She remarried and they moved to his hometown with no family or friends. We (3 children take turns) going to visit. Her spouse was her caregiver in MS, but not he is getting Hospice and we relocated her to CA. Everyone works and we need to place her in a home. She says she needs to go back to take care of him. She wants to go back, get her car and take care of him.
If money doesn't exist your options, sad to say, will be extremely limited. I wish you luck as this is difficult.
Elizabeth
Try to keep them in the same home, or transport him to CA.
It may not be easy, but it may help them both, and give you peace of mind when they are no longer here!
The lady that is sharing the room with my Aunt in the nursing home is on hospice and they come to see her there. If not, maybe you could let her talk to him every night on the phone. It is amazing how comforting the sound of someone's voice can be. It might not only comfort her, but him as well. Maybe there is an assisted living apartment where they could both get the care they need depending on the cost. If he is a veteran that served during a period of war, Veteran's aid and attendance will help pay for assisted living for both of them or pay for a caregiver to come take care of them both so that they can be together.
Its ok, we all needed a good laugh
Best wishes to you all.
As for how to assist her with the shock,grief,loss of a primary caregiver-well
ask yourself
What are your expectations should she be moved to a nursing facility?
Are there days for visitors? Gatherings in nursing facilities are quite common-
Be mindful that the long term changes ahead for this/your family cant be minimized. Give yourself time to grieve the loss and give her the dignity of the same. She's telling you he knows he's not there-ask yourself does she really understand what is going on?
Have you found that he is being cared for adequetley and by competent persons? If so allow them to do their jobs.
Worked in home health as a private duty care provider who has had the priviledge of observing lots of adverse behaviours that are temporary.
There are lots of support groups in hospitals,nursing facilities,senior citizen centers-care for yourself and be midnful of projecting your own concerns.
There is not going to really be one adequate answer which will suffice because it is unclear how much will be understood by the individual with the feelings of loss and with dementia this comprehension level can differ even by the hour of the day. The most important thing to focus on is making the tone of the answer, therapeutic fib, or euphemism employed as sympathetic and empathetic as possible. Make sure they know you feel their pain or loss and that you are there for them.
It does not matter how anyone else feels about it, it was for him and his comfort.