I am battered and defeated. Tired of the same problems that my mother just ignores and brushes away. She doesn’t deal with the consequences so she doesn’t care. I’m left to clean up the mess. Sometimes figuratively sometimes literally. Oh sure, she feigns concern and promises change but in a day or so she returns to her old bad habits and nothing ever really changes. And before you ask, no. She doesn’t have dementia. Not that any Dr has been able to determine. So I’m left to decide......her or me? Don’t be so quick to respond. Many on this forum have called others selfish and heartless and unloving for choosing themselves and their families over their elderly parents. It may seem like an easy answer but it’s not. One answer causes guilt, confusion, shame, and loss. The other dooms you to a life of servitude (some say slavery) and loss of other family and friends. Not to mention your own health concerns. But still I read people on here saying “you’re a saint”. “What a good daughter”. “You are so kind and loving”. So what is it then? Huh? Not as easy to answer as you thought? Right. That’s what I thought.
My mother barely ever came through on a promise she would make. She just could be very unrealistic. I finally just accept this or give in. I am so tired of feeling the issues created by who she was and who I became. Expecting a person to change is challenging. It can be done but requires great personal resolve which is certainly made more difficult to achieve in the elderly. I am sorry for your pain.
You DO realize, don't you, that you have NO (NOOOOOOOO) legal obligation to support your mother in her attempts at "independence"?
Really?
Independence?
Let her give it a try. Let the equivalent of US 911 come and get her.
YOU, dear one, are not responsible for supporting her in this endeavor.
Seriously, I have said this over and over, I am all about family but if it means to be a doormat than it is not worth it. Sometimes life throws us a curve ball, but if you decide to walk away from a mother who doesn't or can't deal with cleaning up the messes she makes you are not being selfish...I repeat; you are not being selfish! Because at the end, we have to save ourselves and we can not change people. That is a fact!
Sad to say, I spent years cleaning up my mother's messes until these past few months. She thought after my dad died in 2014 that she at 71 yrs old she could handle her finances...well she was wrong! She got so far in debt that she couldn't see past it and my BF and I live with her in my family home. I, like you was at a crossroad...I had a choice help her out of this one last mess or walk away!
I sat my mother down and told her, you have to file for bankruptcy and there is no other way out..oh by the way, I am not paying for it! I went on to tell her, If I decide to help you that we now play by my rules! I take over your finances and I am cleaning out this house. If she didn't want to go this way then I and my BF will move out and she can go down with the ship and she wasn't going to be able to move in with me after she lost my dad's house. She agreed! She filed bankruptcy and lost her truck and my brother's truck because only her name was on it...she had loans on both trucks and a visa card with a 9,000 dollar owed. In total she owed a credit union 11,000 dollars and another 7,000 dollars on 3 other cc. I know I seem harsh...prehaps mean, but I had to let her know I meant business.
You my friend are at a crossroad and here is the questions you need to ask yourself, "what can you live with and who do you love more? I may sound selfish, but whether it is a boyfriend, friend, or family I always say, "I love me more!" Now, I am sure I might get haters for this, but someone once told me "we teach people how to treat us." If I don't love me, who will? Plus, I am going to be with me for the rest of my life!!
No one hear can make your decision, but if your mother refuses to help you clean up her messes then she has made her choice and you need to make yours. Just remember sometimes we just have to walk away from people and that includes family!
I wish you the best of luck!
Hugs!!! Lots of hugs!!!
Please don't think because you chose the path to do what is best for you and your family that it anyway diminishes you as a caring daughter. It only proves you have the insight to know your limitations. Some of us have the capacity to enter caregiving with our LO with an open mind and a full heart......I'm just not that person and I no longer feel torn. It IS a difficult decision, and only you know what's best. Don't be coerced to take on more than you are capable.....and after careful deliberation you will know what gives you peace.
Caregiving is the toughest challenge I've had in my life.
I'm 79 my husband is 73 and had a motorcycle accident 15 years ago which has now traveled into dementia. We were just married 10 years.
I 'm lucky I married a sweet, considerate,smart guy so I had ten years of a fabulous marriage. Now I deal with Dr, Jekyll and Mr. Hyde.
There are many day when I want to pack up the dog, three cats, drain whatever is left in our bank account and disappear. What prevents me from doing it is Dr. Jekyll shows up and we talk about the early days of our love and marriage.
Is it tough? you betcha and the tunnel I'm looking thru is very dark.
I just stay in the moment and connected to my family, my girl tribe and continue to stay engaged in the world.
We are broke, it's all gone but..I refuse to let the disease rob me of any joy in the years I have left.
rwriter
Hugs
I have dear, dear friends that are going through the same dilemma in which you find yourself. What I want to say to you and them is that you cannot and must not "go down with the ship." For whatever reasons, either because you've kept her afloat for so very long or she just lacks the comprehension, your mother doesn't have a clue as to how bad it can get if you walk away. You, of course, do know, and that's what keeps you hanging on. But if you are at the breaking point, you must do what it takes to save yourself.... and your other relationships and your health and your sanity. I can't tell you exactly how to do that, but I know that you must. See a lawyer and make sure you understand what you are and are not legally responsible for, then sit her down and let her know the honest-to-goodness deal. You can help her, but you can't save her from herself. You can save yourself, though and you simply must. Let no one who is not in your very shoes tell you otherwise.
I don't think there is any way to escape the guilt, confusion, shame & loss, but there IS a way to escape the servitude & slavery that comes with having a parent living inside of your home. Choose wisely. And best of luck.
I refuse to feel any more guilt over a situation I cannot fix or change. He brought it all on to himself with the way he treats people, and then wonders why everybody runs in the other direction. I have had to go minimal contact, as I will not let him put me in the ground like he did my mother. I feel like I've aged 10 years in the past 18 months. Some people just don't deserve the sacrifice and servitude of family after a lifetime of toxic dysfunction. No matter how much you give and do, they don't appreciate any of it.
Therefore, don't feel guilty. You've done more than enough and more than most. Do what YOU need to do to live YOUR life. It's a matter of survival. Please take care of yourself; your health and your needs matter.
Hugs
"If I could wave a magic wand, I would take away from everyone the guilt and stigma of placing loved ones outside the home. Making that choice and taking another step in losing the one we love is hard enough without adding a huge burden of guilt. I have fought the guilt for the last 2 1/2 years, since I placed my husband, and I still fight it. But rationally, I know that he is probably better cared for and certainly is safer than he would be at home. When I continue to visit, shop for his needs, pay bills, do paperwork and phone calls, take him to doctor and dentist appointments, I am still caring for him. I have not run away. And there is no sensible reason that a loved one's disease should emotionally and/or physically destroy not just the person who is ill but another person as well. I know that without placement, I would have been in danger of being destroyed. Everyone has a different limit in that regard, but when the limit is reached, we are not failing our loved one. We are doing the best we can for them and us in the middle of an awful situation. Finances are another issue, of course -- but if we could only say "no" to adding guilt to this already dreadful life situation!" -Carla Tracy
Many times my mother would say something like she needed to clean up/clear out stuff in case she ever has to "get outta here." When I asked what she meant, she said going to AL... So, that was the "plan." When dementia started, her brain lied to her and she insisted she was fine, independent, yadda yadda and if AL was mentioned she said she would never live in one of those places!! In the end, we had to come up with a ruse to get her to go to MC as she refused to acknowledge she had ANY issues and wanted no part of moving ANYWHERE.
So, yes, make sure the kids know what you want NOW and make sure they understand that there is potential for your views on that to change, should you end up with dementia, but that they should stick to the plan AND not feel guilty for doing so!
What I did for my Husband many in my support groups said they could not do but for me he was easy to care for. But I would not have been able to continue caring for him at home if it became a matter of safety for him or me.
YOUR safety, YOUR mental health should not be less important than your mothers.
HER demands, HER wants HER needs should not be more important than yours.
There are statistics that show a great percentage of caregivers die before the person they are caring for. This is for a variety of reasons but boil down to you fail to care for yourself. I will bet 100% of the support groups that you would go to they talk about "self care" and you wonder how the heck can you care for yourself when the person you are caring for demands or requires all of you. You make tough choices.
Adult Day Care
Hiring Caregivers that will come in and help out.
Placement in a Memory Care or Assisted Living setting
These are things the person you are caring for will not want and will fight but just as you fought the first day of school, the first time you were punished, the first time you were grounded...you got over it.
Stepping back, letting someone else do some of the work gives you a chance to breathe, obtain focus again. And in some ways allows you to be a Daughter, a Son, a Spouse rather than "just" a caregiver.
Do not let anyone tell you that you are selfish for taking care of yourself.
By the way if anyone asks if they can help...have a list of things ready
*Pick up a gallon of milk and some eggs next time you are at the store
*I have a dentist appointment next Tuesday would you sit with Mom so I don't have to cancel again?
*I have not had a good conversation in a while, would you come over for a cup of coffee tomorrow?
People will either step up or they will stop asking...then you really know who your friends are. (Or contact some of Moms friends and ask if they will come for a visit you can take a walk while they visit. )
If you don't survive mentally and physically, what good will you be to anyone, starting with yourself?
So you must do what it takes to preserve your own sanity and health first. All and I do mean ALL others must come after you have taken care of yourself to the best of your abilities.
My mother raised us to believe that we are NOT the most important people on the globe. She was right in some aspects but not in all aspects. If I died today, someone else would be hired to take my place at work. But if I allow myself to deteriorate needlessly, than I become no good to anyone. So take care of your own needs first to be able to take on the world's problems.
What works for you does NOT necessarily work for everyone. There ARE many like you who have been able to make it all work and that is wonderful, but it isn't always the reality. My mother/parents and mom's sisters and their families were able to take turns caring for their mother. SHE was easy to care for, needing only a safe place to live, good food, etc. She did NOT have dementia. If your LO falls into this category, then yes, it can and likely will work. If your LO is difficult, unruly, abusive, etc like some of those discussed in these forum posts and you can deal with it, with or without help, great for you. Not everyone can provide all that is needed. Comparing care-giving for a full grown adult is NOT the same as your parent(s) caring for you when you were growing up. IF our mother didn't have dementia AND could get around okay, and just needed the same care our grandmother got, maybe it could work. BUT she is NOT like grandmother was, not even close. Other posters have tried to make it work, but sometimes it just can't be done. If you want to encourage people who can make it work, great. If you come here to just pass judgement on others, then YOU are being judgmental and are not only not helping, but are being detrimental - we do not need your criticism.
As to your comments:
"all together now,but me first."
These posts are not about putting ME first. These type of posts are about those who HAVE tried to make it work and the person being cared for is so toxic, so unruly, so difficult both physically and emotionally that it just isn't going to work. On one level, yes, me first, because if the care-giving is so difficult that it takes you out, whether through your own death or serious medical issues that come up through stress, then what good are you to mom or other LO then? Certainly there are many out there (read the threads where one child is shouldering all the care-giving and responsibility and their siblings do NOT help and often provide negative help through criticism, refusal to agree to proper care, etc. Sometimes greed plays into those lovely siblings - they want YOU to do all the work for free and save any assets for them to get later, yet they either ignore you, your need for help or provide that negative feedback.) THOSE are the selfish ones, not the people here who are hanging on by a thread while they have been TRYING to provide all the care-giving.
"if the shoe fits-wear it."
Obviously your shoe fits fine. You can wear it with all the pride and smugness you want. However YOUR shoe does not fit the rest of us. While our mother was not among the worst I have read about, she can be very difficult. Leaving that out, it still wasn't going to work out to have one or all of us children provide the hands-on care. In her mind she is FINE, INDEPENDENT and wanted NO part of moving ANYWHERE or having anyone come in to provide care. We tried those avenues. She refused the in-home caregivers, she refused to consider moving in with one of us. She developed dementia at 90+, so it also isn't like we are spry young adults! Mom and her sisters were probably in their 50s when caring for their mother. Many of us are well beyond that age, sometimes needing some care-givings ourselves!
Care-giving CAN be ensuring the LO has a safe place to live, and providing all the non-hands-on care needed (handling all finances, medicine, non-provided necessities, making/taking to appointments.) Although this takes up a lot of my time and resources (I get ZERO help from brothers), it IS what I can do to ensure mom is safe and cared for. There is NO SHAME in going this route. If you still don't get it/disagree, that's YOUR problem.
Examples for OUR case TBD
But I know she needs care that I simply cannot give her: medication management, occupational, physical and speech therapy, and -- most of all -- caregivers who know what the hell they are doing. I've only been at this for three years (I cannot fathom how so many people have been at it for three or four times that long), but I have reached my limit.
Mom has horrible hallucinations and delusions and gets extremely agitated. I can't handle that physically (she's still pretty strong), mentally (I have no idea what to do), or emotionally (I have to fight hard not to lose my $#!+).
I finally realized that to keep her at home (I moved in with her after my dad died) any longer is selfish on my part. It's my guilt and fear that are holding me back. I have to look at what is best for her, and there is no doubt in my mind that she needs the care this facility can offer. (I am so lucky to have a great place; my dad was there for seven months, so I know the staff.)
I agree with others who have said that sainthood has nothing to do with any of this. I didn't ask for this, but I stepped up because my mother needed me and I love her. On the day we buried my dad, I promised her that I'd take care of her here as long as I could. I have kept that promise. Now I have to step up again and do what's best for her.
If you chose to be a slave to your Mother you may end up resenting her and loose the trust of your family and may have damaged the relationship with them for placing them second fiddle.
I had to make that choice and it was hard! Guilt consumed me. When I was with my Mom I felt guilty for leaving my husband. When I was with my husband I felt guilty for leaving my Mom. So I made the decision to set up all kinds of care for my Mom. Did the absolute best I could and went back home to my husband and frequently visited my Mom and called her everyday.
On the last trip home to visit my Mom I got the call she passed. I was shocked. More guilt.... I should have been there. I could go on and on.
My advice is take care of those who love you the most. Those you still have a long future with. Do the best you can to make sure she has good care and avoid the frustration and anger that comes when the parent turns into an ugly person you don't recognise (mine did not have dementia either, just got very bossy and demanding). And try to focus on all the good times you had with her instead of how hard it's been.
(hugs)
He has Mother major wrong with him, no heart issues, no lung issues, all fine and good. Members of his family live to almost 100. So we could be looking at another 8-9 years of caregiving. We are 64 & 66 now, and can only be a hour away. Losing time that we really don’t have and sacrificing our disabilities for his. It’s a no win situation.
What works for them is fine, but they have no business trying to lay guilt on those of us who can't or won't do the hands-on care-giving. Some people have not had a good relationship with parent(s.) Some parent(s) are simply out of control and/or are extremely difficult to care for, either medically, cognitively or both. Some of us have our own medical issues and cannot take care of an adult this way. There is no one right answer for all, just what is right for oneself. Even if you want to help, but physically cannot, you shouldn't feel guilt. We CAN help in many ways (as I do) without being the hands-on person (or doormat, as the case may be!)
BTW, to those sad-song-singers, we are here to SUPPORT and HELP each other, not to pass judgement on each other. What was that saying - judge not lest ye be judged? Take your song elsewhere.
Momsgoto - If she had dementia, it might be understandable (even if unacceptable), but it will wear you down. You say she doesn't (and hasn't been DXed with any form.) So, does mom live with you or her with you? It might be best to find separate accommodations if either is the case. If not, then let her live with her own messes. If she gets tired of it, she can clean it up or hire someone to clean up. You can facilitate that, if you are up to it and she agrees, otherwise, hands-off caring!! If it means not visiting with her to assist in ways she does need help, you can tell her that you won't work in a pig-sty!