If so what kind of aid? I have a tiny portion of land from a life estate program, that has been preventing us from getting help. It does not care for our needs on a regular basis, I have had to get loan on my car, barrow money to put in our crop on the little piece of land, and hope to reap enough from the income to pay off the loan, meanwhile we have no other income except the remaining dollars off a loan that was made to an individual who is trying to pay it off, and social services call that assets, even though there is no regular income to depend on to meet needed care expenses. Husband is bed fast, but still aware of his home, and I do not wish to disrupt him by dragging him to a care center just to survive. Presently I have two hours of scheduled help, One hour in a.m. and One in p.m. to do the things regarding lifting for him that I cannot do, but the rest of care I can do. He has diabetes, congestive heart failure, and sleep apnae, all serious health issues, and will be 80 this coming August. He has been a good man and deserves the best possible care, which I think he is getting by being in his own home. I do not want hospice at this time, due to the stipulations regarding no hospital care etc. I find they only supply comfort care while they pass on off the scene of this world. They are wonderful people, and have their place in helping people in that time slot of life, but I choose not to go that route at this writing. So---Question again, If I chose to take division of assets at this time in life, which if approved I think there may be a way to have medicaid, will they help us have care in the home and provide the necessary things needed to care for him in our home? Letting me be the main care provider, with other care included to make it possible to continue to have him in his own home? I am not in a position to have the time to go and start proceedings without someone to be here in the home while I am gone. So I do not wish to have to spend a lot of pointless efforts at this time, if there is no hope of getting help for him in the home and side stepping the dragging him to a care center to finally get any kind of care for him. I would like to know how the division of assets work before I pursue the issue. Thanks, Joy Lee
As for Medicaid vs. Hospice, Hospice is fully covered by Medicare and would not bring MERP (Medicaid Estate Recovery Program) into the picture. Plus farms are an exempted property under MO Medicaid. Never give them the gross income from the farm, but the net amount after expenses. Your house, however is not fully protected, just exempted while he is alive. I think you would be better off to call in that loan and use the proceeds for his care, and avoid Medicaid all together. If he was a wartime vet, I would see if he can get VA Aid & Attendance instead of Medicaid, because they won't go after his estate. Neither Medicaid nor Medicare nor the VA would force him to go anywhere, he can stay at home as long as you are able to care for him.
My father had congestive heart failure, and summers were very hard on him. He died in early August, during the hottest dog days of summer, even with medical intervention and no Hospice. My gut feeling is that you are facing a very similar scenario. Hospice or no Hospice, he may not survive the summer heat and humidity. With time being so short, I would not put myself through the hassle of hiring a lawyer to sort out and divide the assets, then hassle with Medicaid, because he could pass on before you get a decision. I would keep the Hospice number on the fridge in case I needed it. My thoughts and prayers for angels to guide you.
I did not use Hospice for the same restrictions. Hospice is fine for people with end stage cancer and other like illnesses who wish not to continue their suffering. However, if someone is elderly and experiencing the normal aging process often they do not qualify nor should they. I also was not willing (nor was my father) to give up medical care for ever changing medical needs that arise with old age.
Having said all of this, as the primary caregiver with very limited income you are not eligible for long term care for your loved one under Medicare. Medicare does not provide it. If he has a recent hospitalization and needs rehab to return home the Medicare program can give the elder up to 90 days of rehab.
Good luck hopefully some day America will assist those families who want to care for their elderly in the elder's home and not just institutional care like nursing homes. We are not there as a nation yet. Perhaps 79 million aging Baby boomers can make it a routine option for aging folks. We will see in the next quarter century. We really do not have enough nursing home beds for the boomers of the future.
I went thru Hospice-care with both parents. Hospice literally had to discontinue care altogether, when I took my Pop to the ER several times... oh, did they fuss !!! Yet I never heard my father say "I want to die" ... he therefore had the right to proper medical protocol for his medical problems even if it required ER and labs and IV-drips to control his Lung cancer SYMPTOMS, not his cancer.... Funny thing is... that each time I brought him home feeling 100% better... Hospice took him back...they did not want to loose an account... Since I worked in Hospitals, etc for 20 years, I ran my mother's and father's care ... often displeasing Hospice..., however not the Nurses who came to the house, but their bosses in the office...
It is a difficult situation for Medicare to be in, caring for the severely ill, with rules that dis-allow extreme life-saving measures... which Medicare rules tell Hospice to avoid, and yet they do not want to say "just let him die"...no more care....
So as long as the ER measures are to ease pain and suffering of the condition... Hospice did justify to Medicare -taking him back - ... Hospice walks a tightrope there ! They are also used to have the household follow their rules... again I did not allow that.. i.e. the paper on the fridge which says "NO resuscitation" ... They got very fussy, when I did CPR on my mother. When I saw her not breathing I quickly felt her pulse...she had a rapid one... checked her mouth cavity which showed froth- not breathing ... meaning she needed suctioning... fast... which still did not revive her, and at that point I did CPR, which did the job after only 3 compressions... In other words there was a difference between my mother dying of her illnesses, and her chocking to death from accumulated saliva in her mouth.... and I had in my opinion every right to do CPR.... OR- I would have stood there letting my mother choke to death , knowing she had a pulse, knowing that I knew how to do CPR, in my opinion that would have made me a murderer !!!..... This still upsets me... It was MY mother !
The Hospice rules on the Fridge not only required me to not use CPR, but also required me to report emergency situations to them Hospice...which I did. They sent a Physicians Assistant to check Mom out... who stood on the opposite side of Mom's bed from me, with Mom looking at him, and proceeded to tell me that I had no right to do CPR... etc.... and I had to motion the fool to the hallway and remind him - like I learned in NSG school, he most likely was told also in all his training, that Medical personnel is NEVER to discuss such delicate subjects in front of a dying patient... as one never knows how acute their hearing + comprehension actually is.... !!!!!!!!!!!!!
It is just plain tactless...
It took him awhile to understand the difference between a choking attack and dying of the terminal condition... and I asked for him not to return ever.
Well, we all make mistakes and even Hospice care is only as good as the persons they employ! One certainly has the right to refuse caregivers who are not up to par !!!
I agree with the earlier statement, that rule-changes are necessary to have Medicare extend their HOME-CARE HELP... which most patients prefer over NSG-home care...
Home Care would have to be awful before 90% of elderly patients would "prefer" NSG-home care.
... It is already acknowledged that home care assistance is a lot cheaper for Medicare than NSG-Homes.... and this is why Hospice came about... yet it is not far-reaching enough in my humble opinion... especially since I have seen this care aspect in , England, Canada, and Germany...
I cared for my aunt there and a terminal brain-cancer patient... both had in-house daily visits from Nurses for simple bandage changes for leg-ulcer-care, and Aides for personal care, provided by their health-insurances.... The Docs even come to the house there....for any sick person.
.... yes... I know... different places... different cases !
Yet there is a County Service here, which also came to my aid when I cared for a late-stage Parkinson's, almost blind Mom , with severe osteoporosis, heart- and other problems, and later for Dementia+cancer -riddled father who forgot his 2nd [English] language, but could still swear in German, when things hurt.
This service is called ESP - Elderly Service Program -
I am quoting directly from their pamphlet next to me:
" What is ESP? "
ESP is a support service system for Butler County, Ohio residents, age 60 + older. helping them to remain in their homes.. Funded by a property tax levy, ESP provides both short + long-term care.
No charge for initial call for case management services.
You may be required to pay for a portion of the cost for in-home services, based on your income, minus your medical expenses. However, all services are provided at no cost to qualified low income elderly.... includes:
Companion Service, Emergency Response System, Home delivered Meals, Homemaking, Independent Living Assistance , Minor Home Modifications, Medical Transportation, Medical Equipment, Personal Care, Adult Day Services, Pest Control, Respite Care.
So the age limit is a determining factor as well here.
This service provided me with a care giver who became a friend, and came as she could squeeze her visits into her own family affairs... Her presence allowed me the shopping/personal time needed, and assisted with the 2-person job of getting Pop into the whirlpool bathtub....which greatly improves blood-circulation.
I sincerely hope every County in the States has such a program set-up...!!!
I also wish everyone best result-outcomes from all our searches here... Wishing you well ! DHilBe ... author of " Abbreviations are getting my GOAT!" which seem to have taken on a life of it's own here ... hahaha !!!