Mom is 84 and lives with us. Starting to lose words, unable to find the right word (usually a noun) and getting cranky. Lately she takes EVERYTHING personally, and thinks we believe she's "always wrong," even something that's just a different view. Typical conversation:
Mom: It's much cooler today, isn't it?
Granddaughter, age 21 and exceedingly polite and deferential to her grandmother: "Oh gosh, it feels warm to me but that's probably because I've been running around with the dogs."
Mom: <really snottily> "Oh. Well I'm wrong then. Again."
It's like this EVERY time she states an opinion. If we don't immediately and completely agree, she takes great offense and gets into a snit because "we're picking on her" and "you think I'm always wrong." Now she's taken to saying "I know!" indignantly when we tell her anything. Typical conversation:
Me: "Mom, you have a doctor's appointment on Friday at 4 pm."
Mom: "I know!"
Me: "Oh ok, well I"m just looking at my planner and thinking out loud; I got a reminder call so thought I'd just mention it."
Mom: "Yeah, I KNOW!"
This happens even when it's something I am CERTAIN she DOESN'T know, like the fact that we still have cat food on the shelf:
Mom: "We need cat food."
Me: "Hmm, I thought I bought it last time I was at the store. Let me check.... yes, there's a box of cans on the shelf."
Mom: <indignant> "I KNOW!"
HOW do I deal with this? Should we just always agree with her, no matter what? Is that a fair expectation?
What is this? Her anger is really impacting my family. We are so kind, helpful, and work so hard to reduce all stress for her, and we just get this resentment. If we moved, or she lived alone, she would not be able to live. She doesn't drive, uses a walker, and relies on us for almost everything from her laundry to her groceries to her mail to bathing. All of which we perform gladly and with a smile. It's getting so hard and I am so tired. My husband, daughter (home from college now, in the summer) are saints, but I feel badly. Daughter confided that she can't wait to go back to college, but it's her senior year, and I know she'll have to come back next May. We used to have such a happy home.
I guess I'm just venting. I feel like I have no one to bounce this off of and am really at loose ends. Thanks for listening.
Let it roll off, like water off a duck's back.
If you are on this AgingCare site, give yourself a gift + watch Teepa's videos. She explains many different kinds of dementia and how a person may 'act out.'
Learning from Teepa has assisted me to:
* not take interactions personally.
* realizing the brain is not working 'right' (may get worse) and gives me emotional and psychological distance from reacting to the person (and more sense and feelings of compassion).
* You will understand vascular dementia, aphasia (and more) watching her videos - you will feel relief, through understanding.
Understanding dementia (interacting with an inflicted person) IS learning a new language with virtually no learning curve. You are thrown in a situation about 99.99% of family/care providers do not understand nor know how to deal with. Be gentle with yourself going through this -
Rule No. 1: Never argue with a person (with dementia). For you peace of mind, keep quiet and don't 'bite the bait'
Rule No. 2: Do not allow yourself to be a 'punching bag' or be verbally abused.
+ learn to walk away
+ change the subject / redirect the conversation
+ train your mind to go to 'compassion=brain doesn't work' . . . She feels FEAR and CONFUSION. She is scared and doesn't know what is happening to her.
+ Learn reflective responses, i.e., Reflect her words back to her "Oh the cat food is . . . It doesn't matter if there is cat food or not. It is learning how to keep the (potential) emotional intensity even / minimize.
You are doing this for you and your family well-being.
It is a way to protect yourself emotionally and psychologically from being (further) worn down. As you do this, you are also learning compassion as you are understanding the inflicted person cannot help what their brain is doing.
* Do nice little things for yourself and family.
* Physical exercise/movement (yoga, jogging, dance, walking) will help.
* Give hugs and loving touches (hand massage, shoulder rub) to everyone involved who wants / is receptive.
* Allow yourself to grieve the loss of the loved one who is no longer there. It is a grieving process. Letting go and being present with what (and who) is now is a constant learning curve. Gena.
My grandma said she needed ‘new’ instant coffee because the one in the cabinet was ‘years old’. I told her no, that I had purchased it recently (it was, in fact, a brand new jar).
She gave me the evil eye and immediately began arguing that I was wrong.
I just let it go and told her I’d put in on the grocery list.
Honestly I know better than to argue with her. She gets upset because she can’t stand the thought that she doesn’t remember anymore. But sometimes I forget that we can’t have a normal conversation. And I’m dealing with someone that is more child-like every day.
It’s so much easier to just agree with our LO. Not worth the anger it brings out in them. Seems to keep the peace around my home when I follow my own advice!
Your family is to be commended for all the loving and support you are
giving your mom! She is so lucky to have such a loving and patient family.
Sadly, our elderly parents with "cognitive impairments" aren't able to comprehend how their words/actions affect us, so we have to develop a "thick skin" as they say. My mom had dementia, so Dr. recommended the book, The 365 hour Day. It really became like a bible for me to understand what mom was going thru and how to deal with behaviors or things she said. Also, it's very important for you all to get some respite as well. As mentioned before, have someone come in a few hours to stay with mom, so you & hubby can go out? Maybe mom can attend a senior center or Day Care facility a few hours for peer socialization & activities?
Eventually I had to place my mom in a Care Home because despite all our efforts to make her life comfortable, happy and safe, it put a strain on our home life and we had very little peace. Mom's Dr. said we did all we could do, and it was what was best for her.
You need to take care of yourself so you can take care of your mom, so you're not being selfish by any means. Your marriage is a priority! My wake up call was when my husband went to the ER with heart palpitations! I wish you all peace.
I try to just humor her. Frequently I just take the abuse. Not sure I have a lot of suggestions to offer, but wanted you to know that you are not alone.
But when it came to dealing with my own mum, all the good intentions can sometimes go out of the window.
I have learnt that it's no good correcting her when mum says something I know is completely untrue, and have to bite my tongue at times.
It's hard, especially as she has always had a bit of a nasty tongue and turn of speech.
You are going to great lengths trying to be "nice." I hate it when people do that to me, because I feel that they are just trying to placate me without acting on MY concerns.
Especially if she has been in a position of authority in her career, she might have been suspicious of subordinates who tried that with her. So, if she's cold or wants more cat food or whatever, what does she want you to do about it? Ask her. Then respond appropriately: Pointing at thermometer, "It's 78 in here. That's what we like. You want warmer, go outside or get a sweater." "Oh, thanks, I'll put cat food on the list." Why argue about that?
I am not dismissing your concern about her cognitive abilities, and they need to be addressed by her doctor. I'm just suggesting that you try to react with less seemingly placating behavior.
You mention her good intentions to see an attorney. Get recommendations or do some research and be ready to make an appointment the next time she brings it up. Immediately. If it's after hours, make a big note on the refrigerator to call first thing in the morning, then do it. Give her an appointment card, write it on the calendar. If she starts "you're pushing me," just tell her she already has the appointment, so she may as well go see what they suggest--she doesn't have to agree with them or do anything if she doesn't want to. Then, go with her and keep your mouth shut when the attorney tells her what she needs. If you are asked for your opinion, say "It sounds like good advice to me, but it's really up to you, Mom." The attorney will tell her what happens if she doesn't have DPOA, etc., then let her decide. Don't second guess her decision because you think she's not competent to make the right one. If she's not competent to make the right decision, it's too late anyway, right?
As others have mentioned, you need a break. Why not visit your daughter's campus for Homecoming or just a fun weekend? Ask Mom what she wants to do while you're away. Staying by herself in YOUR house not being an option you are going to accept because, "I couldn't enjoy it if I was worried if you are OK." Have two or 3 options for her: in-home help, stay at a facility, whatever. She pays for it, because you can't be at her side 24/7/365; you'll be crazy.
Remember, your mom is not so old or feeble that she can't be talked to like a person. Maybe your mom is tired of being "agreed" with. Maybe causing drama is entertainment. Maybe she just needs to be stood up to.
Of course, if she is suffering from dementia, I don't recommend this at all.
Just my two cents.
I do exactly what your family is doing, and it does not work much. But I and my brother are working at our responses..trying & failing, trying and it’s working. We fail many many times as Dad really is so unhappy with his situation...but he does not wish to make any changes...so he is stuck in a rut on his own accord. He continues to vent and take it out on us. He is much better with other people. Thank God for this site and the advises from those who are going through the same things. We limit our time with visits...you are stuck when the parent resides in your own home. This site you will find will be the best place for help!
I am able to let him have his way much easier, not being subjected 24/7. Unless there is danger involved, such as going the wrong way on a one way street. In these situations I just ignore him, hard to do but staying safe is the priority.
You say getting away is not possible, could your daughter give you a couple day respite before she heads back to school? A stay vacation, ice chest in bedroom, no one in the house sees you, sneak out when moms in the bathroom, that kind of thing. Make a game out of it.
I can not imagine how tired you are, caring for an adult that needs help with everything is exhausting, I believe that's why we are designed to have children when we are young. Please find a way to take care of you on this journey, she will be in trouble if something happens to you and you're not there to care for her.
You and your family have been dealing with someone who is not the same as they were years ago.. For whatever reason, Mom has changed.
Finding out if her behavior can be modified is important, but.....YOU all will have to find a way to think like your MOM. You love her so much, that is apparent in your actions. However, if there is to be peace and love in your home, you all will have to come up with some things to say when you don't agree with her.. Things that do not ask for a reply from her...
OK "Its colder out today than yesterday" Gee you think so? OR I hadn't realized that! OR I am just right, but I can get a sweater for you, MOM!
Yes, I know it seems like we are catering to them, but when your blood slows down, you Are cold easier, with inactivity that is worse.
Not having had either of my folk in my home to live, I could just limit my visits to AL for a couple of hours and I always left on a good "note".
Your situation is more intense.
All those posters who admonished you and your family to take care of yourselves, too. They were being very loving to you b/c they have been there!!
God Bless!!
Every time I read posts related to this type of behavior in our elderly loved ones, I wish I could help other caregivers to reach an understanding I reached through simply realizing that my mom is no longer how she was before and it is not something she can control. When your mom acts like that she is not deliberately trying to treat you and your family badly, she simply cannot help herself.
In her mind you REALLY are trying to contradict her and point out she is wrong. So, she feels attacked, she feels like it is the world against her, she feels diminished and treated like a child. Her reaction is therefore permanently defensive.
If you felt like that, how would you react? Wouldn’t you be permanently irritated?
It is so important to understand that she cannot change, but YOU can! and should. Simply, 1) go with the flow. If she says it is cold, just say something like: Do you want a sweater mom? (Because she really feels cold!) 2) if you forget not to challenge something she says or if she simply out of the blue reacts as if feeling attacked, please don’t engage in an argument, nor explain your reasoning how you did saying the appointment was in your calendar, etc, etc...if she says “I know”, just say good mom! With love, or change the subject very naturally.
Someone mentioned that they think their parent even has conversations in their head and therefore reacts in consequence to how those mental conversations went...that’s very possible! Not necessarily conversations but the parent may “picture” you reacting a certain way, even if that didn’t happen at all, and they will hold resentment for what they felt you did to them. It’s complicated and weird, but a person that has committed to caregiving and that does it out of love and wants to continue doing it, needs to realize they need to change their interactions with the loved one and realize it is not a “normal” mind what they are dealing with, therefore feeling offended or engaging in arguments won’t derive anything positive! On the other hand, will leave the elder feeling more resentful and making the situation worse.
Keep in mind, they don’t necessarily remember things how they actually happened, they remember WHAT AND HOW THEY FELT. And what they felt can be miles divorced from your intention or your actual actions.
You might be thinking “well, then this assumes my mom is crazy”. She is not crazy, her mind is very tired. Treat her with consideration. Have a serious conversation with your husband and daughter and explain this, that they need to change too, and more importantly not take what she says at heart.
Also consider that she might react better and behave differently with a third person, an outsider, than you three. So, hiring external help for a couple of days a week might be a great relief for you and for her too. Also, as a family you need to determine if you are able and willing to commit to being caregivers to a person that is different than the loving mom you remember; it is a serious commitment that is only possible if the understanding that it is you who needs to change is reached, along with a large dosage of love and patience, because we are human beings and we struggle to always remember not to take it personally. But it is definitely possible, with a lot of love and a true reassessment of your life and priorities.
Good luck and a hug, to you and to your mom!
Cooler?
Yes, it is, but I've been running around so much, I'm hot!
Catfood?
I'lI put it on the note.
Writing it gives me time and energy to think what I should say. In the heat of the moment, I don't always feel the energy to respond in a positive manner.
Nothing that comes out of my mil's mouth is positive. She has always been a negative person and now it is much worse.
Adult daycare has been a Godsend. Now I feel I have a bit more to give without going crazy.
But we found an answer. I made sure her Dr. knew what I was dealing with and the negativity and rages I’d had to listen to from her. Also, with dementia she needed to go to the bathroom every 5 mins., not true! Or she’d tell him she had 3 strokes. Not true. It’s so important to go to the Dr. with her and know what’s being said. My mom’s Dr. told me he’d treat her for depression (a happy pill). The low dose did nothing and he gradually raised it to 100 mg.
At last she became pleasant, easy to help and grateful!!
I hope this helps, because it will most likely get worse for her and for you.
God bless you!!
My mom has mid-stage dementia and does the exact same things. Only she also says that I'm crazy, stupid, she hates me, etc. when I don't agree with her. The only thing that works for me (sort of) is to politely ignore her. I am an extremely logical thinker, so agreeing with her is tough for me, but I do it as much as I can when she forces me into commenting on something.
I could go on (and on), but the real point I want to make is that you are NOT alone. I have found this forum to be immensely helpful for the very reason you mention: it gives us someone to bounce this stuff off of and remind us that we are doing the best we can.
Walk a mile in her shoes to see how it sounds to your mother. It does sound like you're going out of your way to be disagreeing with her in your examples.
I'm sorry, but that is just how it sounds to me.
It sounds to me like TrainerMom and her family are being extremely compassionate and are trying hard, but are struggling with how best to handle the changes in their loved one.