Mom has been in AL for a year now.
We now know that she is declining cognitively. (I have yet to have a Dr. give her a Dementia diagnosis, but that's an entirely different story).
I'm just having trouble figuring out how to talk to her when she has these episodes of total confusion. She's very intelligent, but stubborn and conniving too. She called me and told me I needed to pick her up and take her home otherwise she was gonna walk. When I told her she was already home, she argued and said no. She kept asking me where her stuff was. She thinks where she is living is temporary.
Because she slipped and fractured her hip, she had to be moved from her house to AL in a short amount of time. Her house sold within 6 months and we put a lot of her belongings in storage. We have furnished her apartment with many of her favorite things, though.
What do I say to her in these times? Is this because she needed "closure" from her life before the fall? And if it is, how do I give her that closure?
Should I take her to the storage unit so she can see the remainder of things that were in her old house?
Or, do I just stop trying to figure out the "why" and keep reminding her about her life as it is now?
Ah. Actually, you argued.
Also, she is technically correct. Although she is now formally resident at the ALF, this is not home to her. Not yet. You know what she means by "home," and you know it ain't the ALF. Don't waste your breath on this conversation.
Ohboyohboyohboy what DO you say..? I know how difficult this one is.
Ask her about the here and now - what's going on that minute (are you in your room? Did you have lunch yet? Has your headache gone from this morning?), leading to what she can recall of the day (agreeing and expressing appropriate interest or sympathy, whether or not she really did meet the President or somebody stole her groceries on the bus), leading to a bit of what you've been up to (anything that will make sense to her), leading to what is happening next, today (I expect you'll want to watch Single Forensic Pathologist Jails Entire Organized Crime Network, won't you? It's on in five minutes...).
And if you can't keep heading her off until she comes back to the present day and you're getting desperate, tell her you have to go and you'll call her tomorrow. Then say "love you" and hang up. She'll be fine.
When dementia is at play, you can remind mom about her new life 1000x, but she'll keep going back to asking the same question regardless; she'll want to 'go home' no matter what you say. Many elders don't even see that they have a problem to begin with! Going home is a very, very common theme for these elders; some even pack their bags daily & wait by the door to be picked up to GO home. Oftentimes, they don't know where home even is; it's more a place in time when they were younger & healthier than a brick & mortar building. Your mom may actually remember her house, but it's not a good idea to take her to see her things in storage!! That will likely upset & confuse her more. Leave her be where she's at, distract her when she gets upset about going home, and repeat the doctor mantra.
Here is a link to an excellent booklet on Alzheimer's/dementia for you to read to gain a better understanding of what's going on in mom's mind:
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Here is a list of useful tips for you to use when dealing with mom nowadays:
The “Dont's”
· Do not reason and argue
· Do not demand that they reason or problem-solve
· Do not demand that they remember
· Do not demand that they get their facts straight
· Do not correct their ideas or scold them
· Do not reorient them
· Do not think that they are being uncooperative on purpose
· Do not think that they really do remember, but are pretending not to
· Do not use a “bossy” dictatorial attitude in care
· Do not act with impatience
The "Do's"
· Enter into their frame of reality, or their 'world'
· Be aware of their mood or state of mind
· Use few words and simple phrases
· OR use no words, just friendly gestures and simple motions
· Do everything slowly
· Approach from the front
· Wait for a slow response
· Constantly reassure them that everything is 'OK'
· Keep people with dementia comfortable 'in the moment' - every moment
· Maximize use of remaining abilities
· Limit TV or radio programs which they may feel are frighteningly real
· Maintain privacy
· Provide a safe physical environment
Language Needs
· Use short words
· Use clear and simple sentences
· Speak slowly and calmly
· Questions should ask for a “yes” or “no” answer
· Talk about one thing at a time
· Talk about concrete things; not abstract ideas
· Use common phrases
· Always say what you are doing
· If they repeat their question, repeat your answer as you did the first time · Give them a longer time to process information
· Wait patiently for a response
· Be accepting of inappropriate answers and nonsense words
· Speak softly, soothingly and gently
Wishing you the best of luck!
Intelligence means nothing when Dementia is involved. It effects everyone the same.
I know I have had to repeat facts over and over. I try to do it as though we are starting at the beginning each time and work on being patient. There are medications that can slow down the speed of decline involving cognitive issues. Hopefully there is a staff doctor you could discuss this with. Said medications won't solve the problem but is worth asking about depending on what her diagnosis is.
I don't know that there may ever be closure. I would hope for acceptance.