In short, my mom brings up dying, falling, breaking bones, dementia, having to relocate to nursing, family trust/wills/finances etc often. She has stated multiple times that believes she will die soon (even though there is no evidence from her doctors that that would be the case). She lives in a “65 and older” community where these type of things happen often. I completely understand that these thoughts or fears are very real/valid. Specifically, she lives in a progressive care community that provides every type of care possible. Every resident is on a care plan. Care plans range from 24-hour skilled nursing to a weekly call to check in. It’s a wonderful place and she wants to stay/live there. Which is a major blessing.
I have shared with her that it upsets me when she often talks herself dying. We talk daily and this probably comes up twice a week.
She does not talk about it with her friends (they don’t need to know her business) and will not speak to a professional (therapy and/or medication is for other people, she doesn’t need it). I still encourage her to talk to her friends or the staff even though she doesn’t feel that she has a need.
I understand she needs to process her fears in her own way and it just happens that her way is telling me. It’s likely not personal. She’s just doing the best she knows how.
I now take medication and go to therapy because I struggle with my relationship with her. My anxiety tells me end the conversation if she is not respecting the boundaries but my guilt keeps the convo going.
Can you recommend any books or articles on this topic? Every parent/child relationship is different so I’m looking for something that offers multiple approaches. Any reference materials would be great.
She draws boundaries with the professionals that either the CCRC or Medicare is paying for.
Instead, you've been designated as the only confidante. Which isn't, frankly, why she chose to be in the CCRC. It's because she was planning in advance for some of the services now being required.
I'd handle this by saying, well, mom, you aren't dying today. You're living, and fairly independently (this had to be part of her personality for her to choose CCRC). I want to hear about how your LIFE is. Did you get out for a walk today? How is Betty who lived next door? Did you enjoy the concert that the CCRC had? And so forth.
This is her age and stage. These are her concerns. It certainly is painful to imagine her going through the end of life, but try your best to be a good friend and listen.
If she wants to discuss funeral planning in depth and it is simply too painful, you could always ask her to put down what she wants in writing for her executor.
You may find that many years from now you need the information she is sharing.
I remember one day, many years ago, when my dad was still strong and healthy and he told me exactly where he wanted to be buried. I wanted to stick my fingers in my ears and scream because the mere thought of life without him on earth was too painful to bear. When he ultimately passed away and I was overwhelmed with funeral planning, I was relieved and grateful that we had that conversation and I could give him exactly what he wanted.
Your mom is trying to have a difficult discussion with you and you should be receptive to it.
Your mom IS going to die. Law of averages have her dying before you.
YOU need to know what she wants.
YOU need to know does she want to be kept alive by machines.
Does she want to be intubated? If so for how long?
Does she want to be tube fed? If so for how long?
There is a form called a POLST (called other things in other states so check your state) and it is very detailed it is not "just" a DNR but it goes into detail about End of Life decisions.
There is a great pamphlet that can be useful called Five Wishes and it walks you through a lot of these conversations.
If this truly is a conversation you can not have for any number of reasons make an appointment with a lawyer (Elder Care Attorney would be best) and the Attorney can do all the paperwork needed that will make making decisions easier for you IF and when the time comes.
If the facility has a Social Worker that might help that could be a place to start.
If you truly can not have these conversations your mom should respect that and be willing to get things done with the help of professionals.
To think mom needs to be on drugs just because she brings the subject up is ridiculous.
Since you're the one who seems can't handle the conversation, it's too bad for your mom.
Are there any other Siblings mom can talk to?
Maybe while you're in Therapy, you can come to find out why you can't handle the talk.
So, in your case the next best thing would be books on dying. You can Google it and buy a good one after reading some reviews.
In the meantime, maybe instead of mom talking about it, give mom a special Notebook and have her right down all her Questions, Thoughts and or Fears and then Write what you think about each one and give it to her to read.
Or,
You might try to find a place where ya'll both can go regarding the subject death/dying and let her have her questions answered there.
https://www.amazon.com/Boundaries-When-Say-Yes-How/dp/0310209749/ref=sr_1_5?crid=1G3N0BQUO3D2X&keywords=boundaries+by+cloud+and+townsend&qid=1638906793&sprefix=boundaries+by+clou%2Caps%2C202&sr=8-5
Your mother does need therapy and/or medication and to realize that her behavior is harming YOU. Have you let her know that? Mom, I love you but when you go on and on about dying, it's affecting my health in a negative manner and I'll have to hang up the phone when you choose to get on that topic.
Back in 2000, I had a very traumatic experience which led to PTSD; I could not for the life of me stop dwelling on death; it kept me up at night, crying and worrying, to the point where I was a wreck. I realized it and went to the doctor who put me on Paxil. It helped me tremendously. But then again, I chose to help myself and not make my PTSD anyone else's problem. That's the key. Also, I started reading about NDEs which took away my fear of death completely. I recommend the book Proof of Heaven: A Neurosurgeon's Journey into the Afterlife by Eben Alexander
https://www.amazon.com/Proof-Heaven-Neurosurgeons-Journey-Afterlife/dp/1451695195
Your mother may get a LOT of comfort from this doctor's words about his near death experience and what he took from it. If it calms her fears about death even a little bit without the need for meds or therapy, wouldn't that be a wonderful thing?
Wishing you the best of luck.
In your first post you mention Mom is 70. That is not old. You mention she loves where she is living. You then mentioned she is passive-aggressive. Your Mom is a Debbie Downer. When she gets started you can say nicely, "Mom I really don't want to listen to things that could happen and may never happen. You are wasting your life worrying about things you can do nothing about. So lets not talk about these things again". Every time after that when she starts tell her you are hanging up or leaving because you can no longer listen to depressing things. I agree that Mom needs therapy too.
You need to set boundries now because Mom could live another 10 to 20 yrs. You are no longer her child but an adult. You should be able to talk to her as an adult, problem is you think as her child you may think its disrespectful. My daughter says the book by Cloud and Townsend is very good.