I've been pondering why our elderly parents and loved ones do not speak up when they require care and it comes time that they have declined in health and/or can no longer live alone. It has been said that the generation before most of us "Baby Boomers" was known as "The Silent Generation," a group born between 1925 to 1942. That may be part of why they do not speak up when they require help. Opinions?
They were brought up to keep their problems to themselves, "airing their dirty laundry for all the world to see" is considered, by them, to be unacceptable. They prefer to handle those problems themselves.
They are reluctant to be a burden to others.
They grew up in a time when nursing homes were nightmare institutions to be avoided and they fear being sent to one worse than they fear death.
The are embarrassed to admit they need help (pride).
They fear losing everything they have worked a lifetime to have. They want to leave these things to their children rather than watch them slip away to the "greedy" hands of doctors, carers and government facilities.
They don't want their loved ones to worry about them.
They have lived free and wish to die free.
They are in denial about the true state of their own health and financial affairs.
They are a generation of doers and self makers who see their own weakness as something to be despised even though at the same time they are sympathetic to the weakness of others.
I am 64 and hopelessly depressed. When I was my children's age,(41 &37) I never thought about my parent's "property or their stuff". My fondness for the movie Soilent Green motivates my feelings.
No one will remember you ever existed in a very short time.
1. We tend to live longer with medical advances these days, and the lines are blurred when it comes to how much a person can take.
2. The US society tends to push people to become more individualist and shuns those who need assistance. Thus we shame those who are looking for help.
3. Many societies revere their elderly. The US is not one of them.
Thus elderly people tend to lose more of what they hold dear when they ask for help: respect, position in the family, and their freedom. Pain is relative to this, and joy is elusive when these are missing from one's life.
Giving an elder (or sick person) something to live for would be more attractive if honor and respect come with it.
That said, my father had dementia. He lived eight years with congestive heart failure because his family held him in esteem. We know without him saying so, the he still had his dignity, and was hurt when he was not involved in decisions about his life, or the health of the family. We miss home so.
Was a big mistake to let oldest come on property and should have known it was only to benefit him not help us.
Always telling us you should not take this med or that one, and we should do this or that, you should eat this way or that. Even got his sister to start telling us we should be able to save X dollars after hubby was awarded disability comp. from VA. Why so they could have it after we are gone?
I do not blame parents for not wanting to ask for help from their kids. Some might be great and others not.
The bottom line is that NONE of us want to plan for our own demise and eventual death. We are in constant denial about this process as evidenced by the boom in fitness clubs, diet plans, and Botox - all marketed to stave off the evidence of aging.
When we ask for help, we acknowledge and admit our vulnerability. Most people still view themselves as when they were in their "peak" - be it as the high-school athlete or 30-something career person. This is the image they will always hold of themselves - even though a look in the mirror reveals that they are no longer "that" person.
Speaking of our self-reflections - I once worked with a middle-aged woman whose hair was about 80% gray. One day, she came in with medium brown hair (died). She told me that she never knew that her hair was so gray, even though she looked at her face in the mirror daily. She said that she always thought of herself as "a person with brown hair." It was not until somebody took a family photo at an event and she saw herself in the photo with very gray hair - which horrified her - and was her inspiration to die it back to brown!
So, I often think that when our elderly look in the mirror, that many actually see a "younger" version of themselves in that reflection, as if the mind is playing tricks on them as a self-protective mechanism.
If I were to be honest, she is not completely wrong. At 44, I would love to be able to have even just some of my life back. I’m working 50+ hours a week and much of my free time is with her. Most people deal with these issues of caregiving for their parents in their 50s and 60s. I was 38 when her “care needs” started requiring my active participation and management. Every year her needs increase as does her list of medical problems. Although I wouldn’t stop visiting, I would scale it back and actually take a well deserved vacation.
I am taking care of my eight (great) nieces and nephews, and did this when my father was alive. We worked our schedules around fun times with him. He still had something to offer although it was hard for him to even get out of bed.
I do believe that you need a break. In California there is respite care. I know your mom will hate it when you go for a week or two, but you really need to take a break so that you can rebuild yourself too.
Many times, I've had peers say, "Oh, my daughter says she'll take care of me." Or "I'll just move in with my son." Or other variations of "My kids will just have to take care of me."
My mind is saying, "Your daughter who spends 80 hours a week running a business with your help now?" Or "Your son whose wife you hate and who hates you?"
It's like a denial that bad things can happen. Well....bad things happen all the time, and not always to "other people."
I am truly an optimist at heart, with faith that God will support me through anything; but I believe I have a responsible part to play in my own destiny, and that includes not dumping my care on anyone who is handy.
That said, I am still thinking, "Does my lack of care that the floor hasn't been swept all summer mean it's time to move to senoir housing? But, I've never been an obsessive housekeeper...." and, on the rare occasions when I'm out after dark, "It's harder to see that turn-off than it used to be, and I was thinking about something else ...That's why I missed it." And, "I've left food out of the refrigerator overnight before, too; is it TIME....or not?"
I'd be happy to have loved ones point it out if/when they see problems in me, but 1) would they even notice or be willing to say anything? And 2) would I trust their assessment if they did?!?
We need a checklist!
First, I think it's our nature to rely on the past as a predictor of the future - I always used to be able to ride a bike, I certainly can now. I've driven a car for 50 years! I'm not stopping now!
Second, I think most of us feel younger inside than our age. Inside, I still feel pretty much like I did when I was in my 30s. But now I'm in my 50s. For example, when I mentioned moving to senior living to my aunt and uncle, who are in their early 80s. They laughed and said, oh, for when we get old, ha ha? (Um...isn't being in one's 80s at least close to being old? Are you expecting to wake up one day and realize you are "old?")
Third, my unscientific observation is that the brain does change somehow as we age. We will find out when we get there ourselves. Much like how things that baffled us when we are children, "suddenly" make sense once we're grown up, maybe our brains process information differently. Maybe this is what society interprets as "wisdom" that comes with age? I don't know exactly - but this effort that adult children take to "convince" their parents of something is rarely effective. I wish there were magic words we could use.
Additionally, some older adults seem to get overwhelmed when they realize their living situation must change, but they don't know how or where to start. The overwhelm could be part of the change in the brain. As younger adults they might have researched what to do, asked questions, formed a plan, and moved forward, but sometimes, for some people, that process doesn't happen when they are older. They let things stay as they are, and put a decision off for later because they don't know what to do.
Similarly, maybe our perceptions of risk change with an aging brain... "oh, I won't fall!"
Fourth, family dynamics. We all know how the older look at the younger and say, "my, you're getting so big!" or "I remember when you were in diapers!" That seems to negate all the learning and growth since you were a toddler. Similarly, there can be suspicion for ulterior motives regarding inheritance.
Fifth, we Americans love our independence. Others have made this point.
Sixth, and of course, fear of death. By bringing in help, we are admitting publicly that we are mortal. If family is helping, we can deny it a bit longer because, oh, they're just being a good daughter/son.
The thing that bothers me is that the adult children get stuck, in a way. Parents say they don't want help, and when they do get in trouble, they don't call us. Then we find out later and feel guilty. Next time they're in trouble, they do call us. Then we have to drop everything and go help. (If we don't drop everything...well, you're a terrible daughter/son.) Damned if you do, damned if you don't.
My conclusion is that I have a great empathy for older adults faced with change and I suspect the situation is so much more difficult than we know. Thanks for listening to my long-winded reply.
I work with baby boomers and their families, in several legal and counseling capacities.
I think this is a gross generalization. There are many baby boomers whose children complain that their parents expect too much help.
I think as with any group there are some people who act very needy even when they are not needy and those who are perhaps too proud to ask for help, or they are not aware that they need help, even when they do need help.
But more often what I run into with working with baby boomer families is that the baby boomer parent feels that one child is trying to take too much control. That is why they are fearful of asking for help.
Sometimes the adult child of a boomer may try to take control as as a way to shut the other children out for various reasons.
Sometimes they do it because they see the parent needs help.
Sometimes they are truly just bossy and controlling people.
Sometimes they are greedy and see control as an opportunity to take control of the parents finances.
I have clients that are in there 90s that are still living on their own and managing fine. They may be physical weaker but still sharp enough to take care of their finances.
These elders have sought outsiders to help with their finances and such if and when they need it because they see that one of their children is trying to take too much control and they do not like it, nor do they trust that child.
If you review cases of elder abuse, or talk to your state attorney general, you will see that the most likely person to abuse an elder is an adult child, typically a male child, but sometimes and adult woman
It is much rarer to have a trusted law firm or a bank trust department commit elder financial fraud because there are many people who oversee each other. Therefore elder abuse or fraud would be very difficult to hide.
Although, these types of outsiders sometimes also commit elder fraud. These cases more often make the newspapers when uncovered and are typically more sensationalized as they involve very wealthy people. Typically it is an individual provider rather than one with a larger organization with many employees.
An adult child who takes control over a parent's life through a POA or joint banking can get away with a lot of things, if no one notices and complains.
I have even spotted postings on this forum in which unscrupulous adult children are instructing others on how to cut out their siblings by getting the parent to change their will late in life, or appointing the unscrupulous child as durable power of attorney.
So, with that type of thing going on, would you want to give up control of your life?
Most boomers I work with, who do not have alzheimers or severe dementia, are extremely savvy. Perhaps they are concerned that the adult child attempting to take control of their lives will not act in their best interest, before their end and after their death.
BTW: The baby boom generation is not from the depression era, that is their parents. The baby boomer generations is split into two parts:
In the U.S., the generation can be segmented into two broadly defined cohorts: The Leading-Edge Baby Boomers are individuals born between 1946 and 1955, those who came of age during the Vietnam War era. ... The other half of the generation was born between 1956 and 1964.
You sound like a loving and selfless mother.
I have a feeling your children will want to take care of you, no matter what because you are a still a selfless thinking mom, and likely always were.
No one wants to admit that they can no longer do something that they have done for almost their whole lives.
How many times as caregivers were we offered help and we said..."No thanks, I got it" or "I'm doing alright" or any number of responses. Or did we ask someone to run to the store, or can you sit with Dad while I go to the doctor for my physical, or I would love to go to a movie with my ......... could you sit with Mom....
How many times did you see your child struggle with a wrapper and offer to open it and they say..."No I wanna do it". You offer to help turn the shirt right side out and they say "I can do it".
As parents you strive to form, to develop an independent person. You release this independent person into the world. Your Grandparents did that to their children, your parents. This independent person does not want to admit that they can no longer do some things.
You watch your parents trying to do things they now have problems with just as you watched your child try to open that wrapper. It is only when either frustration builds or an injury occurs that there might be some acceptance of help.
The funny thing is we have been taught from an early age that it is good to help someone. You feel good when you help someone. So why is it so difficult to accept help. Are we not denying someone the good feeling that you get when you do something nice for someone?
Wear it out,
Make it do,
OR DO WITHOUT” (emphasis mine).
The family members for whom I have cared were taught to do all they could for themselves WITHOUT COMPLAINT.
These dear folks weren’t “silent” without having a reason to be so.
Many of them went straight from being “seen but not heard” to being wage earners, because at least for the amazing Middle Class in our country during the Great Depression, there wasn’t the luxury of a whiney, protracted, decade long period to ”find yourself” before getting a job and adding to the resources of the family.
SEVEN of the eight surviving children of my grandfather and immigrant grandmother graduated from HS and went into a full time job the following Monday, and brought home the pay check to Mama as soon as it had been cashed, and DID THAT until the day they married.
Three of the seven never married, living at home until my grandmother died of Vascular Dementia at 81.
For the last several years of her life, my grandmother lived with sundowning, and her daughters took turns in her sad nightly vigils AND went to work EVERY MORNING, one commuting 35 miles one way, 70 round trip.
I am now the lovingly responsible caregiver for “the Baby”, who at 90 is the last survivor. By the time she found the voice she needed to speak for herself, the decisions she MIGHT have made had been largely lost to her, tendrils of dementia symptoms were already clouding her mind, and most of the decision making she might have chosen for herself had been lost to her.
I have the painful and difficult responsibility of attempting to manage her circumstances in the ways that most benefit HER.
I thank God that we are able to have conversations on her GOOD DAYS that help me discern what she might want for the rest of her life.
Sadly, I see many in her AL who have lost even more independence than she.
By the way “nursing homes” during the ‘30’s and on up until fairly recently were synonymous, and described as “Going up the hill to the poorhouse”. Yes, no one wanted to go there, and fewer made it to that age anyway.