My mother lives with my husband and me. She has alzheimer's dementia, and is in a wheelchair. She's had a life-long habit of giving her money to my brother. Now I have control of her money, allowing her spending money. When I refuse to give my brother money out of her savings account, she gets angry, mean, and declares she wants to move out to an apartment. She is on the waiting list at the nursing home, but she says she's not going there, she wants to live alone. She clearly cannot live alone. When she leaves here she will go to the nursing home. We are in the process of getting papers filed for guardianship. In the meantime, do I show her the doctor reports stating she in incapable of living alone, or of making decisions? Do I just tell her the doctor said she can't live alone? She knows about the guardianship proceedings, but she doesn't understand them. She thinks a guardian will be another person at her beck & call - she will tell them how she wants her money spent & they will do it. She had extensive testing a year ago, and the neuro-psychologist went over the results with her. However, she doesn't believe she has dementia. The report had a minor error about her circumstances, so she uses that to mean none of the report is correct. I'm looking for some way for her to have peace with the decisions my husband & I make. We are not going to bow to her bullying. So, if she reads the report, which states in black & white she is not capable of making decisions for herself, will she back down & accept her circumstances, or am I in for a continual battle with her for the rest of her life? My brother knows we don't want him to ask her for money. He is too selfish to consider how it affects her & us. So talking to him won't do any good.
BUT, if that means her funds come up short, causing her to need Medicaid, THAT is a problem…States have no hesitation rejecting help to someone, if funds WERE available, but not spent on her care & upkeep, when they do their "5-year-look-back".
Elders w/documented dementia causing them to make poor decisions, means they need someone to take over managing their affairs.
Sometimes that gets REAL ugly--families may split up, some ostracize one or several who try to take care of things---all kinds of things go haywire---may never get put right ever again. Just know that while going thru all this stuff.
Avoid compromising your health, your own ability to take care of yourself later, too..
IF the Elder struggled w/mental/emotional issues all their life, then determining when dementia takes over, & mental/emotional instability leaves off, is tricky--
--THAT often causes those who evaluate the person, to drag their feet at pronouncing incapacity--especially when the elder has managed to skate thru their lives without being evaluated properly, as so many have!
Your Mom's condition is documented by her Doc.
He knows it, you know it, your Brother should know it--but he may think he can still keep weaseling money from her, and may think he will be able to keep doing that off her estate…..you need some nice official --lawyer or minister or Social Worker, who will firmly inform him that Mom's estate is now being used only to care for Mom, not her kids.
She cannot remember hearing about it when it was done & she was informed
--she cannot do it any better now
--don't bother to show it to her now
--she will get very upset over it, & will more likely get angry, & may try to make rash choices that, at this point, you may have some difficulty dealing with.
Better, to take care of the business of getting guardianship, get her proper care all set up, THEN let anyone who needs to, know about how things now are.
Since you already have POA, that should be easier to get done.
Yep--Brother will be angry.
But Mom's POA's job is NOT to pander to his needs; Mom's POA is to take care of Mom.
Mom's gonna be angry: fearful how she has lost ability to take care of herself; fear of getting closer to death. It's a very scary position for so many people!
Especially those who have had a troubled life, and/or who have been very controlling in their lives.
That makes people very feisty…downright ugly sometimes.
Mom will likely become less angry as her dementia/Alzheimer's progresses.
Knowing things will get "better", sometimes helps a bit, just knowing that….and so that you can prepare yourself, your mindset, and maybe to take measures to protect yourself from those who might retaliate out of their anger. It's a great motivator to take whatever steps are needed to protect yourself, to plan ahead.
how the brain looks and how it looks with AD dementia,
there is a slide presentation on the internet.
I told her the reason she forgets so much is because of this
but that is as far as it went.
Our 86 year old doesn't want to be in a nursing home,
and has been out now for 1 year and 10 months now,
keeping social, busy and on a low sugar diet with
fiber, protein and vegetables and fruits loaded with
max. nutritional benefits and water.
I am proactive and her advocate day to day
but she does have a guardian.
If changing the subject when she brings up her health helps and works, go to it and distract her from the question; but if she consistently asks to see reports you must show them to her. What sense if any she can make of them is a different issue: all you can do is "lead the horse to water" - especially if it says it's thirsty! But in the end it's her report. If she wants to see it, don't keep it from her.
I hope for all of your sakes, including his, that your brother's progress continues. Perhaps one day it will be behind you, though it sounds as if he's given you quite a lot to forgive. Keep faith, all will be well. Well done. xxx
My mother is already on Medicaid (thankfully!) so she doesn't have much in the way of money. Which makes it ironic that money is an issue. The problem with her & my brother has always been that my mother will find some reason to break the rules wherever she lived, not pay the rent, etc. & give the money to him. She has burned her bridges everywhere she's lived. Including a nursing home. She refused to pay her patient pay amount for 4 months, giving ALL the money to him. Now I'm repaying that amount out of her room & board. She has some money I managed to save for her, but I'm holding onto it because that full amount needs to be repaid before she can re-enter the NH. All she sees is her 50 year old "baby" in need & she has money to help him. Of course, he's always after her for it, too. This month, she gave him all but $12 of the money she had access to. So, yeah, it's technically "her" money, but if it weren't for me fighting her urge to give it away, she'd have none & my husband & I would be paying her way. Not to mention if we're paying her way because she's giving her money to him, it's as if we're supporting him also. I will help him myself at times, but I simply refuse to enable a drug addicted loser brother to continue in that path. (BTW, he has just started his first job in over 5 years, is clean, & doesn't need my mother & her easily available drugs tempting him.)
So, I agree that it is best not to show her the report. I was hoping she could gain some peace with her circumstances, but that obviously isn't going to happen. The suggestions to change the subject are excellent. What I am trying to do is, when she brings up the subject, to simply state what I will or will not do, with a kind tone of voice, then change the subject. Then make sure I do something nice for her, and continue to be kind and peaceable. That's my plan. Sometimes my husband needs to remind me to do it!
She is trying to get social services to set her up in an apt. The dr. says she cannot live alone, so she wants the brother to live with her. They have lived together at least 3 times - epic failures all 3 times - but says they deserve a "second chance."
My dear mother is very strong-willed & stubborn. I'm afraid we're in for a long, difficult process. Even though the dr. advised at least a year ago that she have a guardian, I have dreaded going against her wishes in that regard. I cannot put it off any longer. I have another brother who is willing to step up & apply for guardianship, but he lives across the US from us. So, this is the step we need to take to protect my mother AND my brother. The dr. recommended she be placed in the NH. Her name has been on the waiting list for 6 months. When I last checked, they didn't want her back unless someone had guardianship, & the previous bill was paid in full, of course. So that's what we're working on.
This surely is a hideous disease. It's so much more than just "memory loss." I don't like my mother much right now, & she doesn't like me. I try to remember what she was like when she was young & strong, before dementia started to change her. The Bible assures us at Isaiah 33:24 that there will be a time when no one will say, "I am sick." The time for us to have to deal with these tragic illnesses is almost over. The our great & loving God will step in & correct matters. Nothing can happen to us that He can't fix. I look forward to the time when He will restore my mother to good health.
I truly appreciate the wisdom and empathy you all have shown. This is not the first time I've had to ask for help here, & probably won't be the last. It's wonderful to be able to share encouragement. You have all helped me to see the need to press on with love, when I'd like to throw up my hands in frustration. Bless you all! :)
usually the internet, but this night it was my documents. The report did impress him in that he kept asking, "I really did that?". He doesn't carry it to the next point - the doctor not giving him more pain killer, the insurance and ER listing it as an incident secondary to overdose. I say little about this or other incidents as it does not help the general mood of the household. Best luck with your mom. My brother deals with our mom, I deal with my husband, our sister deals with none. She moved far away and only likes to hear that everyone is still OK.
That said, when the person has progressed beyond the beginning stages of the disease, it might be pointless to talk about the dementia. However, I would give it a shot once anyway and see what happens. The bottom line is (and I know some people who would disagree with me) that honesty is always best.
I recently read a book about interacting with people with dementia. The author advises the "best friend" approach. Don't disagree, gently lead to the desired outcome.
As for the brother...as much as you can, separate your feelings about his mooching from the reality of the situation. If your mother's assets are minimal, it's a no brainer. The money will be needed for her care in the SNF and you'll have a five year Medicaid lookback if she runs out. Unless they're very small amounts, the money she's doling out to her son would have to be repaid. However, as someone else has said, if your mother is very secure financially and in no danger of needing public assistance for paying the SNF, then it's her money and if she wants to indulge him, it's her choice.
What I would do....when asked to fork over some cash for your brother (I assume you hold the checkbook), I'd say "OK, Mom." That's it. Then I'd either not give him anything (if funds are limited) or I'd give him an amount I thought was more reasonable. I'd explain the situation to him - that you're conserving mom's money for the SNF. But, if he complains to her and she asks again on his behalf, my answer would be the same "OK, Mom" and give him nothing. He'll learn soon enough and you won't get into an argument with your mom about how she's incapable of taking care of her own decisions – an argument you could NEVER win.
My mom knows she has memory issues but laughs them off as her being old.
When we first removed her from her home she kept saying that she wanted to go home. I kept replying, “I’m sorry that you can’t go home right now. The doctor said that you need to live with one of us until we get your health back on track”.
I don’t know if saying that to her helped her. I do know that it helped me to deal with the situation of her wanting to be on her own again. Knowing I had a response to her question/statement made me feel good about it. Maybe you can figure out some sort of reply that is a bit ambiguous but acknowledges her desire to be in her own place.
I also feel that if you repeatedly approach the subject of the dementia, your mom may understand it for a few minutes, feel the pain and fear of knowing that she has an incurable disease, then, forget that you ever said it. If you repeatedly go through the cycle, I feel, it would be painful, for both of you.
As for the sibling who wants money, maybe give him $20 and then you can honestly tell your mother that you gave him what she could afford this month and that the rest needs to be set aside for her care.
I am thankful that I don’t have to deal with that with my mom. My siblings are afraid that if they get involved in my mom’s care that they will have to contribute money for her. They don’t even ask.
While it has been acknowledged with dementia patients for a long time, in the past 10 years, FINALLY the medical world has come to understand that many people who suffer from schizophrenia and bi-polar, also suffer from anosognosia. All of these poor people suffering with mental illness refusing to take meds, whose families believe they are stubborn or in denial are neither. It is just another element of their mental illness.
So many people get discarded by their families in frustration when its not their fault at all. And the families can't make them take meds without taking legal action, sad for everyone really.
My MIL who passed away from vascular dementia had anosognosia. She never had any understanding that she had dementia. She thrived under unconditional positive regard from all of us. We didn't correct her ever. While she had been a pretty hateful person to me, prior to dementia, I understood that, with dementia, it was a whole new ballgame.
Too bad more people don't know about anosognosia.
2. Get someone else to intervene with your selfish, useless brother. An authority figure (lawyer, judge, pastor, priest, trusted friend) needs to bring him up short, face facts and help with her care rather than being a perpetual parasite.
Best wishes.
If your mother starts to carry on about giving money to her son, maybe it would work to just tell her, "We can't do that anymore. The money is needed for your care." And then drop it. Keep it light. Smile. Nod. But subject closed.
Blessings and good luck.
But to return to your question: yes, you ought to show her all medical reports, allow her to read it for herself, don't interrupt her or challenge what she says, but offer any help she asks for to understand it and encourage her to ask questions. You will need to do this on innumerable occasions and it will get tedious and frustrating - but it's still worth the effort. Do not expect her to agree with it, or to like it, or to accept it. It would be wonderful if, given time and your endless patience, she came to trust your and your husband's decisions as being simply devoted to ensuring her ongoing welfare, comfort and happiness; but she's a long way from that, by the sound of it, so all you can do is make the best choices you can and meanwhile accept her unhappiness with her situation. Thwarting her wish to indulge her spoiled child is not a good start to helping her relax, by the way; so don't unless you have a genuine duty to do so. It is her money, always remember that. I'm sure you didn't mean how it sounded, but the phrase "allowing her spending money" made my antennae twitch. It's ALL her money. Your role is to protect her from theft, abuse, insane reckless spending and all the other potential adverse consequences of losing mental capacity; but once that's achieved you must do as she wishes.
What you seem to be longing for, understandably, is that you will somehow be able to make her at peace with what is a terrifying, imprisoning condition. No, almost certainly she will never "back down and accept her circumstances." Would you?