My 91 year old mother is coming to live with me in a few days - she had a stroke 5+ years ago that left her with poor memory and balance problems. She can walk with a walker but due to inactivity her leg muscles are weak and as a result she has mobility issues. She also has cognitive impairments and is weak and frail. She needs constant care and is not completely helpless but close. She does not have AD - she is in touch with reality and her dementia symptoms have not worsened very much over the years. She has been living with my brother in her home and I have been traveling over an hour 4 times a week and spending 2 nights a week at my mother's to give him a break. She has been complaining about my brother and he seems burned out so that is why she is coming to my house. My main concern is her completely reversed sleep schedule, which has been somewhat encouraged by my brother. She will go to bed at 1:30 in the morning and is awake during the night and uses the bedside commode several times, sometimes as much as 4, during this period. She sleeps fairly soundly from 7 am to 3 pm. This is when my brother sleeps. So far she seems to be able to handle using the commode at night without falling but the thought of her moving around in the dark, even with night lights, is stressing me out and causing a lot of anxiety for me. I don't want to place her in a nursing home but if I can't get a little sleep I won't be able to function and take care of all her needs.
Her doctor suggested melatonin - I have not had a chance to give it to her regularly since I'm not at her home every night but on the nights I'm here it doesn't have any effect.
I feel desperate to the point where I'm considering changing my sleep schedule to match hers.
Thank you in advance for any advice and support you can give me. I'm trying to do what I think is right but I don't know if I'm strong enough for this.
If Mom's circadian rhythm -- her internal clock -- is out of whack, that is an extremely difficult problem to "fix." Melatonin is substance our bodies produce naturally. Taking a supplement can help adjust when the body gets the signal that it should be sleeping in a couple of hours. But it only works within a limited range of what the body finds "natural." If Mom "naturally" goes to sleep now at 7:00 am, the melatonin could help her fall asleep at 6, or maybe even 5, but it is highly unlikely, by itself, to encourage her body to fall asleep at 1:30. Melatonin is definitely worth trying, but under the guidance of a sleep specialist who understands how it works.
If Mom is safe on her own at night, this whole situation might be tolerable. Maybe helping her be safer is a good approach. I wonder if some physical therapy would improve her strength a little. Does she have a bedside commode near her bed? But since you say she needs constant care, you may need to have a night caregiver with her. Or sleep when she sleeps, as your brother did. (I don't recommend that, because you have your own circadian clock to deal with, but many people can handle a night shift.)
Sleep irregularities often tip the balance on whether a person needs the safety of a care center with three shifts of rested and trained carers. I know that you want to keep your mom home with you. Do your best to make that feasible. Get professional help from specialists. And recognize this is a very widespread issue and it is Not Your Fault.
How long will your mom be staying with you? You say you are giving your brother a break. If it's just for a few months, then I wouldn't try to change her sleep pattern, as it will switch back again when she returns home. I would try to work around it somehow. But, if it's for a longer period, say a year or longer, then I would discuss with her doctor. I would suspect that changing her pattern might involve a very gradual change. Like getting her up one hour earlier than normal and putting her to bed one hour earlier. Let her adjust and then gradually get her back to a normal schedule. I would bet the doctor may have some advice as sleep issues are huge. He may be able to prescribe something to assist her as well on a temporary basis, though, that sometimes has its drawbacks.
I would keep in mind that she may have to adjust to a new schedule, if she has to enter a long term care facility or rehab for some reason. Fractures are not uncommon with seniors and dementia patients. Good luck. Please post back how it turns out. I am curious.
In my husband's case the consensus was that enabling him to stay at home safely overrode any concerns about addiction or shortened life span, etc. Drugs have drawbacks and it is always a matter off weighing the pros and cons.
Jeangibbs, I agree, I'm worried my mother's cycle is so out of whack that it might not be possible to switch it. I forgot to mention that on many days my mother will continue to sleep even after I get her up at 3. She usually doesn't become alert until 11:00 at night. It makes getting things done, like bathing, eating, and drinking, difficult. Thank you for your suggestion of the sleep specialist, it is very difficult to get my mother out of the house due to her mobility issues and lethargy but I will look into taking her to one. Right now she is being seen by a visiting physicians agency and they haven't been of much help. Melatonin was the only suggestion. Your point about the melatonin only working around an established schedule is excellent, I had not realized that.
I agree that a night time caregiver might be necessary. She has a bedside commode and as of right now is able to manage but that will probably change as she becomes weaker. Unfortunately, my mother is and has been extremely uncooperative about any type of physical therapy. My brother and I tried when she first came home from the rehab center she fought us so much we just gave up. She has absolutely no interest in moving. I worry about her moving around in the dark so I am going to make sure I have plenty of night lights in the room. She is coming to my house this Sunday and fortunately my sister is helping me with moving her and will be staying for a few weeks, so I'll someone with me as I make my way through this transition.As a last resort, I might have to try to adapt to her schedule if I can't switch things around. Thank you so much for your excellent advice and support, it's been helpful and comforting to me.
Sunnygirl1, I'm thinking the same thing as you, I going to have to try to gradually change her sleep schedule. Her sleep patterns are so inconsistent that I'm not sure I can get her on a more normal schedule but I will certainly try. I really want to avoid her returning to her house, it isn't a good situation for either of them and that's why I think I'm feeling added pressure to make this work. I agree that she'll just go back to her old schedule if she does return home. My husband made the same point as you - her schedule would certainly be adjusted if she were placed in a facility. I can't imagine any facility putting up with this! Thank you so much for taking the time to answer my question, you've been very helpful and I'll keep you posted.
I like Sunnygirl's suggestions - making wake-up time something pleasant and soothing gradually changes the mind's perception to wake up anticipating that pleasantness rather than having to get out of bed and go through another day.
I'm going to start practicing these myself. I recall there were times when I didn't want to get up and face a lot of the problems that had to be resolved so I thought about art work, or mentally created a new garden plan. Then I could develop enthusiasm for starting the day.
I think we alll can use a mental boost occasionally; we just need more boosts as we get older.
There is actually a prescribed method ( way of doing) to change the sleep patterns.
One I remember was to go to bed one hour earlier each night to get on the correct schedule.
Another plan had advised don't go to bed before midnight if one is waking up too early and not sleeping through the night.
Then, having the daylight filter in helps set your sleep/wake cycle if you awake to the morning sun lighting up your room.
Bring Mom a cup of coffee or tea, each morning to wake her up. If she is sleeping in the daytime, make it a nap, then wake her up after 1 1/2 - 2 hours nap by bringing her a snack.
Your Mom will be so much better being cared for by you! Taking away the worry of travel to care for her will help you too. I am hoping!
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