My siblings and I recognized mom couldn’t live alone any longer. She refused to consider independent living in a senior/graduated care setting so is living with me. After one month, it’s clear the correct decision has been made - but I had no idea how bad she was and in one month seems to be getting worse.
We've ignored and/or gently indulged her memory issues but today she wanted me to search my closet for a purse she has misplaced. I reminded her that we had done this together last week. This purse was a gift she received more than two years ago, she has never used it, and when we were moving her out of her home she was considering giving it away. She misplaced it or may have inadvertently thrown it out, but she’s alternately convinced I’ve hidden it or that it is at my sister’s house. (It’s not). At any rate, she became very defensive, angry and then embarrassed and apologetic and then just shut down. We’ve been planning a trip to the doctor and that will happen - but in the meantime do I indulge this behavior? She forgets increasingly important things and is making up stories which is not at all like her.
So very sorry she is declining and accusing you. It is her illness, not you.
Hoping the doctor has a solution for her.
* Some people will start to believe others, even family, are stealing or taking things.
* Research / google TEEPA SNOW and learn about the different types of dementia and symptoms, and how to communicate / cope.
* Do not set up a confrontational communication, i.e., correct her. You might want to try this out and see how it goes. Be patient with YOURself. Nothing is written in stone and this is like an adventure into the unknown.
* Try responding to what she may say and immediately redirect the conversation. She will likely repeat thoughts often.
* If she accuses you of something, 'try' to not take it personally.
* There is a fine line between honesty and being diplomatic, understanding how her brain is able to function. It'll take some time. Generally, NO one is prepared for a person to lose their mind due to dementia. Family find themselves in it and often don't know what to do (I work with families).
* It might help to respond in short statements and if you feel overwhelmed or unsure how to handle a moment / situation, say you need to get xxx or do xxx and leave the room to regroup. You may need to interrupt the communication before it escalates, and you lose your composure (which you most certainly will at times).
* If I were you, I would re-consider separate living spaces. It is understandable that you may (likely) not have known what you were getting into. Now that you have some experience, consider what your needs are (incl boundaries, energy, and understand the 24/7 care needs that will continue).
* You want to take care of yourself - first. Otherwise, you will not be available to take care of your mom without losing yourself and your health, and life-style. It is important you set boundaries - and if you aren't sure what they are, do some inner exploration -
What do you need - not 'just' emotionally, physically, psychologically, spiritually? How was it before your mom came and how has your life changed?
How have these changes affected you?
* How do you feel about setting boundaries? And what kind of boundaries?
* Do know that you aren't alone. It is much more challenging caring for a family member due to the history, triggers, emotional connection.
* I've been working with individuals in various stages of dementia / forgetfulness for over 8 years and I still can get pulled in. I try to be honest with my clients while extremely mindful of their brain chemistry. If I don't have a response in the moment, I might say "I need to think about that."
* I believe 110% that 're-arranging' the truth or reality is not only okay, it is often essential. Prepare yourself ahead of time with something she might say and practice some responses.
* I'd like you to consider what you've experienced in a very short time and realize another 1, 2, 10, 20 weeks, a year will progressively change. Consider how your roll and responsibilities will be and how your life, and the quality of your life, will change.
* If you need, see a social worker or therapist to help you sort this out.
P.S. Don't forget anti-anxiety meds. They can be a life saver - yours. Gena.
In terms of duration of time within this will unfold? Anyone's guess.
This has to be monitored and you have to ask yourself key and relevant questions:
Has she lost the capacity to:
-Bathe
-Walk
-Eat regularly
-Take her medications regularly
-Communicate what she is thinking
-Remain sufficiently cognizant of her surroundings so as not to make dangerous mundane errors such as leave the stove on, or leave sink running?
If you answered yes to any of these questions, a systematic review of her circumstances, and and honest assessment of your ability to assist or care for her is in order.
Often times these changes take place over a period of years, so it is relatively safe to say that you needn't panic, but be prudent and start researching and evaluating now.
Best of luck!
Teepa Snow is terrific. However, she is a professional who specializes in geriatrics and neuroscience. You will learn a great deal by watching her YouTube videos. Also keep in mind that you may reach a point where you no longer want to have your mother living with you and that is okay. Burnout is real risk among caregivers especially those who are caring for elders with dementia.