Do the people there help make it work smoothly? What will her reaction be? What can I do to help make the transition work? I think I'm at the point of placing her or almost at that point.I wonder if I'm ready. I'm trying to sale myself on the concept that she will be better there than home with me.
Facilities will have a new resident process, for lack of a better word. They are used to dealing with new people, and getting them established in the daily routine. They are used to new residents coming in and acting any way possible. Some are calm and quiet. Others are heck on wheels (my mother) who calls an entire lobby full of neighbors the B-word on her very first time going to supper. :-D Aside from that, my mother has never had better care and quality of life. They found another resident to buddy mom up with for meals & activities.
You can prepare yourself with education & information. Look on Youtube for Teepa Snow "Making Visits Valuable" series. It's for non-medical dementia care givers and can prep you for some of the things you are bound to experience.
A lot of people realize that when they are no longer nurse, janitor, cook, taxi, errand boy and gopher, their visits are more enjoyable. The visit isn't about to-do items, but just about sharing precious time together without all that other stuff hanging over your head.
The loved one's mood improves simply by being in a community environment with people their own age, and having a variety of stimulation. They can do a lot of things besides sit in bed or on a sofa and passively watch TV and the same 4 walls day after day.
My mom asks to go home. Dementia experts explain this is really a longing to go back in time to when life was good, not a literal request to leave and go home. Be prepared for this happening. Sometimes they mean their childhood home, or a place they lived long ago that might not even exist anymore. It's not a literal request. You can redirect by asking what was their favorite part of home and questions that will get her talking about her memories and on to another subject.
To prevent mom from crying when we leave, we visit her before a meal. The meal is a natural transition for her, and we can gracefully step away without it being much of a notice to her. If we tried to just get up and leave from her room, it would be much more difficult. We also try to pick our visit times carefully, so it's not too early (before the meds kick in) or too late in the afternoon when Sundowner's starts.
I hope this helps you in your journey.
Come back & let us know how it's going!
We did not visit too much that first week to limit confusion.
As for your question, my mom has been in 5 different facilities for various reasons and is now in her 6th year of dementia. The first assisted living facility, we made living room to look EXACTLY like her sitting room at home and her bedroom as close as we could get it. She fought tooth and nail not to go, but in the end she had no choice. She could not take care of herself at all.
Transitioning is different for everyone and what facility you put your loved one in will make the difference. Most all of them have excellent first steps and days and everyone welcomes you and your family member and you get a decent feeling. Again, if you choose the right one. Most will tell you not to visit in the first 2 weeks to a month, or I should say not to visit your loved one, but you can always observe from a far or just talk with the staff. It is important that your loved one gets used to his or her new environment without the hope of you bringing them back home. They need to settle into the routine and get used to the new faces and voices and new friends, if possible. Now you can do whatever you want, but that is their suggestion.
You sound like you are not ready to cut the strings. This is hardest for the caregiver because of the guilt about turning the care over to someone else as well as forcing her out of her familiar environment. It is quite a long process for the caregivers, family members to really get on board for what is happening and will happen. You can only go through it, nothing prepares you for this unless you have gone through it before. Do alot of reading, ask ALOT of questions, but always remember that every dementia resident is unique because the disease effects everyone slightly differently. And there is no one timeline for the end of it all. You could lose your loved one within the first year for any number of reasons, or they could fool you and last 20 years. My mom is in a wheelchair and has been for 3 years. She is incontinent and has macular degeneration. She used to speak alot, but hardly says anything now and when she does she garbles her words. I am the family member most close to the situation and the most important thing is for you to take care of yourself, not matter what that looks like. You will hear that from everyone too. I might have my mother for another 2 to 5 years and while I love her, this is no quality of life for her anymore and I am hoping her to be at rest sooner rather than later.
You will know when you are ready to move her. Try to get as much help as possible and support of any other family and friends. It is important not to do this alone. The person we give over to any facility is actually in a better mental position to handle it all, so to speak, because their mind takes them elsewhere. You are still based in the here and now with worry and guilt and love and stress and a whole lot more. So you need to stay healthy and uplifted however you can.
Good luck and let us know how it goes.
If something doesn't seem right, it probably isn't. Especially if you rule out all the things that seem like pretty reasonable explanations.
I wished I could have had an experience like you did MSDAISY. Oh how I wanted that, but it was not to be due to a number of really unpleasant reasons. Mom had mental illness in addition to dementia and all her medical problems. We never have had a normal mother/daughter relationship, so we were not close to start with. My situation was not in any of the how-to books!
But, I followed my gut, listened to the experts, and tried to make the best out of hard choices so I can sleep at night at least. I made sure mom was safe above all else. She will never be happy, but she is safe, clean, and gets lots & lots of attention.
This whole journey has been a real education for me and my husband.