My mom has begun to shadow me apparently. She is vision impaired along with the dementia, she is not following me around so to speak.
When I leave the room she has started to say " Hello?" "Are you there" "Where are you?" It is continual until she sees me, regardless of the fact that she can hear me.
She only does that with me, not my siblings or my spouse, or anyone else that visits daily. I am her caregiver 24/7, so I sense this may be the reason.
I have noticed that when I explain to her what I am going to do, the calling after me is much worse. I have attempted to keep her engaged in an activity while I take care of chores, cooking, whatever. I have also tried to talk to her from the other room to reassure her. Anybody have any suggestions in this regard? .
Ok, I know I haven't posted anything recently about the health issues for a lot of reasons, more so because I care more about what's going on in your lives than mine but questions have arisen so here's what I found out today. The cancer is still prevalent and causing pain on a daily basis. The diabetes is still not under control because of the blood sugars, and the HIV, well I just don't know or care about it any longer because it just doesn't matter to me.
I went to the eye doctor today because last Saturday I suddenly lost vision out of my right eye. I wasn't worried about it until it continued. This was one symptom I was told about a few months ago but until it actually happens then it gets a little scary. They eye doc sent me to the ER where they happened to have a retina specialist over there who graciously made time to see me. As I sat there waiting and watching the eye doc see several patients and seemed very happy especially when he told them everything was going to be all right, imagine my horror when as he was looking and testing my eyes, he was very quiet.
Finally he asked if I had been told about what would happen as my health declined due to the diseases racking my body and the side affects of the meds I was taking. I said yes, and he quietly told me that my eyes were not getting the oxygen to the nerves that they needed and I would slowly, gradually is what I think he said lose all my eyesight. Weeks, maybe a couple of months he said but I would go blind before anything else happened. So many emotions are happening but I'm hoping that I get to see all my friends ride out of Cow Palace in June, that means a lot to me so keep your fingers crossed and let's hope that there's a purpose for all we go through in life....love you guys and ladies!
FUN - I sure do get it. I've been getting it for a long time now. I think I first started getting it when I was in my late teens/early twenties, and saw how she was destroying my father (he died in his '60s of alcohol abuse - his only way out, I think). When you hear her tell others, "Oh, I was forced to have children" "I never wanted any" "You were supposed to be a boy" and don't get me started on her labor stories about me!! She's had it in for me since day one. But somehow, by G-d's supreme grace I have been able to rise above it, don't mean to sound self righteous here, but after you have taken so much, why add to it?
I do have my own family as a saving grace (pardon the pun) so I just continue to move forward although I'm sure she thinks to herself, I'M her REAL family!! Don't forget though, I have a sibling who has absolutely zero input in her care etc. -- but he is always excused!! Typical narcissist behaviour on her part.
Posters on this thread, I am SO with you. We are all in this together!! How refreshing to finally find a place to vent, to be heard, to voice opinions and above all, to get some respect!!
Thank you all. It can't go on forever..........??
If she knows I am leaving she starts with the stall techniques, (some that I can't just ignore and go on). Do you know where my phone is? Is it OK if I wash your towel while your gone? You need to take a jacket (on an 80 degree day). Where is soap? Anything that pops into her head to delay me. If she know I am going somewhere the next day she stays awake and patrols the house the entire night. If I don't tell her until I am ready to leave I wind up leaving at least an hour late.
Totally ignores any statements I make about being late or gotta go.
Then she will find 10 things she thinks I have forgotten and calls me before I get to the end of the block.
I know it is partly anxiety, partly controlling personality, she looks so content when I finally leave totally flustered or near tears.
I wish I could get in her mind to see what she is thinking. I think sometimes it's like a fight or flight type situation. It is as if they are trying so hard not forget things that it gets all jumbled up inside somehow. Fixated on something and it gets all out of order in their mind.
I appreciate all of the suggestions and I am going to try them. It's like they say, with Alzheimer's / Dementia, they cannot change, so we have to.
You are the only one who made the connection of the name I chose: FedUpNow (i.e. FUN). You truly do get it! Takes one to know one. Yes, I married the only son, the golden boy, named after the 12th king of Lithuania blah blah blah. I refer to them as the newlyweds. Of course he didn't set boundaries. He lets her get away with this stuff. He has always been tested by his mother who insists she is more important than his wife. And she is. I gave up a long time ago. FYI, when I got truly fed up, I booked a three week trip to India and left without telling my husband where I was going. Best time in my life--traveling with three other women. He was furious. How dare I leave without telling him. How dare he inflict his mother on me.
Payback is a bitch, and sometimes, it can even be FUN! ;)
Yes, they lie, they steal, they manipulate, they belittle, berate, and throw their weight around,. It's called bullying and this is the only way they have learned how to get what they want. Others of course are horrified at me, because I'm her only daughter (there is one useless sibling) and how could I possibly characterize her in this way? There must be something wrong with me, right??
I have a feeling you and I could compare a lot of notes on here......I am sorry about what happened to you with the walker incident - but if your husband was outraged, what did he do about it? Did he call her on it? Doubt if it would have done any good anyway. I have tried my level best to set boundaries with this one, telling her over and over again, the same things she should not do, only to find her continuing to do them, because she feels she has to know everything and who are you to get after her about it anyways?
I really had my eyes opened when I went on the narcissist thread on here. Sounds exactly like your MIL although I would also hazard a guess that your husband was the "golden boy" for whom no woman would be good enough in her eyes. There is no way to win with these people so it's best to just distance yourself and control the contact (or lack of) with them. TOXIC!!
She will ask about conversations (private ones) I have had with my husband or children. She has a huge sense of entitlement which seems to make her feel that she should be privy to everything that goes on in this house. (NOT!!) It seems as if she is afraid to miss something, or to feel left out. I might add that she is very childish and immature, jealous of others, hypercritical, judgmental, bigoted,.......shall I go on?
The comments from those of you who truly love your parents are completely different from those of us who have suffered, especially in childhood, from parents who are controlling, overreactive, and overbearing, not to mention overly strict and without empathy. I doubt if any of you who have NOT had parents like that can even begin to comprehend what it is like to care for an elderly parent who feels that they own you, and that you owe them -- believe me, it's a whole different scenario.
Why, this afternoon, she came out to the kitchen with her lunch dishes, which was rare because she rarely lifts a finger, she'd rather be waited on (suffers from a "queen" complex). I caught her unabashedly staring at the computer screen - not the first time either.
As soon as you get after them for doing something they know they shouldn't be doing, they go on the attack: "You're making a mountain out of a molehill! You're too sensitive! Why is everything a big deal to you!" Excuse me, you just violated my privacy...........but I guess that's ok, because no one would DARE do that to you because they would be severely reprimanded for it.
I laughed when I read the comment about the mother who suddenly "appeared" behind the poster - I get this all the time. I call it the "Houdini effect". Mine has quite a few tricks up her sleeve. (she has always been this way, it hasn't just suddenly happened because she is old now, and she does not have dementia).
Mine will take her lunch to her room to eat, but the minute you get out in the kitchen to get yours, you turn around to get something out of the fridge and - hello!! There she is.....watching everything that you make, or take to eat for yourself. Of course, if you do that to her, you are "nosy" or if you come up behind her, you get "oh you just love to do that to me, don't you? sneaking up on me all the time".
There is no where in this house in which I can have a quiet conversation with anyone, if someone comes to the door she "appears" to see who it is, because she feels she has the right to know. She will also volunteer to go downstairs to get the mail, that way she can have control and see what you are getting. But you are not allowed to look at her mail. That is not acceptable!
One night my husband and I had a meeting with the landscapers...I thought I saw a shadow up on the second floor and there she was, hanging over the balcony to see what all the action was!
I also took note of the post that mentioned a parent listening in on the phone. I am accused of doing this all the time. I never do that but she will pick the phone up to listen in and see who I am talking to!!
I guess what I am trying to point out is that this "do as I say, not as I do" attitude of hers, which she has installed in us since we were small, is the heighth of hypocrisy to me. I could give you so many more examples of her detrimental behaviour. But most of you, I'm sure, are interested in this kind of behaviour connected to dementia, whereas my parent has exhibited it all her life and I have busted my head trying to figure out what caused it, to no avail.
FedUpNow, you are very brave. You have done a good job. You are able now to let it go. I am happy to hear you say that after their death, you can have some peace. I am patiently waiting for mine.
One thing that helps is my Mom loves dogs! when she is at my house my little westie just sits on her lap for hours. This helps. I think if I became full time caregiver I will use that and say "Mom,I have to go cook now. Lala(our westie) needs to stay out of my way in the kitchen - she is a bad beggar- can you watch her in the family room while I cook? It would be a big help!" Mom also has a huge heart when it comes to her dogs so I could also say "Lala is really scared right now and I have to go take a shower. Can you hold her while I get ready for the day? Just pet her and tell her that it is OK that her Mama will be right back?" I am hoping this will help sooth herself as well.
Good luck! And maybe get a lap dog?
I don't think anything my mom does irritates me as much as this hovering thing she does. Particularly bad is when I am working and I turn around to find her standing there behind me. Talk about "stealth", lol. It happens so much that I think she's behind me even when she isn't.
I know I'm kind of making light of my situation in this post, but it truly us aggravating beyond measure and a problem I am trying my best to ignore.