family, are stealing or taking things.
* Research / google TEEPA SNOW and learn about the different types of dementia and symptoms, and how to communicate / cope.
* Do not set up a confrontational communication, i.e., correct her. You might want to try this out and see how it goes. Be patient with YOURself. Nothing is written in stone and this is like an adventure into the unknown.
* Try responding to what she may say and immediately redirect the conversation. She will likely repeat thoughts often.
* If she accuses you of something, 'try' to not take it personally.
* There is a fine line between honesty and being diplomatic, understanding how her brain is able to function. It'll take some time. Generally, NO one is prepared for a person to lose their mind due to dementia. Family find themselves in it and often don't know what to do (I work with families).
* It might help to respond in short statements and if you feel overwhelmed or unsure how to handle a moment / situation, say you need to get xxx or do xxx and leave the room to regroup. You may need to interrupt the communication before it escalates, and you lose your composure (which you most certainly will at times).
* If I were you, I would re-consider separate living spaces. It is understandable that you may (likely) not have known what you were getting into. Now that you have some experience, consider what your needs are (incl boundaries, energy, and understand the 24/7 care needs that will continue).
* You want to take care of yourself - first. Otherwise, you will not be available to take care of your mom without losing yourself and your health, and life-style. It is important you set boundaries - and if you aren't sure what they are, do some inner exploration -
What do you need - not 'just' emotionally, physically, psychologically, spiritually? How was it before your mom came and how has your life changed?
How have these changes affected you?
* How do you feel about setting boundaries? And what kind of boundaries?
* Do know that you aren't alone. It is much more challenging caring for a family member due to the history, triggers, emotional connection.
* I've been working with individuals in various stages of dementia / forgetfulness for over 8 years and I still can get pulled in. I try to be honest with my clients while extremely mindful of their brain chemistry. If I don't have a response in the moment, I might say "I need to think about that."
* I believe 110% that 're-arranging' the truth or reality is not only okay, it is often essential. Prepare yourself ahead of time with something she might say and practice some responses.
* I'd like you to consider what you've experienced in a very short time and realize another 1, 2, 10, 20 weeks, a year will progressively change. Consider how your roll and responsibilities will be and how your life, and the quality of your life, will change.
* If you need, see a social worker or therapist to help you sort this out.
P.S. Don't forget anti-anxiety meds. They can be a life saver - yours. Gena.
So very sorry she is declining and accusing you. It is her illness, not you.
Hoping the doctor has a solution for her.
This is common. Indulge her. What harm could possibly come from indulging her? You’ve already seen what happens when you don’t.
Best of luck.
Doubt she really thinks you are incompetent. But of all the things she's forgotten, she has NOT forgotten is that she's "mother" and therefore knows best about everything!
Your relationship with her has changed. She hasn't forgotten that she is "mother" but, in reality, it is more like she is now the child. Indulge her, as advised by others. You must take the role of the adult. This is a role reversal that's always hard to take, but it happens to almost all us when our parents begin to fail. Don't be too hard on her OR yourself.
Before you get too mad at her—-
Remember what it feels like when you have misplaced something important to you. Maybe that thing wouldn’t or shouldn’t be important to others, but it is something you like. Do you ever obsess and overly focus? Maybe not, but I have done this before. Sometimes this feeling remains until the object is recovered.
She has gone through a lot of change and change is hard. She has gone through a loss of independence and freedom. Wars are fought over these intangible concepts. It is understandable that she should feel less than whole.
If you are hard on her now, she could feel like her life is useless, she is imprisoned, and her best friend has transformed into warden. You don’t want her to grow distant from you. You moved her there because you love her.
If you have kids, do they ever correct you? It is possible they are right or you are right (probably a mix), but it is hurtful to be constantly corrected. It is torture when there are incessant “mini”-corrections. Don’t be that kid for your mom.
You will both be adjusting to your new living situation and there is an inevitable power struggle as you all settle into your new roles.
Welcome her with a hug and encouragement rather that a correction which feels like a put down. Face her inevitable decline with positivity, comfort and let her know “everything will be okay.”
What would you gain from a correction? Not much. Drive a wedge between you? You will save time not looking for the purse, but instead of calming your mom’s anxieties about the problem, you will be raising her anxiety about the purse (you want that? No one cares and by the way, you will never find it, end of story) and/or raising her anxiety about her mental function (you are “losing it, mom, don’t bother us with the things you are forgetting”) that will only scare her and cause her to feel misunderstood. You may not say such harsh things, but that is what she will “hear”. These words and feelings cause us to shut down.
You invited her because you love her and want her to be happy. Be nice about the purse for these reasons.
I don’t know it all— but I know how you feel. Mom and Dad came to live with us too. Sometimes I said the right things, other times I said the wrong things. Now they are gone and I would do anything to enjoy even the hardest day with them once again. I know your position right now doesn’t feel lucky, but some day, these days will be the “good old days.”
Go hug your mom. Love her.
If she is having memory issues, instead of pointing them out, play cards. Checkers. Puzzles. Activities that are interactive, take a drive and have a discussion. A walk if she is able. These are therapeutic and memory-strengthening. Exercise helps. It works! Dementia is a “catch-all” that is overused. Mind and memory can sometimes be improved or preserved. It happened with my parents. A big part of success Is having a positive outlook. Watch a film or read together and have a discussion. Listen actively when she needs to tell you something that is important to her. Talk gently about happy times, asking her about her recollections. Ask her to help you in the kitchen, help you with some problem, some task, some advice. Thank her. Make her feel useful. Needed. Tell her you are so glad she is there. Hug her. Make her favorite meal - together. Make her feel grateful she is there with you and not alone with all the worries and responsibilities of living alone.
Really important ! Make it the MD, the DMV.
To learn how to accept that these changes in our loved ones are permanent, that we cannot turn back the clock and that we must always respond with love and complete acceptance. Very challenging but embrace the support I find here.
This is what 'time - outs' are for - regroup, find one's balance (emotionally), return to a state of equanimity.
A visit to the physician for your mom may be helpful, occasionally confusion is caused by something that is easily correctable, like b12 deficiency, hope things improve for your mom
I hope it gives you some comfort that you are not alone. It sounds like you are in similar place as me five years ago. Let me ask you, what will you gain by calling out your mother’s memory loss? Will that help her remember? No. It will just add to her stress. It’s a real mind shift to let that go. It takes practice.
I even wrote a book about my husband and I taking care of her called, "My Mother Has Alzheimer's and My Dog Has Tapeworms: A Caregiver's Tale" I also address the lying issues in the book. At first, I tried to push her into reality, but it was easier, as other people have said, to just go along with her delusions and illusions. "Ill"-usions is an appropriate term, since Alzheimer's is an illness after all. I reached the point where if she thought she had played golf with Tiger Woods, I let her go along with it.
That said, when I moved my Mom in with me I needed to learn how to deal with my Mom's thoughts and words and not only did this forum help me but watching the Teepa video's helped me as well. It's important to acknowledge your Mom's thoughts and then redirect.
Your Mom can't help it and you can learn how to react to her so she doesn't get upset. Stress is the worse thing for an aging person.
Best to you,
Jenna
There's really nothing you can do. No corrections to her memory of events, or people's names, just try to move the conversation around to something else. If it's driving you nutty, and it can, you can always leave. I know that sounds mean, but I'm kind of all about self preservation and it doesn't help to listen to the same old, same old talk, or worse yet, see her struggle so hard to find the right names or sequence of events. It's frustrating for her.
Please let her doctor know about your mom's symptoms and her reactions. Your mom may respond to medications for Alzheimer's disease or may need some mild anti-anxiety agents if she is getting upset all the time.
If you remember what the purse looks like, look to see if you can find one very similar and say - this was in a box, is it the one you're looking for. There is every possibility she remembers, in detail. a purse from several years back. The mind gets erased from present time to past time. So she won't remember you just looked in the closet but can remember the details of wallpaper she had as a child.
So, yes. Indulge. You aren't 'giving in', you are accepting the situation as it is
Who knows where the purse is but it's not going to hurt anything just to look again or have your mom look
You have to learn to redirect. You have to learn to go along with some of the things that she believes. (If she thinks there is a child in the house, is is a boy? what is he doing? what does he want? can she talk to him?) As long as she is not frightened by her beliefs, as long as it is safe to "go with the flow" then go with it. If it gets to be a bit much for you do not argue just leave the room. (as long as it is safe to do so.)
If this gets to be more than you can handle forget about her resistance and look for Memory Care for her. (Particularly if she begins to get violent)
THEN, if we choose, we can reshape our own language accordingly, and be more at peace with what we’re dealing with in our LOs.
I’ve become terrifyingly aware of this during the Pandemic, since I have found VERY FREQUENTLY that I myself lose track of a thought before I finish a sentence.
I’m fairly confident that I haven’t begun to experience cognitive changes that are causing this, but depression, loneliness, boredom, fear, and our present imprisonments seem to result in that effect.
If a LO has received a thorough, compassionate diagnosis, and dementia has been confirmed, I find it so much easier to overlook, finesse, white or pinkish “creative fudge on truth”, and just admire the fact that my LO still has some semblance of her personality left after all she’s been through, than try to hold her to the line of verbal accuracy.
The last time I saw her or talked to her (early October) in an outside visit, she was cold. In her healthy pre-dementia life, she was ALWAYS COLD. During that last 20 minute visit, she said “I’m cold” approximately 14 times. Thinking back, I savor the fact that after surviving Covid the first time, she could STILL, at 92, comment accurately on her circumstances with the expectation that someone would help her get warm (we finally did).
I was a speech therapist before I was retired, so I may just overthink this, I admit.
Having giving a little perspective from the other side of the coin, just repeat and repeat as much as needed. It's the loving thing to do.
FYI, since I started forcing myself to eat healthier my memory has improved and I now have a circle of close friends who understand as we all have the same problem. Lots of great laughs over it. Hugs and best of luck for you as you walk this journey with your mom.
May be too early for that now, but an idea for the future if the loop on purses continues & worsens.