Last Sunday, after my 89yo mom attempted to kill dad with a butcher knife, he called 911 for the third time, she was sent to the ER and he refused to pick her up. (For details, see my thread, "How do we get the hospital to keep mom." Bascially, all this started with what I suspected was a UTI infection.) She was sent to a behavioral health facility, had a choking episode the first morning there, was sent to the hospital across the street, returned a few hours later to the facility, had another choking episode the next morning, was sent to the hospital again, and never returned to the facility. (They never sent her belongings with her and her POA, me, is supposedly the only person that can retrieve those belongings. I am three hours away with a husband with dementia. Going there to retrieve her walker and clothing is not an option. Why they can't just take them across the street and give them to her?) We don't know if the psych eval was ever done since she actually spent so little awake time there.
Three weeks before she went to the ER last Sunday (when what I suspected was UTI symptoms started), at home she was walking, talking (but with expressive aphasia), eating anything she wanted, cooking meals, doing laundry and light housecleaning. Now she is NPO (her directive says no feeding tubes or IVs or any other measures to prolong her life), unable to move from bed to wheelchair, speaking more clearly but her words indicate she is not aware of reality, and has been diagnosed with "dementia with psychosis." Oh, and the UTI, finally confirmed by a culture last Friday, was treated one time with IV Rocephin in the ER Friday and one tablet at home Saturday. Since she went back to the ER Sunday, no antibiotic has been given. I suspect this is why she deteriorated so quickly.
Now they are talking about her leaving the hospital. A week ago, we were all on the same page -- nursing home. A bed was found and is being held until July 1 (tomorrow). I'm amazed we found a bed in these days of the virus. Sunday my sister (has a doctorate in nursing), bil, and my husband began singing a different tune -- they want her to go home with 24/7 care. I am POA and it is up to me to make the decision. My choice is still nursing home. This morning my husband informs me that he never felt she should go home, so his fight with me Sunday declaring that mom should go home and I needed to respect his authority is now not even in his memory (or he is gaslighting me again).
Anyway, I now feel myself between a rock and a hard place. If I decide nursing home, then my sister will probably cut off all relationship with me for a while (it has happened in the past). She has already sent me guilt-tripping texts messages. "If the nursing home is going to quarantine mom for 14 days, she's going to get very little attention there until she dies a lonely death in an unfamiliar place." One home care agency turned dad down yesterday, said mom would be better off in a nursing home. Another agency failed to return my phone call until 8:00 p.m. last night, and then failed to send the email that was supposed to be sent at the conclusion of the phone call. And she said she couldn't have 24/7 care in place until next Monday at the earliest.
So obvious to all (except my educated sister and bil) is that mom needs to go to a nursing home. We are told that she should be allowed pleasure foods such as chocolate pudding, always knowing there is a risk of aspiration. In that case, she may not survive long at home or in a nursing home. The question I am wrestling with is, do I honor my father's expressed desire as well as my gut feeling that she should go to a nursing home and risk the future relationship with my sister, or do I take my sister's advice and bring mom back to her home?
Your mother will get better, more professional, more SUPERVISED care in a NH, even if quarantined.
Unless your idiot sister is going to be on site at home to supervise, protect your poor father and be as annoying as she sounds.
Can you tell family that its just temporary until Mom gets her strength back and she is no danger to Dad. I mean really, your sister should be thinking about your Dad. The stress this will put on him. Sleeping with one eye open. Mom needs more care than he can give. And Dad, his motive is probably out of guilt. But he is too old for this kind of caregiving.
If sister is so scared for Mom, then she can take her in, right?
The thing to worry about here, I think, is that the CORRECT medication orders follow mom to wherever she is going and that the medications get ordered and delivered in a timely fashion.
I cannot think of ONE TIME when my elderly mom was discharged from the hospital where the medication orders were not incorrect in some way or where the NH was unable to fill the ordered meds quickly enough that mom did not miss at least one dose.
Be aware of the fact that home health care really can't be set up until the patient is back home, meaning that your dad would have to cope by himself (unless sister is willing to put her life on hold and move in) for at least 48 hours, more likely until Monday.
I like the idea of telling everyone that this move to the NH is temporary until you see to what extent mom recovers her previous abilities.
And I was not aware that home healthcare could not be set up until the patient was home. And I've been thinking we can't bring her home until something is in place. Sounds like a Catch 22.
If Sis feels so strongly mom not go to a NH, let her take her home with her.
Mom has passed the "I'm OK alone' stage.
And why does BIL even have a voice in this? I know my input about my inlaws was ignored and rightly so. (Unless I was offering free care).
Mom needs to get better before a long term plan of action can be put into use.
As POA you are going to have to grow a thick skin!
Things may be different where you are, but we were never able to set up doctor-ordered HHC until after mom had been discharged. We hired private "Visiting Angels" but this was to keep mom from going off the rails with anxiety, not skilled care.
Are they basing the "no UTI" on her behavior, or the color and odor of her urine? I would insist on a culture because the start and stop antibiotics are a recipe for an antibiotic resistant bug to move in.
Is mom still mobile? Can mom and dad afford 24/7 health care workers? Will they stay if mom becomes violent again?
Are they saying that mom has progressed to end stage dementia (which might be indicated by her extreme swallowing issues?).
Jjust keep telling you sister this is best for mom. Even though this is a hard decision for us to make, this is best for mom. She made you POA for a reason she trusted you.
You are POA, sister, bil and your hubby have no say in the matter.
Any developments from the meeting today?
Has your mom's swallowing issue been assessed by a speech/ language pathologist? Consider asking for that.
My eyes glued on to 'butcher knife' & I may not have absorbed the whole story. But knife, psychosis, life threatening danger? What planet does the sister live on?
A lonely NH time for Mom IS sad but could be MUCH worse if Dad or a 'visiting angel' is knifed.
I am so very sorry this is happening.
I wonder if mom actually has a dx of vascular dementia, stemming from the stroke. And dad didn't want to worry you with that.
If nothing else has come out of this experience, I think you dad has learned that he can say "no".
He NEVER should have been put in the position of transporting your mom to the NH last time; I did that exactly one time. I thought it would be "so lovely" to drive mom from rehab to her new AL.
Got her in my car (thankfully, my very calm DH was driving) and she immediately became hysterical and attempted to wrest the steering wheel from him while on an interstate.
We got to the AL; I got out of the car and said to my brother (who had POA) "she is NEVER getting into a car with me ever again; medical transport from here on in. And find me a bottle of wine".
Brother somehow cajoled mom out of the car and she was fine. But no, never again private transport.
Good luck!