This person was too old (over 22) when disabled so they don't qualify for Medicare under their parents' record, nor do they qualify under their own work record because they did not earn enough credits. The social security and medicare websites are not clear on this and three different answers were given by their phone reps.
If anyone has experienced this situation and has an answer, thanks in advance for your reply.
To clarify, they are not and have never received SSDI (disability) . They got ssi, supplemental due, as I stated to falling between the cracks in not becoming disabled young enough in life to qualify under parent's record and becoming disabled before they had enough work credits on their own to qualify for SSD on their own. So these people are given ssi.
three answers were given by ss and medicare reps:
1. no they can never get medicare they have to stay on medicaid only
2. yes they can apply at 65 but have to buy in (impossible if somone has been disabled and on medicaid most of their life)
3. yes, they qualify for medicare after getting ssi for 24 months (wrong - this is only if they had ssd for 24 months.
i am hoping the answer is what you suggested they can get it at 65 and medicaid will pay for it but I have yet to have this confirmed by any reps of these agencies. i was wonderinhg if there was someone here on the site with an older disabled sibling or other family member in the same situation. Not that I hope anyone ends up with this situation.