His brain is now damaged and can't go to SSA. Before my father became ill, he took care of everything he thought we would need, including naming my mother & me as POAs.
When my father started getting sick, my parents moved to a senior facility. We input change of address forms with the Post Office. They do not provide cards any longer for notifying people so one has to rely on the PO to take care of changes. They only do it for 6 months & then stop. Because my father got really bad within 6 months of moving, he was not mentally able to help us do much, and as things have progressed it has become worse. He is now completely bed bound. The best answers one can get from him are yes and no, but one never knows if that is what he really means. Because his legs have now pulled up in a permanent fetal position (can't even be pulled down), we cannot even get him to a car. If he has to go somewhere, it has to be by ambulance.
This year we did not get tax forms from SSA. So we got a caregiver for Daddy and I loaded Mama and all the legal papers up and we drove to the other side of the county to go to SSA. They refused to give us the tax information or change his address because they "don't recognize powers of attorney". They wanted me to bring Daddy in for him to give them permission to let me do the business. I explained why that was impossible. It did not matter. Does anyone know if this is true? Why would an agency that deals with the aged and/or ill people not recognize a POA? People are encouraged to get things ready for the possibility they may not always be able to handle their own affairs & the main agency for dealing with them refuses to honor the written, notorized wishes of the disabled? It just does not make sense. What really is crazy is the military has helped us get things changed, IRS has changed things for us. All of these Federal agencies recognize the POA. Why not SSA?
Has anyone else run into this issue?
When her checking account builds up to a significant amount I write out a check and we take it to the credit union and deposit into her saving account, not into mine. Yes we have separate savings account at the credit union. Should an audit be done by medicare, medicaid, or SSA it should show these transaction clearly for them.
I pay all of the bills, including any co-pays for her medical treatments.
I am working on getting myself appointed as her guardian. That is taking nearly a year to do.Our only judge that handles that was just removed from the bench for fraud investigation along with his alleged co-conspirator.
Since I don't have anything giving me any sort of poa it gets a little difficult getting her care beyond our PCP. So I just let them play their little game until they determine she can't make the decision or answer their questions correctly.
I did find an elder care attorney and am just waiting fr something from him on our next step. As far as I can see the next step may be income tax returns. But our attorney is also a CPA so I should be able to get some guidance from him.
My wife did not have any sort of DPOA expressing her wishes so I may run into some trouble there.
This thread has been very helpful to me.
Good luck. We can all use advice on this.
Carol
One thing that should not be overlooked is that we have elected representatives in Washington who should be made aware of these problems. Write or call them and let them know the trouble that is being caused by these federal agencies and the problems they are causing people who are caring for elderly and infirm relatives. If a POA doesn't provide enough security for the person being cared for, then what can be done to securely pass that authority to a caregiver? Our reps in Congress should be able to find a solution.
them perhaps they might address these issues if you don't vote for them or tell them you will not unless they help resolve these issues. There are more of us then there are of them. These people or many of them are drawing three or more retirements while many of us got caught in the Windfall Act and lost most of our SS. I am so tired of our elected reps forgetting we elected them. Good Luck we will all be faced with these issues.
I talked to the hospice people today & they are supposed to be getting the letter from the doctor I need.
Today I remembered what used to happen everytime we got a Congressional Inquiry when I worked for IRS. Management literally jumped thru hoops to get issues resolved. I have decided that is what I am going to have to do. SSA should not be making life more difficult for people who have given up their own lives to care for others. Even if I can't resolve this issue for myself I am going to do what I can to make things easier for those who follow me. Maybe I won't get anything changed, but maybe I will. I'll never know unless I try. I propose we all write our Congressional representatives and flood them with information on what it is like trying to cut thru the red tape with SSA.
I won't have to deal with Medicaid or any lookback periods. But, I have been extremely worried about the uninvolved brother coming in after Daddy & Mama have died and wanting to know how every penny has been spent. I was also worried about keeping all of the receipts, bank statements, etc so I could prove things. Eventually these things add up and fill up space. My sister had a talk with my mother about the record and receipt keeping. We are working on drawing up a codicil to the will saying that anyone, other than my sister, that questions where the money has gone or questions their fair share of the estate loses their right to inherit anything. A separate agreement is being drawn up that says I am only answerable to my mother and sister and they have 2 months from the end of a month to question any amounts expended for my parents. It will set up a schedule of the date receipts will be destroyed (except of course what has to be kept for IRS and the like). Once past that date, they are beyond audit. I have been spending almost as much time taking care of their business as I have been taking care of them. My own life, like most of yours, has been neglected taking care of theirs. Next on the agenda is to try to simplify their financial affairs. They do not need 3 checking accounts and savings at 5 financial institutions. Maybe more than 1 savings account is needed, but not 3 checking accounts.
(YEA SURE ...minor!!!) detail I needed to get my Mothers Medicaid application approved!!! The entire application was a breeze compared to this. It was proof of her Life Insurance Policy not being a cash withdrawal before death policy, I needed to prove that it only matured upon her death. Sounds simple right???? A piece of paper stating a fact! How could this be a problem, they had my POA papers, they had told me this was the type of policy over the phone, they said it does not say that this action was ranted on the POA papers. So I called and called and called and called about 100 x's) ... well lets say I wasn't going to stop, until I got a yes!!!! I explained the details of my situation every time, I told each person I spoke to on the phone to make a note of why and what I needed every time I called. Then I finally got a smart girl on the phone that noticed my persistence and the urgency of my Mom's life on hold for just a written letter with the fact stated. She said "well OK that's all you need?"... she understood !!!! I wasn't asking for money just a letter for Medicaid!!!! She commented on my persistence and apologized for all the hassle!!! I had the letter two days later!!!
Mom was kind of "stuck" in a locked in unit for seniors, not a pretty scene!!!
I needed her finances in order to move on with her care plan.
I also had a hard time with a certain billing department at that Hospital, no one would answer my questions, only the head of that dept. knew the answers and he was always too busy and he'd call back when I wasn't home and leave messages. They wanted payment but I needed to explain, my Mom's finances were being held up due to the improper wording on the POA. So I went personally to the office, by this time the two girls in the billing dept knew me WELL, we were on first name basis they recognized my voice by this time, they knew exactly what I needed to do, as they both heard my story over weeks of phone tag, but this was not their job. So I said "is he in?" they said" yes, but he's in a meeting" " I said I'm off ALL DAY GOT NOTHING BUT TIME (big fibber I was) .... I'll wait until he's got time to talk to me.... I just want to pay but can't at the moment." I guess billing dept.'s are not used to honest people hunting them down.... Well I sat there for not too long... I had my meeting and got more than I expected (he showed me in a 10 minute tour... what I needed which door to go to who to speak to etc.) all of what I needed to do to clear up the billing issue and get her released to a NH. I had many applications to fill out by different departments, because as it turned out Mom was so broke (explained in the application process, paper trail I had to give) that I paid the minimum she required for her income level etc.
One lady I spoke to after all was done, I had called to make sure no strings were left untied actually chuckled and said you're a commendable person, most people would have given up long ago!!!!
See I think you need to not waist time people (employees) that you know are no help to you (there's a lot of them out their), you need to state what your need or actions or reasons are clearly, to those who can help or those who are willing to do "their job" , know the right questions to ask and to whom.
If you hit a dead end take a road that gets you there!!!!
SOME of those solutions might appear to be fudging, or borderline legal.
There are situations requiring dealing with these organizations.
lildeb did good, making joint w/right of survivor account with elder.
That fixes bill paying, handling money in/out of that account
--be sure to keep really good records where the money is spent, as if elder later enters facility, they might want data, to make sure you didn't misuse money they think should have been used to pay for his care in their facility. .
5-year look-back??
This mega-snafu garbage, not only for each agency, but between agencies is untenable!
Routinely, in each system, the person must sign paperwork [usually not POAs] naming / allowing me to interact on their behalf regarding that system and it's services--not even dealing with money: just paperwork, appointments, discussions of cases with systems, only. Despite signed forms on file, systems STILL argue, debate and deny access, for various glitches:
===form not on file; form done in a different office; form only for that time-frame; form only applies to one office, affiliated office needs it's own release form; on and on--==even though, at time of signing, we were told specifically the signature applied until the signer removed it--even when that is worded on the form.
===Further, releases for Others to interact on behalf of a patient, only apply to the hospital they are done at; if a patient is moved, I have been told, NEW releases and POAs for the new institution must be done--HIPPA laws really are cumbersome.
==SSA: Separate permissions to interact on behalf of client, are needed for SSA and for Medicare permission; either of these can get lost in files, or disappear, and need redone.
==VA: One permitted access person may be listed on VA system "face sheet",
other permitted access persons may be missed because they got added as "scanned in documents"; sometimes it disappears in their computer system, or a worker may just be having a bad day. Things get lost and need redone--or go in person to stand at the window to get person to dig thru computer files to find it. Accessing via the Community-Based Outpatient Clinics, instead of the VA's larger hospitals, is helpful, especially if you are there often enuf the workers recognize you [same for other agencies].
==DSHS: Usually one time does it, but they can lose it, and it may need repeated, if workers cannot find it on file.
There ARE people who commit crimes against elders by leading vulnerable people to execute new POAs and wills before the elder has been declared unfit, or simply intervening in their lives dishonestly. THAT still needs guarded against.
We need some method of putting a lock on POAs and legal instruments done when person is the most lucid, to prevent unscrupulous interlopers taking advantage of entire estates, and legal instruments need to be applicable to multiple agencies to smooth the POAs need to interact with multiple agencies.
Are the dishonest people a minority, or a majority?
Despite those, and gov't/industry troubles, real people, with real feelings, trying to "fix things", however imperfectly, usually driven by their own agendas and limited knowledge.
Our systems seem to be imploding: they were designed for maximum investment/ profiteering by some. NO civilization can survive continuing "business as usual" this way.
Those who have attempted to "fix it" keep trying to retain old patterns of profiteering: that will not work anymore.
We must do what it takes, to make viable, rational, sensible changes that even the lucid, less educated can understand.
Maybe laws and systems need deleted and re-built simpler, instead of continually patching old systems and laws, mistakenly retaining old laws/systems.
News ticker-tape: Legislation is poised for vote to allow up to a 5-fold increase in fees compensation to insurance companies, jacking up fees to Medicare recipients.
People are being legally locked into subscribing to these plans.
We need to contact legislators and tell them NO, and try to offer constructive alternatives to solve issues, so legislators have other input besides industry Think Tanks.
MAYbe we need new/better, more flexible rules for Medical Savings Accounts.
If we think banking industries ripped everyone to financial shreds, wait until we see what insurance industry has done, and is about to do.
Since before advent of "Advantage Plans", Insurance Companies have been getting over $800+/month from Gov't, per enrolled client, whether or not the client accesses medical care, in ADDITION to the Medicare deduction from the SSI check, monthly fees a client pays out-of-pocket, Co-pays, and other fees.
The insurance industry has grown at a blinding rate,, during the last 60 years.
Why? At what total [not just out-of-pocket] real costs to people, industry and our economy?
"How things are", is broken.
We are in a transitional time period for all infrastructure.
We can participate in that process.
When things settle down I will attempt to jump thru the hoops, but my feet hurt too bad right now to jump very high.
First thing I found out myself is the wording on the papers need to be specifically written for each institution that you need to do business with. One bank for example may be OK with basic, general wording, another may see it a problem if lets say it does not specifically say an address change may be made by this power for all needs. The words for a specific account may need to be stated as in the names and numbers of accounts etc. , if the words are not written as the institutions legal department see's fit they can deny you using the papers for a certain purpose.
As for Government .... I found that they have there own way of dealing with a P.O.A. situation. I believe this is for protection purposes. If they made it easy someone could really do damage to someones credit and finances. Imagine if You could easily call S.S. and say Mom is sick give me her income?
What I really don't understand is that most of us go to a Lawyer to have the papers written and none of these things are explained to us as a paying customer and if you find your self in the position of "What now?" it cost us more money for the, Lawyers, carelessness in the first place, by them not explaining anything in detail.
I really love my Lawyer but I must say it is really not fare.
I bet at this point I could give an education to a lot of people on how it "really works"
but no one wants to listen to me because I don't have the degree to charge a lot of money.
http://www.ssa.gov/payee/LessonPlan-2005-2.htm#WHATISPAYEE