I had been taking care of both of my parents for over 2 years. Since my father passed away last year, I have been taking care of my mom. She lives 30 to 1 1/2 hour away from me and for a long time, I have been going to her form 3 to 5 times a week. My mother has dementia and she has many health issues. She used to smoke 1 1/2 packs to 2 packs a day and now with the help of 3 to four aides, she smoke 1 to 3 cigarettes a day. She was in hospital many times in one year! Since she fractured her hip a month after my dad passed away, she cannot walk around and needed to be reminded to use her walker. To make long story short, I am taking in a way taking care of her 24/7. including taking care of her bills. My husband has been unemployed for 2 years and I have some health issues and I am in a sense working full time taking care of mom. I am not getting paid to do this and my family and I are financially strapped! I don't know what to do about this! My sister lives out of country and the original agreement was that we get equal share when mom pass away. I don't think its fair. Also I need to make some money in order to take care of mom! I told my sister that if things heading this way, my family and I can lose our home. She did not say anything nor did say anything to support me. I am so lost and scared and don't know what to do anymore. Any suggestions?
In our case they are saying they are saving the (money by not paying us) for her to be eventually put in a better nursing home than a state provided one. She is 86 almost 87, if she did go in a nursing home are they prophesying, How long she will live? To how much money she needs???
SHE IS VERY HAPPY LIVING AT HOME.
it is not like the others wont get their share. although they are taking their mother never, it's like they are negotiating to give us an ultimatum of no pay V______or a nursing home. Can't there be a happy medium?
It is a problem when parents (who you are caring for) have golden children (your other siblings), but quite another when they had it down a generation.
Our next court date is Dec. 2 we thought we were getting paid.
The guardian promised me that their would be no problem...last January.
Still almost a year later nothing, after all, I am providing a service, that would cost more like $6500 a month when we are only asking to get paid for 7 hrs not the 24/7 that we provide.
We are going to have postpone for a hearing, and criminal investigation boy would we like to get the GAL AND THE GUARDIAN who has never been fair to us from the beginning.
They have treated us like scum of the earth for what?
GIVING A DAMN!
If a parent's money is used for their care, I'm 100% supportive of that, but if it's used to spoil a sibling's child or children, I'm not supportive at all. My parent's care choices have been limited by this behavior; my parent's medical needs were put on hold because of this behavior. This happens more than many of us would like to admit.
So, if caring for your mother is such a hardship for you, it's time to get her in a nursing home or assisted living, whether she wants to go or not. That way you're not destroying your own life, and in the end there won't be any money for anyone. Or get her to agree to change her will to leave you a more equitable bequest.
I somewhat agree with the people who said your mother should pay you for your services now (my parents reimburse us for expenses but not our time). If you can get her to agree to this, fine, but carefully document EVERYTHING. Otherwise you will have your sib filing a complaint with the Court that you "stole" your mother's money while she was alive. Not only that, but if she gets to the point of needing nursing home care, the State will want to know where all of her money went for the past FIVE years before they'll allow her to receive Medicaid.
I point out to my parents regularly (whenever they complain about the care they get from their daughters in their own home) that if they were in a nursing home they would have to pay a MINIMUM of $7,000 per month for their care. If they hired Home Health Care people 24/7 (which are the hours we work) it would cost over $13,000 per month. And I know the care and attention we are giving is superior to anything they'd get in a facility.
This money would not change my life in the long run but it certainly could help the grandkids ( in their bank accounts) .....
How would payment be structured on assets? This is an argument that I have heard it is responsibility of POA to make sure assets last the lifetime. That could be two days, two weeks, for many years. If payment is based on assets how do you determine how long the person is going to live? The person providing care should be compensated an amount that is customary for the care received.
You are so right about abuse of caregiver. I am going on 2.5 years, not been paid, while sissy POA claims financial exploitation by me. It took retaining an attorney to file for impartial third party appointment of conservator and guardian. What so many POA's forget is it is their responsibility to pay someone/anyone for services provided. The POA does not say except family! In fact most elders would want to be taken care of by family rather than go to a facility and would want to pay the caregiver.
This topic just drives me nuts and the people that think we should not be paid. It would be interesting to know if those people are 24/7 caregivers, otherwise employed, self-made millionaires, spouses that make good incomes, whatever. A survey would tell a much bigger story.
are the abuses to the FAMILY CAREGIVER
who is doing the job, but not getting paid,
because of sibling rivalry.
We have entered the 2 and 1/2 yr. mark
of having made a report of financial exploitation
and neglect (catholic charities elder abuse)
of siblings and despite some circumstances
of siblings putting her in AL (when she needed more)
against her will.
She continues to do well,
has gained her weight back,
is in a stable environment,
enjoys most of her life that she had prior
to her diagnosis.
AND we still are unpaid family caregivers and have lost out savings,
after 7 years of taking care of we are NOW asking to get paid from the estate,
they (siblings) made her sell her two flat house and we (she 86/ALZ and us)
are now in an apartment for 1 and 1/2 years. They do give her an allowance (the court), but we need to pay our bills, too!
Why do family caregivers always get a bad rap?
Like were sucking down beers and spending the SS check!
GET REAL and all mothers sit and eat bon-bons, too!
Remember that fallacy?
Overall, if you expect or need financial compensation or supplementation to care for mom, you should be getting it, now, preferably.
Hoping for inheritance is like hoping for a bonus after you quit an underpaid job.
I would rather see some assets liquidated and used for care, respite or NH if needed. On the other hand, mom's need for care and your husbands unemployment are 2 unrelated situations, I wish you luck with be latter as that one is more likely to affect your financial status in the long term.
Forget inheritance, that is money that may or may not be there in the future. Speak to your sis about needing to leverage mom's assets to get her into a care facility, so you and your husband can earn income you need. 2 years of unemployment ....without an end in sight....is a long time, you may need to do some financial planning and downsizing. This financial situation is not mom's or sis's doing. My suggestion is you use mom's assets to care for her, and focus on regaining control of your household financial situation.
Say mom hangs in for 5 more years, can you wait without an income?
BTW, your sense on being overwhelmed and seeking fairness are very understandable....it's been a tough 2 years.
Best of luck to you,
L
Actually it is all right because I suspect my mum would rather die than live there, and I'm sure my sister feels the same. Fair enough.
When it comes to caregiving, do it or don't do it, but don't blame other people for the choices you make and for God's sake don't do it for the reward, material or spiritual, because if that's your motivation you are begging to be disappointed.
As ive posted here once before a hospice worker said live on TV that when you become a cargiver your relationship with that parent changes when they are in AL or NH you can become their son and daughter again! This is so true I look forward to when I visit mum bring her out spend as much time as is healthy for me to do BUT still have my own life to switch off to!
Your Mom's money is indeed hers while she is alive. If she is mentally competent, you should discuss with her (and also, possibly, her attorney if she has one) a fair amount you should be paid for your work. This is perfectly fair and reasonable, as long as you can document your hours and expenses, and as long as your Mom has the funds. Make sure you have a written agreement. If she is short of cash but owns a home outright, it may be possible for her to obtain a reverse mortgage in order to pay you for your services.
And if your Mom doesn't have a will, she sure needs one. Personally, I think it's less likely to create problems between you and your sister in the future, if the will is divided equally, but in the meantime you've been paid for your services, than if the will is restructured with your Mom's agreement, to give you more from the will, but not pay you for services now.
Reading the answers above, it is clear that a lot of bitterness is left when hard-working caregivers get nothing for their services.
As a fulltime carer and a VERY selfish family who do zip I would expect siblings who have done nothing to care for their parents to give the carer something out of their inheritance for all the hard work that they couldnt have been bothered to do?
If anyone knows of any sibling who has done this out of the kindness of their heart let me know!!!!!
I agree that a will is our parents wishes and should be respected wouldnt it be nice though if the siblings just gave the carer something back?
I know I wouldnt have a problem giving them something if the tables were turned but then thats why im the carer because im the one with a heart!
I dont think money can make up for peace of mind and id prefer to have no money than live with the guilt of never being there for mum!
I have two sisters who both work jobs and make money each and everyday. They are both paying into Social Security for the future, if it's still there. I too feel like since I am the sole 24/7 caregiver that I should be given a larger share of the inheritance, since I am not being paid a cent to do this. I do however live in her home, pay rent, along with my daughter and one sister but I am the caregiver and have been for 7 years, prior to that it was my father being cared for.
If your mother has a Trust, she probably wrote it up where there were equal shares of the inheritance as mine did. They never took into account any care or expenses that one child might provide over the others. Did your mother give her Durable Power of Attorney to you or your sister? Who calls the shots for Mom's care? I have a feeling your sister may be the one who basically has the power as you have had to go to her for requests. The thing is if Mom does have a Trust you can go to the attorney and ask them to assist you with writing up a form that you are providing care to Mom and she is compensating you. Your sister should have offered to pay you for your services, but they are never going to do it, generally speaking, because that is coming out of Mom's assets which means less money to be divided when Mom dies. If outside help is needed they are fully aware that they must pay for services provided, but when it comes to family providing care they turn a blind eye and feel that you should require no compensation. You mentioned there had been or currently was 3-4 aides....who pays for them?
The thing is you are afraid to come straight out and tell your sister that you want compensation, so you "beat around the bush" and tell her how financially strapped you are and how you may lose your home. If you truly are providing 24/7 care to your mother, then you need to contact your sister and tell her..."Patty I am now providing 24/7 care for Mom, which means that two of the aides are no longer here and I am driving back and forth, I believe that for the care I am giving Mom at this time I should be compensated $--- per hour for the work I am doing. I am going to the attorney and having him draw up a form for my compensation. Although I have been providing care for free for # of months, I can no longer financially afford to keep doing this."
You are going to have to ask for COMPENSATION FOR YOUR CURRENT WORK, I do not believe your sister will agree to pay you a larger portion of Mom's inheritance, but the compensation now is what you may get.
I do not know financially how much money your mother has, but if your mother's illness becomes much worse and she needs to go into a nursing home, will she ever need to go on Medicaid? You need to think about that because they basically have to spend down all their money on their care until they have only $2,000, so you will not have any "inheritance" left, therefore it is better to take the compensation for work performed NOW. If you think you can take her money and hide it, forget about it, they do a 5 year look back on all income and expenses, they will make you account for every cent.
It is better to take compensation for the work you are performing now, than to hope there will be money left when Mom dies so you can have half of the inheritance.
By the way, since your Mom has dementia, she can no longer make changes to her Trust, therefore the DPOA is who is in charge. I urge you to ask for the compensation now for the care you provide.
Mom's will states everything is to be divided equally among her children (minus the large amounts of money each of them borrowed and never attempted to pay back....except me....I have never borrowed any.....the will states they are to pay this money back or it will be deducted from their share.....and if nothing is left at the end they must still pay it back......but I doubt that will ever happen!
Mom lives with me and my husband. She gives us $300 a month. A pretty good deal considering mom has NO debt and her only monthly expense is health insurance which is around $250. She has plenty saved and invested...in other words, mom is financially stable. This living arrangement has been going on for almost two years. I have DPOA. Mom's lawyer is aware of $300 a month we receive and it's documented in her file.
I'm sure I sound like a broken record because I've made some of these points before. I'm only 46 and my mom is 75. Most of the caregivers I read about are in their 50's and 60's, sometimes 70's taking care of parents who are in their 80's and 90's. I feel young to be a caregiver compared to others on this site. When I think about my mom's negativity about life and how she has chosen to live it (TV is her world) I think to myself "What have I got myself into?" Also, "Do I really want to continue down this path for who knows how many years while mom's dementia progresses?" (She has mild to moderate) Do I want to give up a part of myself to someone who quite frankly wasn't there for me after I turned 18? Who missed out on so much of my life and the lives of her grandchildren because she wanted to....with my dad....."do their own thing?"
So, I've spoken to my siblings and have started the process of looking for assisted living for mom. Soon I will visit some facilities and see what's out there. It doesn't mean I won't visit mom. I will. But I can "get my freedom" back and mom can continue to do what she's been doing......a whole lot of nothing.....and this is her choice......she LOVES doing nothing....and watching negative news on television, over and over! Believe me, I've tried to get her involved! I just don't care to be a part or a witness to that choice any longer. It's sad to see, it really is. Mom didn't even watch her grandchild graduate......TV was more important (shaking my head).
Who knows? Maybe moving to assisted living will force her to be more social, meeting people her age, etc. My biggest fear is she will go downhill in AL and then I will have guilt. At this point, I am willing to take that chance.
I don't care about mom's money! Someone told me the other day "You have done enough." Guess what? This person is so right! It took weeks and months to organize mom's paperwork.....it was a mess when my other sibling was the original POA. I've made meals, give medications three times a day, wash her clothes, answered the same questions over and over (I know she can't help this but, UGH!) I've listened to mom complain about why she needs her hair cut, why she needs a shower, why she needs her hair washed, why she needs to go to the doctors, why she doesn't want to call anyone (like her sibling who ALWAYS has to call her), and holidays are "just another day", blah, blah, blah..........I.have.had.it. She has "stirred the pot" more than once between me and my siblings until the siblings finally had a discussion that we were not going to let this happen anymore. I can only take so much! That and the fact that.....without going into detail.....I have a teenager that requires major surgery next year. I get filled with anxiety thinking about the challenges my child has faced since diagnosis and the pain he endures on a daily basis. I love my mom, but my child will always be my priority 100%!
Bottom line: Mom tells me she's lived her life, she's content to sit around and do nothing, doesn't want to go anywhere or do anything..........won't even make herself a sandwich (guess it takes too long and it's hard for her to stand because she sits all day and then moves to her bed in the evening....muscle weakness) then she should do it somewhere else on her own dime......and she has many dimes. My siblings agree. Negativity brings me down and at this point in my life I don't want to be around it anymore. I have to stay focused and keep my chin up for my teenager!
I will try and make the holidays enjoyable for mom and do my best to get her involved but I'm not bending over backwards......I will focus on my husband and kids! :)
I know mom is going to be upset when we have this talk.....the pouting will begin....and she may not talk to me after she's moved in but I'll have to deal with that like everything else I have to deal with.....one day at a time.
Have a great day everyone!