Once she could not take care of herself they abandoned her. They never even ask me if I needed help economically. If my family has not help I do not know what I would have done. Now she is dying and I am still alone with my family taking care of her, losing her day by day and my sisters and brother that could have been here are not. My mother was a good mom and a really good human being. I feel so angry, I do not think I could ever talk to them again. I am so tired, physically and emotionally and yet my partner and my family have been there for me and my mother. How can a child abandoned a mother that was so good to them?
Being in this situation myself and making the choice to create a safe comforting place for my mother after her diagnosis of ALS was the only possible choice for me.
The fact that my two brothers who abandoned my mother after her diagnosis reveals their lack of mercy for not only a helpless suffering human being, but for a woman who did everything for them and never challenged them with one criticism or an unkind word for 30 years putting up with disrespect in so many ways from them and their wives.
My mother held her daughters to a much higher standard of family responsibility and demanded respect.
In the end that is what has been revealed.
Regardless of my disgust for my brothers cowardly , narcissistic, despicable treatment of our mother, my concern is solely for her.
I am also a mother of 4 . The fact that she will die knowing the sons she nurtured and supported unconditionally have turned their backs on her in her darkest last moments to me is sheer torment and nothing short of abusive. To know that they turned their backs when she was no longer of any benefit to them. They cut her off of phone calls , Mother's Day gifts etc..
Leaving her with "what did I do wrong" emotionally heart broken.
My mother did nothing other than she did too much and never made any demands of them regarding respect for herself .
They refused to take on rolls regarding her illness that were only beneficial to her during this ravaging illness and not themselves. My responsibility now and all those as caregivers is it to focus on Mom/ Dad and create a loving safe environment for her/ him surrounding them with the 7 grandchildren who adore her, the daughters who respect her and her son- in- laws who honor her.
Your cowardly selfish siblings are of no importance to you. They have made their choice as adults and are accountable for those choices.Do not make the focus their abandonment. They are undeserving of even a minute of your emotional energy.The focus is your parent who is suffering, and to be kind to yourself as a caregiver. Protect yourself in every way ,
From your sibling bags as most likely they will blame you for their cowardice.
I realize my situation is not uncommon and many adult children step back from the difficult situation of parent care-giving, waiting for someone else to step up to the plate and take on the job. They then dream up their own clever, creative justificationas to why it is simply impossible for them to assist, as though they are the only people with busy schedules. If they think they are fooling anyone, they aren't. It is nothing more than selfishness.
I have lost whatever respect I once had for them both. When it's over and my mother had moved on, I will go forward knowing I did what I could with what I had. And if I never see either of my siblings again, it will be OK.
How heartbroken you must be. You've not only lost your mother, but you have lost some important respect and perhaps even love for your father, as well. Please accept my heartfelt sympathy.
What comfort is there in a situation such as this one? You are right to feel resentment; you would be dishonoring the memory of your mother to feel any other way.
The question is what to do with it. A wise pastor once explained to me that "there are things we simply never get over, but we do eventually get past." When you have tried to compassionate your father's fear, when you have acknowledged the essential humanity of his despair in the face of his life partner's decline, then, held up by the grace of God, you can get past it. That may sound impossible now, but it can happen and will happen if you face the sad, even awful facts, allow yourself to grieve, and then, when you're ready, just get on with things.
Fitzgerald...I know we've been discussing the lack of involvement by siblings but the above comment and excuses actually reminded me of a parent. So, just wondering...what your opinion is if those "excuses" come not from siblings, but from the spouse of the person in declining health and needing more care. My mother died almost two years. IMO it didn't have to happen. But, I think my father was heavily influenced by not only what he was being encouraged to do by a misdirected sibling, but because of his weakness and selfishness. He didn't want or like being a caregiver, and therefore made decisions concerning my mother's care which benefited, not her, but himself. I hold a resentment towards him that I try to hide and I'm not proud of. Do you think spouses of those in need of caregiving, should be an exception to criticism for not wanting to participate in the care?
Blessed be the ones working their hearts out: the caregivers.
But it's so much more complicated & difficult if there are:
Divorces, frequent moves, age differences, different stresses happening when each kid was born/raised, changing spouses, no spouses, unreliable jobs/income, unemployment, physical and/or mental ills, alcoholism, drugs, special needs, court ordered visitation schedules, church refusal to acknowledge a marriage or the kids [Catholic], etc.;
ANY/ALL can cause one or more of the kids to be treated & develop VERY differently than the others--and cause parent persons to treat the kids very differently.
That's all on top of basic personality differences.
Believe me, ALL these have happened in my families [it's a wonder any of us got anything "normal" in our lives, right?]
One can hopefully learn, sooner than later hopefully, that they're the "odd person out", & take steps to protect themselves from the negative behaviors, while doing the best they can to be a part of family--family IS important! [thought this is difficult at best] [Some family is better than none--MAYBE.]
SOMEtimes one must find "family" for themselves, when their own family can't be that for them--that's where friends, community, volunteer activities, etc. are so important!
I ultimately failed to learn, nearly for a lifetime, that Mom wanted me out, while consistently telling people the opposite---kinda like the boss who smiles & compliments when others are around, but treats you badly when 1:1 , then fires you? That.
I failed to figure this out soon enough--God knows there were WAAAAY enuf cues I should have!!! It took til I was over 60 to "get it" how badly [parts of her] Mom wanted me OUT, not just from her life, but from my siblings lives, too--
--all while repeatedly jerking my chain that she needed my help, loved me [parts of her do], & BEGGED to come live with me [a pretty exciting part of her drama, that trip was!!] --lived with me several years until her behaviors got too epic to handle, & she orchestrated the hugest drama she could [manipulating the other kids & their kids] to get out of here.
NOT worth it.
Funny thing is, Today's Dr. Oz talked about the youngest child frequently trying to usurp the oldest child's position? Yeah--that was included in the whole play, too.
They all got nice assets given them [especially the youngest]; I got token amounts & "gifts" too small to help what was really needed, empty promises, threats, blackmail, manipulations, epic negativity, elder's rages that lasted hours at a time, abused, filth she left behind, nearly got evicted due to her behaviors & garbage, no connections allowed with family while they all say otherwise--until I try to carry any talk beyond hello--ugly.
Verbal contact with any of them is a RISK, because verbal = plausible deniability. NONE of them will carry a conversation in writing--neither will I, anymore.
I nearly lost my husband, he almost lost his life, I nearly died, all of it coming to a terrible head near her BD one year. Both of us are frail ourselves, now--oh--and as if that was not enough, she also turned neighbors against us, which effectively prevents us living where we had worked so hard to retire to.
I -REALLY- have a hard time remembering anything good, but I keep trying!
When you find yourself in a terrible situation trying to help your elders,
step back & look from different perspectives:
==Have there been similar behaviors over many years, or only related to dementias later in life?
==Do other family members side with your elders against you, &/or actively copy the elder's behaviors at you too?
==How is your health with caregiving your elder under your roof?
==How is your immediate family [spouse, kids], with caregiving under your roof?
==Is caregiving destroying your Spirit [triggering depression, sick stress, anxiety, inability to sustain friendships, inability to keep doing other preciously enjoyed daily activities]?
==How are your finances & your job, with this?
A person might be fine with trying to martyr-it-out-to-the-bitter-end;
if that is what you choose, anyone who knows it should honor your choices, ONLY IF you fully understand the reality of it, understand all the information needed to make that sort of choice.
OTH, if this situation is destroying you in any way or amount, it's time to proactively find OTHER care/shelter for your elder[s],
=not under your roof=.
You can still go visit them, even assist them, if they live elsewhere
[UNLESS family prevent you doing that].
Realistically, no one, no agency, expects anyone to be destroyed, financially or health-wise, in the process of caring for one's elders
--though cultures & religions have seemed to perpetrate that for centuries.
UNfortunately, too many fall into that trap, get too far down that "rabbit hole", then have a very hard time getting out of it.
Some die before their elders do, the stress is so great.
If adverse family prevent your visiting /contact, you can pray, meditate, get counseling, or whatever practices you choose, to find a healthier balance for yourself, while holding good thoughts.
There are always things to be grateful for: find those & hold onto those!
It's hard to remember good stuff, after having been badly treated,
but even one tiny bit is better than none, and very important for holding onto sanity.
Also, those that are trying to help, are delaying getting qualified help for our mom and she is not getting medical care.
I can see both sides of these stories.
I wish you and your mother, family...peace.
My husband & I took care of my mom & dad for over 20 years, helping them with various things, repairs on the home & outbuildings, I gardened for them, canned goods for them, mowed, trimmed, took weeds out of several flower beds, I'm not talking small yard either it is a farm. Then I found out my mother had been lying about me to not only my siblings, but sending letters to my grandson, daughter & sister, horrible lies, horrible! Needless to say, we no longer went to help, then my dad became ill, no one contacted me or my sister, he was in & out of hospitals, in & out of nursing home, when I would call to ask mother how they were, she lied. Went to see them, lied to also about their health! Then dad passed away, no one called or contacted me or my sister. Talk about wronged, that is wrong! Know how I found out my dad passed away? My husband frequently googled my dad's name, for fear that would happen, that's how I found out my dad had passed away. In fact to make it worse, he passed away in a hospital in the same city I live in. How does that feel? It doesn't feel good! My sister & I went to the wake, along with 24 other family members that have also been treated poorly by the family, for no reason either. We all met there, along with other friends of ours & walked in together & left together. Know how that feels to walk by your dad's casket, as if you are only a friend or relative, with the rest of the family lined up in front of it? Not good! Don't be too quick to judge why some family doesn't go around parents after they get older. Sometimes it is warranted! My husband & I did everything we could for my parents, so did my sister & her husband, although she lived far away, she came every year on a vacation from work & spent 2 weeks with them & did all she could. Sometimes all you can do is stay away! In my & my sister's case, we think it is all about the greedy siblings, thinking they are going to get everything, after all where were they when we helped for over 20 years? I never once complained about the rest of them not helping, I was happy to help as my husband & I were semi retired, so the rest of them all worked & we felt we were helping all of them, see how that was appreciated???
You continue to help your mother, if that is what you want to do! But don't feel bad if you have to step aside & let someone else help or get help when you feel overwhelmed! When my husband & I helped our parents, I let my own health go & paid dearly for it, but it was all about making them happy & safe at the time!
most When we took her car 4 years ago sister didnt want us to because mil couldnt come help her babysit and all the other crap and she is using we accused her of stealing no we busted her spending her moms money for last 2 years after she paid mothers bills.
There should be laws about this matter. Esp. when the only intent is to want them to pass faster to collect money. They could be charged with second degree murder, that's what Depraved Indifference is.
Try to have a good day, everyone!
xo
-SS