My LO’s personality seems to be changing since Easter. I know that LBD symptoms can vary from patient to patient but there must be some info to help me figure out where we are and what I can anticipate? I don’t really even understand how my LO will lose his battle with LBD If he doesn’t have a significant fall or a stroke. There are no support groups in my area and I’m feeling lost and a little scared. I need a resource that calls it like it is vs being sympathetically vague. The neurologist gave my LO 2 yrs and we’re approaching the one year mark. Any help is greatly appreciated!!!! As always, thank you!!
http://www.lewybodydementia.ca/lewy-body-dementia-phases-and-stages/
Falls seem to be more common with LBD--it has a big impact on blood pressure levels--so I made sure my husband wore "hip protectors" 24 hours a day. I did not want him to die because of a fractured hip or femur.
I don't know what stages to follow, if there are any, other than "later" stage but I firmly believe that he is slowly starving to death, despite all interventions to increase his calorie intake. He does not appear to be in any distress and still enjoys a glass of wine! Make the most of what you have now and, as you will hear, time and time again on this wonderful forum, self care means that you can care for him for a longer period of time and still keep your sanity.